Parkinson's Disease Tulip


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Old 09-22-2011, 10:00 PM #11
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It is in the shelter of others that people live.
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"Thanks for this!" says:
Conductor71 (09-23-2011)

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Old 09-22-2011, 10:08 PM #12
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Default Kindness and Compassion

Quote:
Originally Posted by ginnie View Post
I know about being an outcast too. So sorry you are having all that troulbe. I wonder at times where human compassion is.
Wow,

Such an outpouring of kindness from everyone here, and Madelyn, I was bowled over. I have to steal that for when my mother starts in on me for losing track of important papers...

Bob, I will take you up on writing that letter...look out! I am already planning a subtle but effective revenge

Ginnie, yep you nailed it. We may lack dopamine and some key neuronal synapses, but without compassion we are disconnected from life.

Moondaughter, you are right...this is not a bad outcome. We're now officially poor but time with my 2.5 year old son is priceless. I never felt at ease with that district anyway...now I know why: they do not want a dyskinetic teacher and I do not want a hypocritical employer. I am free from the helicopter moms and Stepford Wives!!!

Marcia...I made sweeping generalization. I think any serious illness leaves you vulnerable in workplace. I do feel we have more a stigma than others...
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Old 09-22-2011, 10:38 PM #13
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Default Laura 2.0

Just wanted to say thank you for support. That writing kicked off the party.

Had an interesting stress reaction this morning. Took nearly fours to walk normally. Realized that I had barely cried and this morning yelled a it over toy clutter. Decided I needed Rolfing ASAP. I am sure pent up emotions make things worse.

I am actually happy to be home. My neuro thinks I'll be able to substantially lower meds. I am also hoping to see some symptoms fade too.

Rick, I have already begun day dreaming about Laura 2.0. While as whacky as it sounds, if money were no object, I would buy a ranch out West to raise Alpacas. Since this is not likely to happen I'll have to settle for visiting the one at the petting farm. I am seeing this life alteration as a way to take control of my life again. Maybe PD will let me share the driver's seat for a change....

Health - insist on some tests. I am not denying Idiopathic PD, but nor am I ready to embrace without further testing. Since I took a fall on ice two years ago and cracked open my skull and no one ever took a brain scan I want to rule anything like a subdural hematoma. It was within a year after that fall my symptoms and diagnosis changed. Maybe something can be done if they find another underlying condition. I plan on getting into clinical trial for more aggressive treatments but want more go on then symptoms

First things first...get thee to the Y and get spinning. We have a very glitzy Y with childcare. Also has hefty annual fee..best part is they subsidize those in need, so in I go tomorrow with some writing by Jay Alberts and Nan Little tucked under my arm. I thought of buying one but with all my free time a class will help me start and keep to a daily schedule.

Possible Idea 1: Freelance Researcher - I really like this especially with your idea on the booklet. I also know how to construct indexes. The kind that require a brain to make connections.

Possible Medical Research Specialist- Freelance

Possible idea 2: return to school for PsyD and start interviewing you guys to publish research on psycho-social aspects of chronic incurable disease. On back burner for now- need to get adjusted to my new relatively stress free life.
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Old 09-22-2011, 11:28 PM #14
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Lightbulb

Laura, I'm so sorry about the terrible way you have been treated. I can only hope that your health will improve being away from that hostile work environment. And I think the idea of your being an independent researcher or medical researcher is brilliant!

Jean
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