Parkinson's Disease Tulip


advertisement
Reply
 
Thread Tools Display Modes
Old 02-04-2012, 07:09 PM #1
Jim091866 Jim091866 is offline
Member
 
Join Date: Oct 2006
Location: Central Florida
Posts: 520
15 yr Member
Jim091866 Jim091866 is offline
Member
 
Join Date: Oct 2006
Location: Central Florida
Posts: 520
15 yr Member
Default HELP, need some input, Do I repeat DBS or wait on "the pump"

This thread kind of goes with the would you repeat DBS but I didnt want the content to be missed. I have "marginal" leads, they have helped but I still take the same amount of meds as before the surgery. The dyskinesia is better and I don't have a tremor which is mostly used to target the leads during surgery, hence the less than optimal placement from what I have been told. My question and I know this is a personal decision. Do I repeat the DBS hoping for a better target placement or do I wait til the Duodopa pump hopefully comes out in about a year? I am supposed to go up to Gainesville to be evaluated for repeat DBS. My biggest worry is coming out of surgery worse than I went in-incontinence, speech, etc. Duodopa has been on the FDA fast track since about 2002! It is supposed to be out of phase 3 clinical trials sometime later this year. It would be less invasive, and basically a sure shot at avoiding meds. I don't know honestly what are the negative side of the pump to compare the two. I am basically tired of the daily struggle of the ups and downs with the meds. I don't know when or if the pump will come out. There does not seem to be much chatter about it and you would think that there would be<????? Not to mention if you have a DBS will you be able to get the pump too? HELP, need some input.
Jim091866 is offline   Reply With QuoteReply With Quote

advertisement
Old 02-04-2012, 11:47 PM #2
pegleg's Avatar
pegleg pegleg is offline
Senior Member
 
Join Date: Sep 2006
Location: Tennessee
Posts: 1,213
15 yr Member
pegleg pegleg is offline
Senior Member
pegleg's Avatar
 
Join Date: Sep 2006
Location: Tennessee
Posts: 1,213
15 yr Member
Default Read this

Jim

see the last 2-3 posts in my thread my post dated 2-4-2012

http://neurotalk.psychcentral.com/thread164119.html

Peggy
pegleg is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
To pump or not to pump - that's the question? bobinjeffmo SCS & Pain Pumps 11 08-08-2012 01:35 AM
Duodopa pump: anyone know anyone who has gotten pump? leonore Parkinson's Disease Clinical Trials 21 04-26-2012 09:43 PM
if this is a repeat sorry weegot5kiz Pets & Wildlife 4 09-22-2008 01:45 PM
To Wait or Not to Wait: Overseas’ Stem Cell Treatments BobbyB ALS News & Research 0 09-24-2007 10:07 AM


All times are GMT -5. The time now is 05:22 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.