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01-22-2012, 08:32 AM | #1 | ||
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Time after time I find a reference to a scientific paper which I'd like to follow up, only to find that access to it is blocked by a pay wall.
Is there a legal way around this? Do the Parkinson's organizations have group subscriptions? Has anyone from the forum contacted the journals to get free access for PwP? (If not, I'll be happy to approach some UK journals.) It is especially troubling when the research has been funded by public money. It reduces our ability to understand our own condition and decreases the effectiveness of our own research. John
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Born 1955. Diagnosed PD 2005. Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg |
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01-22-2012, 09:46 AM | #2 | |||
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In Remembrance
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This has kept me PO'd for years. If you factor in tax payer support such as building the darned university and the road that leads to it, every study has been subsidized. But some sort of cozy relationship exists that results in about three big companies holding the copyrights and charging dearly for them. And there is a constant pressure to tighten up the paywalls too. -rick
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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"Thanks for this!" says: | Conductor71 (01-23-2012), johnt (01-22-2012) |
01-22-2012, 02:03 PM | #3 | |||
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Co-Administrator
Community Support Team
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A member posted this site years ago, but I don't know if it has the kinds of info you are looking for.
http://www.doaj.org/doaj?func=home&uiLanguage=en
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"Thanks for this!" says: | johnt (01-22-2012) |
01-22-2012, 06:04 PM | #4 | |||
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Senior Member
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Girija suggested writing to the author listed as contact person and request a copy
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In the last analysis, we see only what we are ready to see, what we have been taught to see. We eliminate and ignore everything that is not a part of our prejudices. ~ Jean-Martin Charcot The future is already here — it's just not very evenly distributed. William Gibson |
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"Thanks for this!" says: | Conductor71 (01-23-2012), johnt (01-22-2012) |
01-22-2012, 06:20 PM | #5 | ||
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In Remembrance
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we have 3 college librarians who have access to much. I also suggest that you join the pipeliner email list. there's no onligation and we have many complete artiicles in our yahoo database.
email linda herman and she can set you up or peg willocks or carolyn stephenson. paula
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paula "Time is not neutral for those who have pd or for those who will get it." |
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"Thanks for this!" says: | johnt (01-22-2012) |
01-23-2012, 07:39 PM | #6 | |||
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Senior Member
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I have found that if you bypass those publishing "services" that want you to pay $30 an article, but instead go right to the journal's web page often they provide free access to archived volumes. If you see some thing that you absolutely must read there is a new rental service called DeepDyve. You may rent for up to seven days, I believe. It has annoyed me too on being shut out but realize it is the last thing doctors want (or lawyers)...in taking a more active role we undermine their authority. Laura |
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"Thanks for this!" says: | johnt (01-23-2012) |
01-23-2012, 09:51 PM | #7 | ||
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Member
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So there are more articles becoming available now, but the problem is that the authors have 12 months from publication date to submit . the most recent, cutting edge articles probably aren’t going to be available. It’s a start though. Maybe we should lobby the NIH to do away with the 12 month delay? I think though this was included to placate the journal publishers, who don’t like giving anything away for free – so it would be an uphill battle. Researchers might also be encouraged to publish their studies with one of the open access publishers, like Public Library of Science or BioMed Central ? If you need an article that’s not available through these resources, in the U.S. at least, you can often go to your public library and request it through Inter-library loan. Most libraries provide this service for free. The articles are often sent electronically and usually are received quickly. Libraries in the UK and other countries are likely to have a similar type of service . Linda (who used to be a librarian ) |
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