Parkinson's Disease Tulip


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Old 03-01-2012, 07:49 AM #1
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Default Bid to block access to Medline database

Does anyone have a link to a story yesterday regarding a bill introduced by a congress critter from Manhattan that would close the door on open access to tax dollar funded papers? I skimmed it but when I came back to read it it was not there nor does Google turn it up.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 03-01-2012, 07:56 AM #2
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Wink

Maybe this?

http://boingboing.net/2012/01/06/con...it-open-a.html
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Old 03-01-2012, 01:54 PM #3
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Originally Posted by mrsD View Post
Typical of Issa. He's been paid off well by the AAP.

But have no fear. The bill will be defeated before it gets anywhere. It's lame and most people know it already. We can always start a petition through Care2 or even CREDO if we have to, to fight this issue.

John
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Old 03-01-2012, 07:02 PM #4
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Default Could he be more obvious?

It has already been offed. From The Congressional Record Feb 27, 2012:

As the costs of publishing continue to be driven down by new technology, we will continue to see a growth in open access publishers. This new and innovative model appears to be the wave of the future. The transition must be collaborative, and must respect copyright law and the principles of open access. The American people deserve to have access to research for which they have paid. This conversation needs to continue and we have come to the conclusion that the Research Works Act has exhausted the useful role it can play in the debate. As such, we want Americans concerned about access to research and other participants in this debate to know we will not be taking legislative action on H.R. 3699 , the Research Works Act. We do intend to remain involved in efforts to examine and study the protection of intellectual property rights and open access to publicly funded research.
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Old 03-03-2012, 10:56 AM #5
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Originally Posted by Conductor71 View Post
It has already been offed. From The Congressional Record Feb 27, 2012:

As the costs of publishing continue to be driven down by new technology, we will continue to see a growth in open access publishers. This new and innovative model appears to be the wave of the future. The transition must be collaborative, and must respect copyright law and the principles of open access. The American people deserve to have access to research for which they have paid. This conversation needs to continue and we have come to the conclusion that the Research Works Act has exhausted the useful role it can play in the debate. As such, we want Americans concerned about access to research and other participants in this debate to know we will not be taking legislative action on H.R. 3699 , the Research Works Act. We do intend to remain involved in efforts to examine and study the protection of intellectual property rights and open access to publicly funded research.
There's more info on the Research Works Act in The Scientist, 2/28/12

"Elsevier Abandons Anti-Open Access Bill
The publishing giant withdraws its support of the Research Works Act, which would eliminate open-access requirements on federally funded work."
full text at:
http://the-scientist.com/2012/02/28/...n-access-bill/

It appears to have bbeen dropped by the publisher because " in January, renowned Cambridge University mathematician Timothy Gowers sparked a boycott of the publisher based on criticism involving the company’s business practices and its support of the RWA. By early February, some 5,000 academics had signed on to the boycott, and as of this writing, more than 2,500 additional researchers have added their names to that list." The power of advocacy!

It was surprising to read that Rep. Carolyn Maloney was an original sponsor of the RWA. Rep. has always been a supporter of PD issues and is a co-chair of the Parkinson's Caucus in the House. Perhaps she doesn't realize the significance of open acces to medical journals for PWP and advocates?
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