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10-28-2011, 03:09 PM | #21 | ||
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[QUOTE=indigogo;814956]On November 10 and 11, I will be attending the MJFF Patient Council Meeting.
What questions or ideas of yours can I bring with me? Just by posting them here in this thread you can be sure they will be seen by Debi Brooks and other MJFF staff. Or you can PM suggestions to me, and I will be sure to forward them. To give you some context, here are the general topics (draft) I have received for the meeting: Status of PD science and MJFF's role MJFF research vision and how to communicate that vision How to engage patients in a digital world Clinical trial services including PPMI, Fox Trial Finder, and recruitment strategies Brainstorming for the future Excellent thread! let's keep it up--- better yet let's make it permanent. I was beginning to think that because the forum posts were beginning to show less and less activism among our members, we are becoming old fossils. Actually, I am an old fossil ready to celebrate my 80th. Thanks to Dragon I'm actually able to stammer through this post. I'm going to leave it to my friends and colleagues to continue my activist role as I move to the other side. CARRY ON CAREY!!
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Be not by whom the first is tried nor the last to lay the old aside. . |
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"Thanks for this!" says: | paula_w (10-28-2011) |
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