[Muireann]

here is a link to a website to a woman who recovered from PD. Her neurologist has verified her as now symptom free. She was diagnosed by the usual means and treated with l-dopa. She is now meds free.

http://www.biancamolle.com/

[soccertese]

buyer beware. i spent thousands on uneffective "treatments", some endorsed by ph.d's and MD's. i was told, just try a little longer as i wrote out the checks.


her Fees:
phone consultations are $60.00/hour or $30.00 per 1/2 hour
coaching packages:
1 month/$500.00
2 months/900.00
3 months/$1300.00

[GregD]

I will make a deal with you. Come and be examined by a doctor of my choosing to determine that you do in fact have PD. Then, go ahead and start this "treatment". When you are healed and it is verified by the same doctor of my choosing, then I will try it. In the meantime, I hope you do not go broke and can still pay for you health insurance.

[Muireann]

GregD,

I posted the link to Bianca's website for people who are interested in taking a very pro-active and participatory role in their own healing, one which doesn't involve putting harmful drugs into their body. People need to be informed of their options in the widest way possible. This is a PD forum, though one could be forgiven sometimes for thinking it is a PD Drug Forum.

I have been reading and posting on Neurotalk and its predecessor, Braintalk, since my dx of Parkinsons by an internationally renowned movement disorder specialist, dx by clinical signs and two DatScans three years apart, which read positive for PD. I also sought second and third opinions, which sadly verified the diagnosis.

I have been through sheer hell with conventional PD treatments [MAOBs, anti-depressants, tranquilizers, sleeping pills, the dopamine agonist Mirapexin and finally l-dopa]. I finally got off all of those drugs and have now been drug free since September 2009. It is still an uphill battle for me but i have a quality of life that I never had on meds. I work very hard with a regime of diet, amino acid therapy, exercise and have benefited enormously from massage therapy, Tai Chi, and Qigong.

I am not a paying customer of Bianca's. I first heard of her when a PWP on Neurotalk wrote to me and told me about Bianca's recovery. I then contacted Bianca for information on her methods and found her very helpful. No money has exchanged hands. But there are now many people who require her services so it is becoming a full-time occupation for her. I spoke to her on Skype and had the opportunity to see with my own eyes that she is in excellent health - totally animated, beautiful fluid movement, excellent strong voice. There is no PD there now. We spoke of what it was like when she had PD and she can speak of the experience in the manner of someone who has first hand knowledge of the scourge that is this disease. There is absolutely no doubt in my mind that she had PD and has recovered completely. What works for one person may not work for another. But certainly PWPs, especially the newly diagnosed, need to know of her case.

Buyer beware, yes, but that also applies to conventional methods of treatment. Where i live, all PD meds are provided free of charge to PWPS and yet i still prefer to seek other forms of treatment, so futile were the attempts of the medical profession to deal with my suffering. I am currently in one-to-one Qigong training in Ireland which costs me a small amount of money out of my own pocket and it is worth every penny.

[indigogo]

Qigong is pretty mainstream now; can often be found in classes along with tai chi and yoga. It probably would be a healthful thing to do - but a cure? Not so much.

[lindylanka]

Studied and practiced Tai Chi and Chi Kung for many years, loved it. For some of the time I was doing 3 classes a week plus my own practice. It did not prevent PD symptoms developing.

Probably the first thing to go was balance, then flexibility. I was very much involved in living a holistic lifestyle, which included western herbalism, Tibetan medicine, and acupuncture, reflexology and massage and organic home grown food. My acupuncturist was unable to effect a lasting difference, and my experience is that Tai Chi itself suddenly started to feel flat - I could no longer tap into the energy and flow of it. I recently met someone who had a similar experience.

I still use Tai Chi and Chi Kung techniques in daily life, but subtly, they are now there to protect me from getting worse, and from damaging myself from the lack of balance. Despite being generally a lot less co-ordinated and quite clumsy now, if I do the form it is as fluid and graceful as ever, but the moves are limited because my body is limited, and my balance to very poor. The breathing exercises I incorporate into daily living, but practicing them in the formal way is not helpful to me.

