Parkinson's Disease Tulip


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Old 05-31-2011, 01:16 PM #1
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
Default meds/dbs - addressing symptoms or side effects?

I know this has been brought up and hashed out before but d0gmas post really has me thinking about this again. We are all addicted to our meds and I certainly got worse 'offs' after i started sinemet. Going off it could mean death from malignant neuroleptic syndrome and we now have new terminology called DAWS for dopamine agonist withdrawal symptom. They are defining the addictions and we can do nothing but keep popping the pills or get a dbs.

i spoke with girija and others about this but one point that was made in my communications with d0gma was that DBS usually corrects the side effects of sinemet, and are being prescribed when they don't always need to be.

This is not to say that all dbs aren't necessary. And girija pointed out that dbs provides electricity that dopamine is supposed to be creating. But how many of you have asked a person about their DBS and the first thing they say is no more dyskinesia or dystonia?

I know this is a gray area and don't know if anyone has the answer but i'm going to follow d0gma's journey to see where it leads.

any thoughts?
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paula

"Time is not neutral for those who have pd or for those who will get it."

Last edited by paula_w; 05-31-2011 at 02:44 PM. Reason: spelling
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