Originally Posted by Sasha

Paula -
You are in my prayers and thoughts and anything else that may seem helpful in any respect. You have been through hell and I hope fervently the
trip is almost over.

Sasha

Originally Posted by paula_w

well i broke my leg playing pickle ball, tho the doctor suspects the fracture was already there. he went in and put pins and stuff to keep the hip from coming out of socket. then i descended into hell. i had an extremely severe reaction [possibly from Delaudid] and will tell this story later in more length.

relating to what you are posting about....i suspect there is just about anything in our drugs. I had to keep my leg stationary and seperate from the other thru the night. i don't have to tell anyone on this forum the challenge that presents if you are awake. thinking was that the delaudin and a ten lb wght attaching my foot to it should do it. result: one wave of restless leg syndrome after another; it was the worst night of my life, blew my mind and I am not back yet. but i knew it wasn't pain killer i needed - it was sinemet. this was an off behavior.

accompanying condition: psychosis; it's a very dark place ,not reality and no place to make decisions from. i'm in rehab and am hoping for survival. i wish i could say that with humour, but i''m feeling and seein all kinds of things regarding pd and changes from being given generics. right now pd just looks like one big long stroke.

pray for me please

Originally Posted by lindylanka

There is a proper recipe for 'liquid sinemet' that is used for people who have swallowing difficulties. It ensures that you get the correct amount and that the active ingrediant does not degrade. If anyone knows this, please post. I have forgotten where it comes from. It is for sipping.

I do agree with Peggy on this, we are taking way over the 'right' dose just so that some gets to our brain, and for each of us the absorbtion is is going to be different. This became very evident to me when my PD nurse added entacapone to my regime, having deduced I was way undermedicated. The difference was astonishing to me, and I had to rapidly work out how to get to the best dose for me. This is a process that I think ought to be at least discussed with patients, the three a day paradigm is a one size fits all model, even if the number of tablets is greater than that! So many different factors to work with.... and our brains are sensitive to this stuff. When I have problems I have learned to try a little less, rather than a little more, as my first choice. Right now it is working for me, and I prefer the very slightly undermedicated to being overmedicated and head-charged with a wayward body.