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05-25-2011, 07:57 PM | #1 | ||
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Were you asked by your neuro about sleep, breathing, constipation, swallowing, speech, etc.? My neuro did not !.
Imad http://parkinsons.about.com/od/signs...a/Nonmotor.htm
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Imad Born in 1943. Diagnosed with PD in 2006. |
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"Thanks for this!" says: | Vtgurl (05-27-2011) |
05-26-2011, 06:35 PM | #2 | ||
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In Remembrance
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I sent this to my family. They forget sometimes or at least mine does, does anyone else's? ha!
It's pretty thorough thanks Imad! adding i think there are best practices recently written for doctors to ask at appt intervals. does anyone have them?
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paula "Time is not neutral for those who have pd or for those who will get it." Last edited by paula_w; 05-27-2011 at 06:14 AM. Reason: spelling |
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"Thanks for this!" says: | imark3000 (05-27-2011) |
05-27-2011, 10:10 AM | #3 | |||
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Quote:
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"You can't fight City Hall, but you can pee on the steps and run." --Gary North |
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05-27-2011, 12:51 PM | #4 | ||
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I wish I could have persuaded any of the the doctors I have seen to ask me those things. After 8 years they are still looking for my missing tremor. They mainly say 'What can I do for you today" as if I was looking for a new haircut... and are not pleased at all if I want to tell them that I am now falling a lot. Every time I get to see a different one I get a talk on sinemet toxicity, despite having been on a stable low dose for years. I tried to raise the issue of sleep recently and was offered an anti-depressant instead of a discussion of how it affects me....
More interested in their vision of PD than my vision of trying to survive it...... We do have a best practice guide, I guess they just haven't got time to read it..... |
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05-27-2011, 03:59 PM | #5 | ||
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In Remembrance
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some make good dbs salesmen but to them it is the only option. they don't talk about clinical trials so what else is there?
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paula "Time is not neutral for those who have pd or for those who will get it." |
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06-16-2011, 04:52 PM | #6 | ||
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All I was ever asked is did I cry sometimes. Yes. I was going through a divorce but feeling better than I had in years-empowered. That last bit never made clinical notes and was used by the court to not allow me to speak since I was obv suffering depression. My long term psychologist testified I was not but he who can pay the better attny prevails. Still appeallung that. Not the first time inaccurate clinical notes had very bad effect. It pays to request ur records periodically.
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