http://www.blogtalkradio.com/parkins...akin-to-awaken

I'm never too sure about recovey, but I don't rule it out. The exercise and meditation I'm going to look into. I need something new to try after recent setbacks...

I don't get it. All I have to do to cure myself of PD is to think positive??? Sweet!

not only positive thinking but 3 hours per day of QuiGong practice......
Howard Schifke recovered from PD through QuiGpng also:

http://www.fightingparkinsonsdrugfre...-for-recovery/

I am thrilled he feels better and totally believe his program helps, BUT I couldn't help but notice his fingers still tremor at the beginning of the videos, when he puts his hands at rest, either hanging down at this side when standing or on his knees when sitting, the fingers are moving and it does not look like it is on purpose. Also, he was only dx'd in 2009, barely two years ago. I wonder about the time frame.

I just don't know if you can really say he is 100% symptom free, because of those finger movements in the videos, they sure look like PD tremors to me.

The bottom line, though, I guess, is that if he feels better, then who cares? And if his program helps others and they are willing to pay for his coaching services offered on his website, fine. It's not like we have so many other choices out there.

The bottom line, though, I guess, is that if he feels better, then who cares? And if his program helps others and they are willing to pay for his coaching services offered on his website, fine. It's not like we have so many other choices out there.[/QUOTE]

Yes. Long time ago I did a search on the internet for pd and the etheric template and came up with RRogers website(i don't even remember the url but this was long before the birth of RR "Parkinsons Recovery" and was a website focused on other work). There was channelled information on pd that made sense...basically what it said was that pd is first and foremost a first chakra issue - that we are like an electrical chord that is unplugged..no ground. At the time I had a friend who led a pd support group in Portland who was interested inthis info i found so he contacted Robert Rogers and eventually the "Parkinsons Energy Project" was born. Robert and two other practitioners of cranial sacral therapists also trained at Barbara Brennans school gave 3 on one cranial treatments to everyone in our group for free once/month for 6 (?) months. They were awesome treatments-6 hands working on you at once is a wonderful experience. I think most everyone benefited however i will say that Robert in his enthusiasm did tend to assume "recovery". Through time I have come to think that "recovery" to him means healing in a broader perspective where possibly physical pd sx are the last to disappear and healing is a day to day process where we learn to love and be loved a little more each day. its a different paradigm to be process rather than outcome referenced. I was suprised that no mention was ever made of the original channelled info which was what drew me to him in the first place.

so i think he is a tireless researcher who truly has very good intentions - but keep in mind that recovery engenders much more than a tremor that has stopped and all other physical sx.

so now you know ....some more of the story.

md

As I suspect many are. I can't be the only one. Dystonia is the third most common movement disorder. It is a primary symptom of over 50 disorders. Bradykinesia is a primary symptom of some 40 disorders or drug reactions, tremors have as many causes and types as there are imaginations to fill them it seems. Yet it seems the rubber stamp of PD diagnosis and the first rx for sinemet are written awfully fast for a disease (PD) with no definitive means of diagnosis (except after death). Even scans of any type only show areas of activity during certain stimuli-these are not uniquely diagnostic for PD. The resolution isn't there to see any physical abnormality-only the ability to say it looks like this scan from another person with this problem and has the same active areas during these stimuli.

Reading this forum leads me to believe there are many types of PD and many reactions to PD meds that make us all very unique. So again the rubber stamp treatment, application of scans, and diagnosis is inappropriate.

I do believe people can recover from being misdiagnosed. That is what I am currently trying to do and I am more disabled than when I had PD. The good news is that this is temporary. At least I hope, and think my brain is rediscovering how to make dopamine given some dyskinesias on much lower doses. That's part of how I judge timing to further reduce. One doc tells me a year or more to get off and another swears 1 week will do it. Recovery implies some kind of magic and serves to make many people dismiss it out of hand.

I'm a numbers kinda person though and I can't believe all those docs are right and never change diagnoses...I just don't BUY IT! That and I can't find a single doc with ANY experience getting people off sinemet. Not a single one of all the calls and contacts has returned a call or said yes yet. I'm in some kind of purgatory waiting for something to help.

The main reason I was told I had PD was my response to the drugs. That is the supposed big diagnostic tool. If that method takes a person w/o PD and makes them have either drug inflicted PD or mimic PD then the process is wrong. ALL of my symptoms were caused by sinemet including dystonia which I never had before L-dopa. So do I believe PD can be cured spontaneously? I'm not sure, I've seen my brother's RA go into remission and seen friends survive cancer. I beat cancer they said would have killed me; my dad beat cancer they said was incurable so I don't doubt the body and brain are capable of incredible things. Sometimes the right doc is all we need.

I think more people should be seen off meds (IF AND ONLY IF deemed safe by their doctor) to see if like me they don't show PD symptoms and have not progressed. I think we might have more "cures." I have a family friend also going thru a divorce that was "cured" of MS after her divorce. She never had it either. Stress is a very powerful demon.

I believe that statistically based only on the numbers above that 75% or more may be misdiagnosed and addicted to sinemet and/or inappropriately prescribed or prescribed too soon. It is a drug of last resort since it has a very short effective life span. The side effects are not L-dopa responsive and become permanent.

I have a big problem with docs prescribing it to younger and younger people. My dystonia from sinemet was so severe I couldn't move and was in more pain than I thought possible at a whopping dosage of 2300-2500 mg per day (which was by ALL my docs accounts grossly over prescribed for someone on it for only 5 years) for someone that could pass for normal most of the time. Now I'm on 600 a day and still decreasing and the dystonia is gone.

This is **** to get off of and very dangerous. I would much rather be comfortable than suffering for 7 months now of agonizing cramps, muscle tears, exacerbated tremor, chronic fatigue, confusion, inability to concentrate or carry through with even simple logic. You have to be VERY motivated to go through this. I don't know how much longer. One doc says 1-2 years and another says a week. I think somewhere in between is a better answer.