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11-05-2011, 09:21 PM | #1 | ||
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I've made several posts about how I think we could leverage the benefit of our anecdotal experiences by quantifying and aggregating our results.
What might we find if we systematically studied all those things - be it music, exercise, aloe vera, etc.- that people post on? What might we find if, once we have the data, we set our computers data mining? Why us? We live Parkinson's 24/7. We ask the questions. We generate the data. We have the skills to analyse the data. We have an interest in getting answers quickly. Back in July I posted a survey on handedness. It did not get off the ground. Since then, I've simplified the survey and written a web page that makes it far quicker to enter the data. You can now complete the survey in less than 1 minute. The data you provide is anonymous. It is open to the public. To take part, go to: http://www.parkinsonsmeasurement.web...ess/survey.htm To see the raw data go to: http://www.parkinsonsmeasurement.web...ss/results.xml If this takes off, I'll present the results in a user friendly way. But, in the meantime, if you right click on the raw data you can export it to Excel. The main motivation for this particular study is to get the process started. But, if enough people take part, we will see if there is a relationship between the side of dominance and Parkinson's and, by comparing our results with those already published, get some indication of how representative we are as a group. I'll be grateful for comments. I'll be even more grateful for people to take the survey and for people to post analyses of the data. John
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Born 1955. Diagnosed PD 2005. Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg |
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"Thanks for this!" says: | imark3000 (11-25-2011) |
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