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01-22-2012, 06:57 AM | #1 | ||
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Lets hope this gets national/international media coverage:
http://www.medpagetoday.com/Neurolog...sDisease/30487 |
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01-22-2012, 10:16 AM | #2 | ||
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It says barely one-third of people with Parkinson's survive 6 years. So two out of three die within 6 years. But it also said half were over 80 years old... but were they 80 when they were diagnosed, and therefore died on average by age 86? Or were they 80 when they died?
Gloomy statistics that I have never seen before. Bring some placebos real quick; reality is not my favorite destination. but 2 out 3 three die in six years? Really? |
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01-22-2012, 11:05 AM | #3 | ||
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01-22-2012, 11:35 AM | #4 | ||
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And the age of the patients in this study... mostly over 80 years old.. does that mean 80 at the time of diagnosis? Compared to what? Does the average male reach the age of 80? Or 86? |
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01-22-2012, 11:45 AM | #5 | ||
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I hope you realised that I wasn't saying your posting was depressing, but rather referring to the article in question. I think it's very irresponsible to publish "statistics" like that - as you rightly say, is it really a genuine cross-section with PWP, or a selected group. It certainly does none of us any good to read stuff like this, and frankly it goes against anything I've read or learnt from communications with quite a few PWP. Try not to let it get you down. All good wishes, |
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01-22-2012, 11:46 AM | #6 | ||
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Senior Member
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Still anecdotal:
In one test they put me in the category of Caucasian male, 60 plus, the drugs being taken, etc., and the statistics showed that, over the years, my cohort had the worst mortality.... we slowly gained access to the statistics... the key was my cohort was 60 years old and plus. Plus what? Plus 10 years, plus 30 years.... My cohort included people who were 80, 90, 100 years old. And you know what happened to them? They died. And every time somebody took a notion to die, what with being 85 and all, it wrecked the averages for me and the 60 year olds. |
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"Thanks for this!" says: | budgies (01-22-2012) |
01-22-2012, 11:57 AM | #7 | ||
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Senior Member
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And then there was a columnist in a newspaper some years ago who went through all of the fund-raising publicity of non-profit organisations... the Heart Foundation said that 50% of people die of heart disease; Cancer Society said 30% die of cancer, and on down the list.... diabetes, Parkinson's, car accidents, falls, lung disease... and he added them up and it turns out that 150% of the people died...
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01-22-2012, 12:28 PM | #8 | ||
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If you go down to the bottom of the web page this article is on, http://www.medpagetoday.com/Neurolog...sDisease/30487 there's a comment by a doctor that questions the biases in this study, similar to the questions Bob and Budgies have asked, about this being a representative sample either. We need to collect and maintain better data about PWP to be able to answer questions like this. There's currrently a bill sitting in Congress that would set up a national database : National Neurological Disease Data Collection – H.R. 2595/S.425. See the PAN website for more information on the bill and what we can all do about it. http://www.parkinsonsaction.org/fede...al-pd-database linda ( 16 years since dx) |
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01-22-2012, 12:43 PM | #9 | ||
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01-22-2012, 01:09 PM | #10 | |||
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In Remembrance
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This is a case of dumping the junk drawer on the table and calling the pile a lawn mower! We all at least suspect that there is more than one disorder at work. I wouldn't balk at half a dozen, The fellow who gets a tremor at the age of 30 and the guy who notices one at 75 have different diseases.
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__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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"Thanks for this!" says: | anon72219 (01-23-2012), violet green (01-24-2012) |
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