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06-08-2011, 03:11 PM | #1 | ||
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Junior Member
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Waiting for the Levodopa to kick in ... is misery.
Can't walk - sit or stand ... feel like I want to jump out of my skin. What do you do while waiting for the Levodopa to "arrive"? |
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06-08-2011, 05:40 PM | #2 | |||
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In Remembrance
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1- Sitting in the quiet dark doing a breathing meditation.
2- Taking a B-complex about 15 minutes after the Ldopa 3- Taking a potassium supplement about 15 min etc. 4- Lying in the floor "wallering". If you don't know what that means, send twenty bucks for my book, "Wallering - A Country Way to Knowing" 5-You might try mucuna. It comes on fast but goes just as quick. It might be good if used with a CR form of sinemet.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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"Thanks for this!" says: | backpacker11500 (04-29-2013), MikeTTF (04-29-2013) |
06-08-2011, 06:32 PM | #3 | |||
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Member
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distraction...
music, tv, talking on phone, using computer, etc. anything to get your mind away from your physical state of being. get it ready before the bad time strikes so it will be available for you when you need it.
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I have a post-encephalitic neurological disorder, but it does NOT have me! |
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"Thanks for this!" says: | MikeTTF (04-29-2013) |
04-28-2013, 11:29 AM | #4 | ||
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Senior Member
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Quote:
Or are you joshing me? This guy named Mike comes looking for someone lost for years; the only thing we know is that this lost friend once said he felt like he was jumping out of his skin; time melts and we find who Mike is looking for from the past. Himself. And then you teach him Wallering?. Mike, seriously, what's up with finding the jumping out of skin guy and should i be warned about wallering? |
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"Thanks for this!" says: | VICTORIALOU (04-28-2013) |
04-28-2013, 07:36 PM | #5 | |||
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Senior Member
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I used to have that feeling when I went off for the night..Couldn't walk, sit, stand, lay down or sleep..My whole body felt so uncomfortable, it drove me nuts..I felt like jumping out of my skin too..300 mgs of Gabapentin took care of that feeling
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There are those who see things as they are and ask..Why?..I dream of things that never were and ask..Why not?..RFK |
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"Thanks for this!" says: | MikeTTF (04-29-2013) |
04-29-2013, 01:22 AM | #6 | ||
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Junior Member
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This got out of hand.
It was Stevem53 that originally said that about jumping out of his skin. Quote:
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04-29-2013, 04:39 AM | #7 | ||
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Senior Member
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Quote:
But I really did like the way it seemed, as a Twilight Zone episode, as so much of having Parkinson's is like living in another dimension that other people can't see; and we really do look back and say, "Who have I become?" Back to current reality! (if there is any such thing as current reality) you and Stevem53 are telling it like it is - I have the same thing: NO position is comfortable; NO part of the body will remain calm; it is like being electrocuted; it is like being tortured; it is like you are jumping out of your skin; it is like you WANT to jump out of your skin; out of your body; out of this crazed pain; and you try every trick in the book to make it go away; and then it does go away; only to return again and again. Doctors do not even seem to be familiar with this; it is a valuable contribution to find ways to describe everything we go through; and on this item, you and Steve say it best: What does it feel like? It feels like i am jumping out of my skin It feels like I can't live in this skin any more It feels like I can't take it any more. But we do take it. And it goes away. And it comes back. And people say well you are lucky you don't have something serious, and you realize that once again, you are in the Twilight Zone, another level of Alice in Wonderland. What the doormouse said. Thank you Mike and Steve, for blowing the fog horn in the fog. |
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04-29-2013, 10:00 AM | #8 | |||
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Junior Member
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Mucuna and Sine Cr is a great idea, try to get your Dr to write a script for Carbidopa only (If Possible) to carry the Mucuna across the BBB and get off the Heromet if its not too late, otherwise On Offs will continue. On Offs are just a fancy way of saying i have to wait to get my next "fix" from my dealer who is at lunch right now. It took me 2 years to get off heromet and start my native Dopamine production again and i used Mucuna to do it along with other stuff. If you have been on Sinemet for a long time quitting is not an option, after all it does replace what we need...just not effectively and with serious dependancy issues and side effects that rival the effects of PD in alot of cases. i have found that most people can be very protective and defensive of their Sinemet so i dont mean to cause trouble. (I have strong opinions not meant to offend)
Peace, BP, PD since 33 and med free so that i may die naturally.....heheheh. |
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04-29-2013, 10:26 AM | #9 | ||
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Magnate
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Quote:
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04-29-2013, 11:09 AM | #10 | |||
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Junior Member
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.Peace, may your Wellness level remain high...... BP with PD since 2003, no meds so I may die naturally...... |
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