[savedbygrace]

Greetings folks - enjoy your posts.

DX - 3 yrs a go
Diet - good
Exercise - daily/fair
Supplements - multitudes!
Natural remedies - tried a bunch!
Sleep - @ 4 hrs
Stress - big problem

My thorn in the flesh is my arms - lots of pain and stiffness and maybe inflammation (my current naturalists doctor thinks inflammation is an issue) from elbow down - seems like the PD has centered around my forearms! If I had relief in the forearms/wrists then people wouldn't know I had PD and my attitiude and outlook would be vastly different. No neuro or natural doctor has answers for my arms - My only relief, unfortunately, is the sinemet and I'm thankful for that for without it this PD would be unbearable everyday.

But any thoughts on why my arms are taking the blunt of this?
Thanks
God bless

[paula_w]

hi,

i am not a doctor, repeat....etc/etc

we are learning that pd is not just about dopamine. Have you asked about an anticholinergic to balance some of the other actions that are overfiring or lacking along with the lack of sufficient dopamine? some of the transmitters for the peripheral system could also be out of balance.

[Jomar]

Are you & Drs sure you don't have some sort of repetitive motion injury issues happening also?

[reverett123]

1) How do the meds affect your arms in terms of the muscles clenching? That can really make them sore.

2) The inflammtion possibility is real. I take silymarin and saw palmetto daily for that.

[savedbygrace]

Originally Posted by paula_w

hi,

i am not a doctor, repeat....etc/etc

we are learning that pd is not just about dopamine. Have you asked about an anticholinergic to balance some of the other actions that are overfiring or lacking along with the lack of sufficient dopamine? some of the transmitters for the peripheral system could also be out of balance.

Thanks - will ask about this on next visit. Read a lot in 3 years but not all - still searching for what might work for me. My wellsness doctor believes something else is going on besides the PD for I should not be experiencing this much discomfort in my arms.

[savedbygrace]

Originally Posted by Jo*mar

Are you & Drs sure you don't have some sort of repetitive motion injury issues happening also?

thanks for idea - I have not have this brought to my attention - used to do a lot of typing but not much now due to pain and stiffness.

[savedbygrace]

Originally Posted by reverett123

1) How do the meds affect your arms in terms of the muscles clenching? That can really make them sore.

2) The inflammation possibility is real. I take silymarin and saw palmetto daily for that.

Thanks Rev - I started out with 1 25/100's 3 times a day - now I'm up to 25/250 2 times a day and sometimes on a bad day I take one before bedtime.

1. No clenching that I'm aware of. The sinemet helps. I also believe that my lack of handling my stress is a factor and after reading your posts it appears to be true of me. A lot of changes in my life the past 3 years.

2. As mentioned my wellness DR thought the inflammation could be there and she put me on some pharma grade CO10 1,000 mg a day along with Neuroflam 2 weeks ago - I have since stared taking tumeric - heard that could help and tart cherry juice concentrate and apple vinegar cider. Been trying to avoid foods that may aid in inflammation and taking more foods/supplements that could aid in suppressing inflammation.

While I am here - I last upped my dosage from 25/100's to 25/250's back in Nov. and it helped - also was real low in vit D and have upped that and both appeared to really make a difference but now I am afraid the sinemet may not be doing the job like it used to or there is something else going on - MY FEAR? How much sinemet can one take till there comes a time where I'm maxed out, if that is possible? - I fear there will be a day when my dosage will be real high and nowhere else to go!

Any thoughts on the potential high dosages?
BTW - no tremors at all - just stiffness and pain. Balance is ok - brain fog better than it used to be once I got off of sleeping pills

Thanks,
God bless

[Jomar]

You might like to visit our Thoracic outlet syndrome forum (TOS for short) RSI is included (there is a subforum for RSI also, but more posts on the TOS forum}.
here is the TOS forum useful sticky thread -
http://neurotalk.psychcentral.com/thread84.html
post #1 is a crash course of info - so you can assess if any of it might apply for you.

Also we have a Vitamins, Nutrients, Herbs and Supplements forum
http://neurotalk.psychcentral.com/forum49.html

[soccertese]

i'd drop the supps and see if that helps.
what exactly are you taking? any amino acids might be interfering with sinemet absorption in the intestine and crossing the BBB.

i'm always reluctant to take more sinemet but if you can take an amount that relieves the pain, that says something. remember, l-dopa IS AN AMINO ACID found in nature.
remember, what's important is how much dopamine reaches your brain, you have to figure out how to get a constant dosage into your blood and an adequate carbidopa level to keep all of the l-dopa from being broken down before it gets to your brain. i stagger regular sinemet with sinemet cr. my theory is take 100mg regular when i get up, let it saturate the enzymes that break it down, then 50/200mg cr 1.5-2hrs later, then 100mg 3-4hrs later to "top up", then either another 100mg or 200mg cr as needed depending on how functional i need to be in the evening. wouldn't it be nice if we had a simple l-dopa
blood test?
you have insignificant pain/rigidity in your fingers, legs, neck, back, etc?

[savedbygrace]

Originally Posted by soccertese

1. i'd drop the supps and see if that helps.
what exactly are you taking? any amino acids might be interfering with sinemet absorption in the intestine and crossing the BBB.

2. remember, what's important is how much dopamine reaches your brain, you have to figure out how to get a constant dosage into your blood and an adequate carbidopa level to keep all of the l-dopa from being broken down before it gets to your brain.

3. you have insignificant pain/rigidity in your fingers, legs, neck, back, etc?

Thanks soccertese for your thoughts...

1. My regiment - Up by 5AM - I take B6. Vit D, C, Seretone, Dopatone, COQ10, B12, Coral Calcium, NAC, Acidolphilus, Neuroflam, Cod Liver, Multivitamin, and Lypo-Speric GSH. Usually eat 4 raw eggs and OJ and water with apple cider vinegar, tart cherry juice concentrate, sea salt, and maybe a banana before I leave at 5:45 or so.

Get to work between 6-6:30 - take my sinemet at @ 8AM - eat celery, carrots, maybe another banana. Lunch at 11:30 or so and then sinemet at 2PM. I do ok till next morning but lately been taking a bit of sinemet at 7 PM or so. I even feel ok in morning without any sinemet for almost 12 hours. At night I take the Sereton, Dopatone, COQ10, and Neuroflam again.

2. I will work on this - makes sense - probably need work in this area.

3. Pain mostly in forearms/wrist - stiffness in fingers, legs, and neck. My right side/arm is the worse but I've had some surgeries on my arm years back before I was dx - they were trying to find out why I had pain in my right forearm and wrist!

Hope this helps - any input would be appreciated -

Thanks again

God bless