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02-21-2012, 10:16 AM | #1 | ||
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Hi all,
I hope you'll consider helping us spread word about the importance of clinical trial participation by becoming a Fox Trial Finder ambassador. As you know, clinical trials and studies are a critical piece of the process to identifying new and better treatments for PD and eventually a cure. Yet, difficulties recruiting participants into research not only increases costs but delay these therapies in reaching pharmacy shelves. We know first-hand that the PD community is eager to get involved in research but find it challenging to find the right opportunities. Fox Trial Finder hopes to change that. Fox Trial Finder is an online tool to help you find opportunities to get involved in and then connect with trial teams to learn more. If you've registered on Fox Trial Finder, and want to do more to help spread the word, become a Fox Trial Finder ambassador. Please join us for the first Quarterly Fox Trial Finder Ambassador Call on March 20, 2012 at 12 p.m. US ET to learn more about the ambassador program and how to get started. Prior to the call, we will mail you a Fox Trial Finder Ambassador “Tool Kit,” which will equip you with all the materials and talking points you need to help educate others in your community about the importance of clinical trial participation and Fox Trial Finder. Click here to RSVP. Call details will be provided upon RSVP. Best, Debi |
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02-23-2012, 10:48 AM | #2 | |||
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Senior Member
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I hope anyone who can will take advantage of this opportunity to get involved in spreading the word about clinical trials - and in doing so, spreading awareness about PD in general.
I am speaking to a local support group about FTF on Saturday, supplied with materials happily sent to me by MJFF. This is not easy for me to do; I'd rather stay on my sofa, keeping up with "Downton Abbey" and re-watching old "Glee" episodes on my laptop, my main activity for the last couple of months as I have struggled with major depression. So I am using the occasion of the support group meeting to try to break free of the gloom, and am saying it publicly here so that I give myself more pressure to not back down and cancel due to "car trouble" or some other invented excuse. I call it "advocacy as therapy" and I hope it works. And I also hope others of you join me on the FTF Ambassadors call on March 20, even if just to feel part of a community of people who care about Parkinson's. It's not often we're given the opportunity to take part. p.s. "Puck" on "Glee" would call them "Am-bad-assadors." I like that!
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Carey “Cautious, careful people, always casting about to preserve their reputation and social standing, never can bring about a reform. Those who are really in earnest must be willing to be anything or nothing in the world’s estimation, and publicly and privately, in season and out, avow their sympathy with despised and persecuted ideas and their advocates, and bear the consequences.” — Susan B. Anthony |
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"Thanks for this!" says: | RLSmi (02-23-2012) |
02-23-2012, 03:33 PM | #3 | |||
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Quote:
I would be willing to participate in non-invasive treatments from the integrative/complimentary/functional medical fields and I would hazard a guess you would have waiting lists full of volunteers for such. Start a trial for EDTA chelation, transcranial electrical stimulation,aryuvedic treatment, trauma release therapies, homeopathic treatment etc. etc. and you can count me in.
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Smooth seas do not make skillful sailors.... Nature loves courage. “The day science begins to study non-physical phenomena, it will make more progress in one decade than in all the previous centuries of its existence.” ~ Nikola Tesla |
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