NeuroTalk Support Groups - I can smell a weird smell all the time, is it the PD

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- - I can smell a weird smell all the time, is it the PD (https://www.neurotalk.org/parkinson-s-disease/150148-smell-weird-smell-time-pd.html)

Quote:

Originally Posted by Lexiegirl (Post 783578)

What you are experiencing are "olfactory hallucinations". I had exactly the same thing 15 years before I was officially diagnosed with PD. After these episodes, which were so disturbing, because they were always powerful and noxious types of odors, and then I lost my sense of smell completely. I was not officially diagnosed with PD until 4 years ago. Prior to that I had alot of non-motor symptoms, like "olfactory hallucinations", urinary incontinence, chronic insomnia, severe anxiety - my motor symptoms started many years later. Loss of smell is a major bio-marker for PD. My sense of smell has come back about 25% over the past few years. Please speak to your Neurologist about this...sorry I don't have better news for you.

Lexie

Hello Lexie,

My daughter's name is Lexie, btw.

I don't know about Caroline, but it's always nice to know you're not alone in experiencing these odd symptoms.
So, thanks for identifying this for us. Addiing another symptom or check mark to the PD list isn't good news, but at least we can place it there and file it away.

Thanks again,
Tonya

olf hallucinations

I too still have olfactory hallucinations-in my case all sinemet caused. I suspect there are different causes/sources for such. I could swear something was bad in my fridge this week but someone here said no it smelled fine. Why is it always the stinky stuff. UGH! :p

update on sinemet allergy

My Mom's friend that had to stop sinemet cold turkey due to allergy has emerged much better finally. They were sure she was going to die at the time I first posted. She did get very ill but is now functioning fairly well with no sinemet and feels better than she did before. I'm trying to get details on WHAT exactly she is taking now. Her age and health make it rather difficult to quiz her filtered through my mom. The great news is that she is sinemet free after many years and feeling better than she has in years. Bad news is it darn near killed her to quit cold turkey, I can't imagine.

Quote:

Originally Posted by toadie (Post 773347)

uhhhm, i've lost half of my sense of smell, with a few exceptions.

it's kind of hard because it was really strong foul smell, to me, however, no one else seems to detect or smell it. after a few episodes, and dr visits, sure enough it was a sinus or ear infection starting. at least, i have a bit of warning.

at any rate, on a good day my shampoos, shower gels, conditioners and dish soaps smell wonderful.

on an off day they all smell like boiled cabbage and onions. mayhap, a good scent for food, not so much for hand lotion, shampoo or dish soap, eeeewe.

i try to keep a good variety of strong citrus (lemon, grapefruit, or certain berries) or plain soap scented sundries on hand to off set the days of everything smelling of stinky feet and boiled cabbage.

some perfumes or scents are too strong and i can taste them, some don't even bother me, i can't smell them.

accck i know my sense of smell is having an off day when my chanel no. 5 smells like cabbage.

ahhh but i do love the scent of a dark rich coffee, leather and hoppe's no 9 (a gun oil) :o

hope it helps

I am getting the same problem since a couple of weeks. I noticed it first when i entered the kitchen then something like burning smell, burning onion, something like that but later it starts to appear all time. and my smelling power is now almost zero. I can't distinguish and get any smells of foods or perfumes but instead of that use to get same bad smell. this smell also appears strongly when taking shower and the shampoo that i use to apply in my hair and the shampoo coming down with water smells almost badly and can not get that shampoo's smell. And I asked about it with my wife but she doesn't smell it. I am really in tension now. what might be the cause of it and really want to know? So, I started so search in the google and got this forum which is really similar to my problems so hurriedly registered and posting a comment. and now what I should do? Please anybody there to help my problem.

For six months all perfumes smell disgusting

I have developed an aversion to all products with added fragrance. Laundry soap, my expensive perfumes that I have worn for years, shampoo, ect. This smell is very distorted and chemical in nature. Cant burn candles anymore. This smell problem came on suddenly and I remember when I became aware of it and has not relented. Help.

Quote:

Originally Posted by kiran.rai (Post 919743)

Two things I would consider if I were you:

1. I have gotten more sensitive to chemicals as I've aged, and can no longer stand to go into places that are heavily perfumed like Bath and Body Works, many clothing stores, walking past the women's counters in many stores where they have all the perfumes....these are now off limits and literally make my eyes water and give me a headache! I don't know why, other than to suspect they are using harsher/more chemicals than they used to and/or I am just more sensitive.

2. Zinc deficiency is known to cause issues with our sense of smell. It is very dangerous to supplement minerals unless you do the research, so be smart about it if you think this may be an issue for you. Also, many minerals need other minerals in certain ratios to work properly (or not cause a problem).

Many PWP report issues with their sense of smell also bnd that may be true in your case....but I would keep other causes in mind, as possibilities. I think too often docs just attribute everything to PD and sometimes, there really is something else at play.