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07-28-2011, 06:18 PM | #1 | ||
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Diagnosed three years ago - was feeling pretty bad and progressing more quickly than expected and depressed. Main issues were really sore arms/hands, stiffness, insomnia, and brain fog.
Sinemet - 25/250 mg - 2 to 2 1/2 a day - no other PD medicine Last December I found out I was low in Vitamin D after a physical. So on a short vacation I tried some things and this is what I used to kick-start: 2 dozen raw eggs a day for 3 days 10,000 IU of VIt D daily I started feeling a bit better so to make a long story short as I can here is the regiment I've settled on: Breakfast.... 1. 2-4 raw eggs every morning 2. Vitamix blend of (for ex.) apple, banana, fresh spinach, celery stalk, 1/3 cucumber, and I mix it up using a peach, or cherries, blue berries, cabbage, etc. - mix it all up with OJ and fill up 32 oz jar for lunch and drink rest for breakfast along with different whole grain cereals 3. 16 oz. glass of water with apple cider vinegar 4. 1/3 to 1/2 tablespoon of Celtic sea salt 5. Supplements: Vit. C 6,000 IU Vit. D Flaxseed oil (2900 mg) Cod liver oil Vit. b6 and 12 Tumeric Acidolpholis Zinc Acetyl Carnitine NAC Alpha Lipoic Acid Lots of Chlorella Work... When I get there I do 15 minutes or so of light exercise (stretches, jumping jacks, push ups, walk the stairs, etc.) Try to get down 32 oz of water during the day along with Celtic sea salt Lunch... 1. The 32 oz. jar of the Vitamix blended in the morning 2. Can or sardines, or apiece of leftover chicken or pork from previous night's meal or whatever meat we had as a family - sometimes I treat (not real good I know) with a cookie or 2 Dinner Whatever the family has but always try to have a decent fresh salad. 2,900 mg of flaxseed oil More chlorella No coffee, very little coke (maybe a glass on weekend as a treat), or cheap sweets, I do like ice cream - very little fast food and I mean very little - try to get sunlight every day Try to eat lots of fresh cherries when in season and as I can afford them. Present status - less pain, brain fog, and stiffness - got a tempurpedic type mattress and now I sleep better (5 to 6 hrs average, wish for more but was getting less than 3-4 hrs) - can type better, play golf like I used to, mow the lawn, etc. there are even times when I almost feel normal! There are times when I do feel rough but not like I used to. Haven't had a "breakdown" (weeping session) in a while. I still wrestle with some fatigue and sore arms (just not as bad), and my right arm is worse than my left but all in all I feel a better. Also, I have lots of folks praying for me. I'm saying all this because I was ready to throw in the towel and very depressed but just started feeling better over all as opposed to getting worse. I know there is no cure and unless God intervenes this disease will eventually takes its course and then get rough but for now I feel there is hope and may last longer than I thought I was. Bottom line - I trust this will be an encouragement for some to realize that it takes time to find out what helps because, as you know, everybody is different and that possibility of getting better is always possible. Thanks for your time and God bless Last edited by savedbygrace; 07-28-2011 at 07:49 PM. |
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07-28-2011, 09:31 PM | #2 | ||
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What a great post! I was especially glad to see some things you're doing that I'm not - sometimes I think I'm so high maintenance, I can't stand myself, but obviously there's still room for improvement!
I've been through a hard time, losing my father (to PD) and father-in-law in the same week. I became pretty apathetic, quit exercising, didn't do much about a proper diet and then got really worried because I was getting worse much more quickly than I had before. Finally got myself together about a week ago, and got back to the biggies for me - exercise outside in the sunshine, enough calcium with a bit of Vit. D, magnesium, drink lots of water, go to bed at 10:00, eat lots of vegetables (Dr. Wahl's idea), and I'm sleeping a lot better and have more energy and some hope again. Some days I would like to just eat junk food, go to bed late and lie around reading junky novels. But my fate is to live a perfect life! Or else! LOL |
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07-28-2011, 10:12 PM | #3 | |||
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Senior Member
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Quote:
My primary care Dr gave me the news today on my blood work..Cholesterol is higher, and blood sugar number has risen over the past six months..I dont need meds for the blood sugar, but it is a warning shot to stop staying up late and eating junk food
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There are those who see things as they are and ask..Why?..I dream of things that never were and ask..Why not?..RFK |
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07-28-2011, 10:17 PM | #4 | |||
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Senior Member
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Quote:
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There are those who see things as they are and ask..Why?..I dream of things that never were and ask..Why not?..RFK |
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07-29-2011, 05:44 AM | #5 | ||
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Junior Member
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You might be pleasantly surprised what a difference Vit D makes - Mine was 18 and I was hurting. I believe my increase of Vit D is what helped jump start me back to better health.
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07-29-2011, 06:56 AM | #6 | ||
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In Remembrance
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went from 7 to 42 and still take 2,000 IU per day
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paula "Time is not neutral for those who have pd or for those who will get it." |
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07-29-2011, 07:41 AM | #7 | |||
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Senior Member
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That's good Paula!..I have been taking vitamin suppliments for about a year..I have been taking 4,000 units daily for a while, and was on that, plus 50,000 units for 4 months, and the best I can do is 26..I just had blood drawn yeserday again..Guess I'll get the results next week sometime
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There are those who see things as they are and ask..Why?..I dream of things that never were and ask..Why not?..RFK |
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