Parkinson's Disease Tulip


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Old 02-01-2012, 05:38 AM #1
ray4daisy ray4daisy is offline
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Join Date: Feb 2012
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10 yr Member
ray4daisy ray4daisy is offline
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Join Date: Feb 2012
Posts: 2
10 yr Member
Unhappy PLEASE READ!Misdiagnosis of Parkinsons for 15 years! Any information would help!

Help. I'm looking for any info or input or anything. My mother was diagnosed with Parkinson's disease 15 years ago and now just recently they have said she does not have Parkinson's but mental disorders and her inability to move is in her head.She went to a doctor 15 years ago because of cramping she had in her hand after tests was diagnosed with Parkinson's.She was a completely normal 43 year old working women, sweet, funny, everyone loved her and never had any prior mental problems.But then about 5 years ago she started to change,mentaly and physically. She up and left my dad and started her weekly, soon to be almost daily calls to 911. She went from being "normal" to someone who does nothing but scream curse ,curse god,and cry and ask to die almost non-stop(its been awful for my children to be around) and does not move at all now but expects everyone to CONSTANTLY move her around. Before she stopped moving she became a clepto stealing anything from me or anyone from credit cards,christmas money,(3 christmas's in a row) to old dishes or just about anything useful or not. I have lost many precous things and useful things to her. She disrespects everyone in many ways.Our entire family has disowned her and she has lost all friends but one, who now is about to be done with her because like everyone else now beleives its all in her head. I have stopped talking to her for different reasons many times but have always let her back in because she had no place to go. With the doctors at the hospitals and family telling me it was in her head I refused to beleive them until now. I could not understand how someone could go to the bathroom on themselves ,not walk or move and scream in pain all the time was just imagining it with no real physical problems. But this last christmas after being up for three days waiting on her, carrying her,(pregnant but she didnt seem to care) moving this arm rolling her over, spending an hour to get her to the bathroom (and she would have to go every two hours) she proved to me what everyone had been saying. She went from not moving the entire three days at my house, to physically holding me down by my hair (because i left her alone for ten minutes to attend to my son) to all of a sudden not being able to move again when the cops arrived. She woke up my entire building at 3 in the morning christmas eve screaming for help and throwing furniture. I am now facing an eviction because of her dissruptions. Too make a LONG ROUGH story short, she has become completely mentaly unstable and does not move almost at all. She has noone. But when she does move she moves perfectly finebut that is very rare.She just came out of a nuerological center where they evaluated her and said she has mental disorders but no physical disorders. After 15 years of being treated for Parkinsons she was told she does not have it. Now my main question and concern is the meds. Her doctor said because she has been on levadopa for so long she may not ever come off it. But my problem is wouldnt the meds be the cause of her problems!? I have done plenty of research and know too much dopamine can cause schizophrenia. If she never had a lack of dopamine and was on the highest dosages she would be getting too much causing schizophrenia!? Right? But noone is saying this.I am wondering if its true that she might have to stay on levadopa? Do you think she could ever be normal again? I have been begging her to sign a paper so I could talk to her primary care doctor myself but she just wont do it. I am allowed to talk to her neurologist and have a few times over the past couple years but he either didnt awnser my questions or would cancel our appointments. I now beleive this is somthing he might have known for a while but didnt tell us.He has defintely acted weird last couple years. Im sorry this is so long,trust me it could be much longer, but i needed to get the basic facts out. I am here looking for anything. Information, opionons ,questions or just someone to talk too. I beleive this is from the medication.What do you think? Can she get off it? Will she be ok ? Maybe u think she still does have parkinsons. Any similar stories anywhere? What do I do? I cant have her around for many reasons right now,Im in jeopardy of loosing my home because of her and two of my children have started to mimick some of her traits.The nearby mental ward kicked her out and wont even take her because she is so mean and out of control. HELP!!
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iatrogenic disease, levadopa, misdiagnosed, parkinson's disease, parkinsonism, schizophrenia


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