[kenki]

Channel 4 in the United Kingdom has a half an hour program on early onset of PD tonight 12th of August at 7.30 pm. Please see:

19:35 SEX, LIES AND PARKINSON'S 25*MINS
Friday 12 August, Channel 4, [S]

Oliver Cheetham's First Cut film meets Vicki, a mother-of-two diagnosed with young-onset Parkinson's, as she deals with her condition and the effect her medication is having on her life.

[SwitchingGranny]

Originally Posted by kenki

Channel 4 in the United Kingdom has a half an hour program on early onset of PD tonight 12th of August at 7.30 pm. Please see:

19:35 SEX, LIES AND PARKINSON'S 25*MINS
Friday 12 August, Channel 4, [S]

Oliver Cheetham's First Cut film meets Vicki, a mother-of-two diagnosed with young-onset Parkinson's, as she deals with her condition and the effect her medication is having on her life.

I am in the US, and hope I'll be able to watch this documentary, our son who is 33 has just begun these drugs for early onset parkinson's. I'm concerned about these side effects. Wondering how soon the personality changes might be evident if side effects like this compulsion problem in the areas of risk taking, sex addiction etc might show up? Thank you

[EnglishCountryDancer]

You may well be interested in looking at the Forum that is part of Parkinson's U.K. On the thread that about this programme Vicki herself posts.She had an interview earlier in the week and she kept her cool wonderfully when the interviewer got really annoyingly smutty.Well that is what I would call it.

[lou_lou]

made in 2000 - still very important as it is the by patients speaking - and doctors speaking
- shauna the youngest one -passed away August 2007 - in memory of shauna louise...
i love her...always
http://www.youtube.com/watch?v=yidIwF5EghM

some more info relating to PD
http://www.meditouch.co.il/index.aspx?id=2479

[lindylanka]

Both Vicki's posts at PUK and some of the interviews she has done, and the film itself, are helping to open up some of these difficult areas of Parkinsons. The questions are left open, though there is no doubt that the medication, treatment, has caused these problems. A very courageous look at what some of us go through. Well worth the watch.

If you or someone you know is suffering from the adverse effects of PD meds, discuss it openly with your neuro, and if they are not well aware of these issues, point them in the direction of info that supports this. Parkinsons UK has an awareness campaign on compulsive and impulsive aspects of PD, as do many of the other orgs. See their site for more information. Vicki's film highlights the need for better medication and more understanding. Take courage from her openness, and get help with these problems. One of the clear messages that comes over from the film is that if you are aware that it is happening to you, and your family and friends understand how you are affected, there is a better chance of dealing with it.

This does not mean it will not be a painful or problematic experience, just that knowing about the potential for it is better than not knowing and waking up one day with your life in shreds, and not quite knowing how it happened.

Would also like to congratulate Vicki!

[lou_lou]

Originally Posted by lindylanka

Both Vicki's posts at PUK and some of the interviews she has done, and the film itself, are helping to open up some of these difficult areas of Parkinsons. The questions are left open, though there is no doubt that the medication, treatment, has caused these problems. A very courageous look at what some of us go through. Well worth the watch.

If you or someone you know is suffering from the adverse effects of PD meds, discuss it openly with your neuro, and if they are not well aware of these issues, point them in the direction of info that supports this. Parkinsons UK has an awareness campaign on compulsive and impulsive aspects of PD, as do many of the other orgs. See their site for more information. Vicki's film highlights the need for better medication and more understanding. Take courage from her openness, and get help with these problems. One of the clear messages that comes over from the film is that if you are aware that it is happening to you, and your family and friends understand how you are affected, there is a better chance of dealing with it.

This does not mean it will not be a painful or problematic experience, just that knowing about the potential for it is better than not knowing and waking up one day with your life in shreds, and not quite knowing how it happened.

Would also like to congratulate Vicki!

the neuro's i have had dont even know much about PD?
or the drugs...
ER doctors are usually not gifted with the PD knowledge either?

[Muireann]

http://www.channel4.com/programmes/s...parkinsons/4od This is the Channel 4 doc, available for another month.