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02-13-2012, 11:31 AM | #1 | |||
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Started with action, postural, and now resting. Prior to PD diagnosis, I responded to a beta-blocker. Now l-dopa helps me so much that tremor rarely emerges anymore. I also still respond to a beta-blocker. From what I have heard, tremor is not always responsive to ldopa. I have heard it can be hard to treat, so I feel fortunate. Laura |
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02-13-2012, 11:40 AM | #2 | ||
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Perhaps he ought to talk to the neurologist about beta-blockers when we next go? Last October I bought an exercise bike, but since using it for ten minutes daily, his arm tremors are considerablly worse, and I'm wondering if the cycling could have caused this. Any advice would be gratefully received. |
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02-13-2012, 05:51 PM | #3 | ||
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his tremors could be worse simply due to physical exertion tiring the muscles and leaving him out of breath. It is tough to know as we don't know his age or state of health or general fitness level.
I do know that exercise is claimed to be only good for Parkinson's and I feel my exercise program has helped. I would stick at the cycling and as he gets fitter the tremors may become less, (assuming he was relatively unfit, which may be a wrong assumption). Trixiedee, as for the original query, I remember a thread about a year ago which defined a number of Parky profiles and there response characteristics. See the link below, it may be of some help. http://neurotalk.psychcentral.com/thread101685.html Neil. |
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"Thanks for this!" says: | trixiedee (02-14-2012) |
02-13-2012, 06:37 PM | #4 | |||
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I am tremor dominant; l-dopa is effective - but Amantadine helps.
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Carey “Cautious, careful people, always casting about to preserve their reputation and social standing, never can bring about a reform. Those who are really in earnest must be willing to be anything or nothing in the world’s estimation, and publicly and privately, in season and out, avow their sympathy with despised and persecuted ideas and their advocates, and bear the consequences.” — Susan B. Anthony |
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02-14-2012, 10:37 AM | #5 | ||
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At the moment he is "resting" from the exercise bike to see if his tremors lessen. It's only been three days since he last used it, and so far the tremors haven't subsided at all. I just hate the thought that the tremors are getting progressively worse. We walk at least 2 miles daily, and for 68 he is pretty fit, so I'm keen for him to keep up the cycling. As you rightly say, I have only read good can come from exercise. |
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02-14-2012, 01:04 PM | #6 | ||
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Unfortunately, for the cycling to work, the patient needs to go for at least 40 minutes at 60-80 rpm three times per week. Add 10 min of warmup and cooldown. Keep the heart rate at 60-80 of maximum heart rate (220-age). Most people have to build up to that, but it is possible. In addition to cycling and meds (6mg ReQuip XL/day) another PD patient taught me to use a form of self-hypnosis to control the tremor. I was dubious, but found that by being still and saying "Quiet hand" on breathing in and "Peace" on breathing out my tremor usually stops, especially when I'm trying to go to sleep and I keep patting myself!
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02-15-2012, 05:43 AM | #7 | ||
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I don't know if we're imagining it, but since giving up the bike four days ago, his arm tremors seem to have improved slightly. Having said that, from all that I've read, I do think it's important that he goes back to the cycling and tries to reach the goal you've described, albeit possibly in the distant future. |
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02-15-2012, 08:03 AM | #8 | ||
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As far as I understand it, the Alberts's approach to forced exercise depends on the cadence (rpm) more than the effort. So, you could pedal slowly in a high gear, or pedal quickly in a low gear with both methods requiring the same amount of work and both getting to the same speed. But, as far as PD is concerned there is some evidence that the high cadence approach is better.
I have no experience of forced exercise cycling, but last year I built a machine to give me forced exercise of the arms. My stiffness reduced. But, interestingly, like Mr Budgies my tremor worsened. I don't know whether there was a causal relationship. Has Mr Budgies tried the simple tremor reduction technique described in a recent thread? It helps me slightly. John
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Born 1955. Diagnosed PD 2005. Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg |
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02-15-2012, 12:57 PM | #9 | ||
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Distant future is fine. Where ever you are is a good place to start. If he can keep adding a few seconds or minutes each day or week, he'll get there, even it takes a long time. Worst case scenario is he gets more fit. I have no idea if his worsening tremors could be related to cycling/not cycling.
When I cycle inside, I both watch TV and listen to music so there is always a beat. Oddly enough (for a 66 year old woman) I can pedal most rapidly when I'm watching sports. Go figure. Inspiring story: I met a guy last year who could barely walk. At age 81, he was over the limit for PFP but he begged to get in the program and his doctor finally said okay. I saw him again last week and he walked over to me, albeit slowly, and announced with a big grin that he had gone skiing the week before. Not far, no moguls, but he had gone skiing! |
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11-21-2012, 01:21 PM | #10 | ||
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