Parkinson's Disease Tulip


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Old 03-03-2007, 09:50 AM #1
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Stitcher Stitcher is offline
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Join Date: Aug 2006
Posts: 2,136
15 yr Member
Stitcher Stitcher is offline
Magnate
Stitcher's Avatar
 
Join Date: Aug 2006
Posts: 2,136
15 yr Member
Unhappy The problem with hospitals

I decided last night what needs to happen.

People can understand what is is like to be blind by having their vision cut off for 24-hours or so...dark glasses, something wrapped around the head, etc.

People can understand about being obese by wearing a costume and going out onto the street.

There are many other examples

What we need is a magic wand to cause hospital personnel to have Stage 3 or above PD for 24 hours with meds, and another 24 hours without meds. Maybe then they would realize how uncomfortable and painful it can be to have PD, allowing them to find the empathy that we need.

The part I hate the most is the, "you are too young"...heck I'm 58..."are you okay," when you can only shuffle a little bit..."are you nervous" when your tremor is really bad...do I look okay, NO...or (as Paula drew the picture a couple of months ago) just totally ignore it as though it isn't important.

After being sick for 12 hours and not being able to take meds, then 9 hours in the ER...I would have given away my lottery winnings for a Sinemet and a Mirapex. While I had assistance to sit up on the bed in the ER, get my legs off the bed to stand up and "run" to the bathroom, etc...LOL...that was as far as it went.

How awesome it would be to hear, "let's get you feeling better so you can take you meds"
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