[EmptyNest68]

I seem to be melting down from the inside out, like a small fire has been built in my core and is consuming me. It's not thyroid or hormonal, per lab tests. I wonder if it's parkinsons. Any ideas?

[stevem53]

Stalevo gives me drenching sweats sometimes

[Bob Dawson]

I don't know if this is the same thing or not: Often, but not always, I seem to have lost the ability to control my body temperature. Both in cold weather and in hot weather.
In winter - and this rural Canada, so when I say winter I really mean winter - my PD shaking and tremors become extreme, and I feel frozen in weather that I would have laughed at just few years ago.
Summer - we get heat waves; the heat almost knocks me out. I have "attacks of temperature" that are bad enough to feel dangerous.
Cold or hot, I end up on the floor gasping for breath, like coming up from underwater. Unable to get warm, unable to cool down.
But other times, under what appear to be exactly the same circumstances, none of this happens.
But it does not happen in isolation; when my brain is losing its ability to tell my muscles what movements to make, and at what speed, and with what quality, my brain is also losing its ability to control my thermostat. So with words like "Control temperature" and "thermostat" it seems that this is an HVAC problem; a mechanical problem, like heating and cooling problems in office buildings. Call in the tradesmen and have them change the filter and test the compressor. That should fix you up.

Except that I boil over when someone attacks and I turn into a block of shivering ice when people shun me now that I have lost.
It's all quite common for everybody; get attacked by a tiger and you will be sweating, fall off an iceberg and you will be cold. Problem is, Parkinson's is both the attacking tiger, and the frigid water.
That's possibly all B.S. I may be projecting mythology onto reality.... I hear these voices.. but don't worry, I am just talking to myself, and I am a very good listener. I know I do not get hot or cold for no reason. And I take strong action, such as more clothes or less clothes, immediately; hot shower or cold shower, immediately. I don't let it continue because it feels kind of dangerous when you turn into fire or ice for no reason, by which I mean, reasons that no one else sees.
I have to pay special attention to body temp., because it is no longer always automatic any more, cruise control stopped working
There must have been a lot of research into that, right?

[EmptyNest68]

Hey thx Steve..wish it were that. This started last summer, 4-5 months after going off my meds.
Bob, it's to the point I am running to the kitchen of the facility I work in to stand in the freezer, and still am hot. In the winter, I was nabbing blankets from the warmer in our dept to wrap around me because I was absolutely freezing, when everyone else was comfy. As i type this reply, the perspiration is covering me and the heat is making my head hurt..this is crazy. Thanks for your reply, though. I know this is real stuff.

[Bob Dawson]

Originally Posted by EmptyNest68

Bob, it's to the point I am running to the kitchen of the facility I work in to stand in the freezer, and still am hot.

I do not know if it is the same thing, but what you describe I also experience at times. When hot, I beg to be dropped in the Arctic Ocean. When cold walking down the street, I will have to knock on doors of strangers to seek shelter, instead of lying down on a snowbank.
After half an hour of suffering and near panic, it starts to move like the tide - when I sense the tide receding I take action, breathing, music, making sounds, acting in mini-plays for the occasion, I try to regain control of the situation. I no longer fear it. I hate it but I no longer fear it. Lots of times, I can get it to retreat for half an hour; and then be vigilant for half an hour, as sometimes it tries to come back. There is a kind of electrical feeling when it is ready to stop

[EmptyNest68]

That's exactly exactly exactly the feeling I am having.

[jb49]

Heh, this is interesting. I'm 53 dxd 4 yrs. From Ontario where 95 is hot with the humidity that always travels with it. Now if anything goes wrong with me I debate in my mind if it is another Parky symptom rearing its ugly head, or I'm growing older or whatever. After 4 days of this heat, I seem to be not functioning as well as I used to. I work construction so it always was drink lots of water, sweat and carry on. But with this heat wave, I feel weak, sweating like crazy, and just not functioning like I should. Today I wondered if it possibly could be PD related. Comments on this thread lend some credence to that thought, thanks. If my brain was a shiny new vinyl record, Pd symptoms are the scratches that keep appearing on it. john