CMM1957;

I'd think that once your hubby is turned on, his MDS will stop Mirapex first. Talk this over with him. DBS is marvelously effective on movement disorders such as tremor and dyskinesia.

Dyskinesia is caused by excess dopamine, can you try a half a Stalevo??

There IS a protocol that will help your hubby. Keep after your MDS until you find it. I second Theresa's observation that there any alternatives to Mirapex, And yes his compulsive behavior should disappear once he quits Mirapex.
You deserve a medal for hanging tough!! I know it was not easy!!

Charlie Black 57, DX'ed with PD in 1990, bi-latera DBS-STN in 2002at UCLA

Thanks for the support. Its Sunday evening, really getting nervous about the whole thing. I don't even know if my husband knows how hard its been on me. He just thinks I'm a jerk because I was always checking upon him and never trusting him. His whole demeanor has changed, he's not the man he was. Hoping he will get back to his old self. 25 years of marriage is a long time, a lot of ups and downs but nothing ever like this. This was the true test! Say a prayer for us! Let you know how he made out soon.

All the best for a good outcome with the surgery.
If it helps cmm I could be (some would say still am ) a prize ***** pre DBS. But I truly think I'm a little bit nicer post op.
Not sure if it was something that is related to removal of anti parkinson meds but methinks so.
Good luck!
Lee

I tried Mirapex when it first came out. I was having sleep attacks at stop lights while driving, would get obsessive and be up all night cleaning, all kinds of obsessive behavior. All this stopped when I stopped taking the Mirapex. You couldn't pay me to go back on it. Best wishes for your situation.

husband had his surgery today. It didn't take quite as long as expected. He had the bilateral DBS. When I saw him in ICU he looked great. He had a great response with his rigidity, he can move his legs great while he was laying in bed. We will see what happens in the next month. The important thing is he got through it.

Glad to hear that the surgery went well. Just sending you best wishes and adding my hopes you yours, that your husband recovers quickly, and that the DBS will be as helpful as you hoped - or even more. It must be a great relief to have it done and over with.

All the best.

birte

Great news! How relieved you must be! Say hello to your hubby for me, I wish him a speedy recovery.

Teresa

Good luck with your DBS. My husband is now 6 days post op from his DBS and is doing unbelievably well as far as symptoms from surgery. I never could imagine that someone could undergo brain surgery and walk out of the hospital (no wheelchair?) two days later. Of course, they put him back on his medicine until next week when he gets turned on. It will be interesting to see when he goes off medicine how he responds. We are about an hour and a half away from hospital in Pennsylvania, but well worth the trip to have a great doctor. Will keep you posted as to his progress.
Cindy

so happy things are going well good luck hon and best of luck to both of you

What an encouraging thread and thanks so much for sharing your experience cmm. Did you say where your husband had it done in Pennyslvania? I appreciate all of you telling us where you had yours done. Gaykir, Dale, and anyone else who did - thanks for chiming in. Dale I can see my stats possibly matching yours in terms of how old I might be and how long I've had it when I finally take the step.

Each time I read about the bravery this surgery takes [yes and i am not just flattering you all - it does take tremendous bravery], I move a little closer to accepting that I can do it someday.

God bless you all and thanks so much for sharing!
Paula