Maybe there is something to it for those who are able to practice for many hours, for me it hasn't worked out that way. Nevertheless I believe it why my progression has been slow, and why I am coping with PD. For me it is no cure, but I would still say if it is something you can get into it has some great advantages, Tai Chi was is meant for over 50's - Chi kung for any age, both are great for developing a better awareness of how to move well, and breathe properly, both useful for PwP.

[made it up]

Originally Posted by Muireann

GregD,

I posted the link to Bianca's website for people who are interested in taking a very pro-active and participatory role in their own healing, one which doesn't involve putting harmful drugs into their body. People need to be informed of their options in the widest way possible. This is a PD forum, though one could be forgiven sometimes for thinking it is a PD Drug Forum.

I have been reading and posting on Neurotalk and its predecessor, Braintalk, since my dx of Parkinsons by an internationally renowned movement disorder specialist, dx by clinical signs and two DatScans three years apart, which read positive for PD. I also sought second and third opinions, which sadly verified the diagnosis.

I have been through sheer hell with conventional PD treatments [MAOBs, anti-depressants, tranquilizers, sleeping pills, the dopamine agonist Mirapexin and finally l-dopa]. I finally got off all of those drugs and have now been drug free since September 2009. It is still an uphill battle for me but i have a quality of life that I never had on meds. I work very hard with a regime of diet, amino acid therapy, exercise and have benefited enormously from massage therapy, Tai Chi, and Qigong.

I am not a paying customer of Bianca's. I first heard of her when a PWP on Neurotalk wrote to me and told me about Bianca's recovery. I then contacted Bianca for information on her methods and found her very helpful. No money has exchanged hands. But there are now many people who require her services so it is becoming a full-time occupation for her. I spoke to her on Skype and had the opportunity to see with my own eyes that she is in excellent health - totally animated, beautiful fluid movement, excellent strong voice. There is no PD there now. We spoke of what it was like when she had PD and she can speak of the experience in the manner of someone who has first hand knowledge of the scourge that is this disease. There is absolutely no doubt in my mind that she had PD and has recovered completely. What works for one person may not work for another. But certainly PWPs, especially the newly diagnosed, need to know of her case.

Buyer beware, yes, but that also applies to conventional methods of treatment. Where i live, all PD meds are provided free of charge to PWPS and yet i still prefer to seek other forms of treatment, so futile were the attempts of the medical profession to deal with my suffering. I am currently in one-to-one Qigong training in Ireland which costs me a small amount of money out of my own pocket and it is worth every penny.

Muireann,
Did you not find any relief at all from the levodopa you took?
I don't count the other anti parkinson drugs, granted they can sometimes mess with your mind and bring little relief from tremor, rigidity, bradykinesia etc.
But plain old Sinemet or levodopa in another brand I would've thought would help you feel less symptomatic.

[soccertese]

you saw her after the "cure". did you see her before the "cure"? can you prove she isn't taking meds?

charging for the consultations is listed on her website yet she isn't charging you, why? are you a salesperson?

i tried dopavite too, nada.

[johnt]

soccertese,

IMO Muireann was right to post the link, and you were right to make your first post pointing out the costs. Muireann then gave a detailed reply. I can understand your scepticism, but in my opinion in your second post you did not need to write: "are you a salesperson?"

Let's keep it friendly.

Who knows for sure if they have "real" PD?
Who knows if there's one and only type of PD?
Who knows how fast their version of PD will progress?

One size fits all PwP? No.

What matters is that someone who was thought of as a PwP no longer is.

John

[soccertese]

john, i'll express my opinions when i think posters are posting opinion as fact or pseudo-science as science. it's an anonymous message board , you don't even know if i have pd.

when there's potentially money involved, i question anyone's integrity and motives, especially when they post here absolutes such as "cure" and damaging drugs rather than stating they were opinion. i would never be so presumptious to make such statements.

pd'ers have wasted their life savngs on stem cell treatments, devices, programs, etc, so i'd rather error on the side of skepticism. if i'm right, maybe i've saved some gullible desperate person some money. if this really is a reasonable and long lasting benefit, do you seriously think anything i post here is going to stop it from being adopted?

i can point to many instances here where posters have an agenda, one being selling a product.'