Parkinson's Disease Tulip


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Old 10-28-2011, 03:09 PM #21
bandido1 bandido1 is offline
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Join Date: Aug 2008
Location: Sherman TX
Posts: 204
15 yr Member
bandido1 bandido1 is offline
Member
 
Join Date: Aug 2008
Location: Sherman TX
Posts: 204
15 yr Member
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[QUOTE=indigogo;814956]On November 10 and 11, I will be attending the MJFF Patient Council Meeting.

What questions or ideas of yours can I bring with me? Just by posting them here in this thread you can be sure they will be seen by Debi Brooks and other MJFF staff. Or you can PM suggestions to me, and I will be sure to forward them.

To give you some context, here are the general topics (draft) I have received for the meeting:

Status of PD science and MJFF's role
MJFF research vision and how to communicate that vision
How to engage patients in a digital world
Clinical trial services including PPMI, Fox Trial Finder, and recruitment strategies
Brainstorming for the future


Excellent thread!
let's keep it up--- better yet let's make it permanent.

I was beginning to think that because the forum posts were beginning to show less and less activism among our members, we are becoming old fossils. Actually, I am an old fossil ready to celebrate my 80th.

Thanks to Dragon I'm actually able to stammer through this post. I'm going to leave it to my friends and colleagues to continue my activist role as I move to the other side. CARRY ON CAREY!!
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"Thanks for this!" says:
paula_w (10-28-2011)

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