Parkinson's Disease Tulip


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Old 03-17-2012, 09:58 AM #1
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jeanb jeanb is offline
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Join Date: Aug 2006
Location: sonoran desert
Posts: 1,352
15 yr Member
Angry Informing the participants at trial halt

I'd like to hear fro m the Neurologix trial participants about this.

As for me, it happened to me again ... I signed up for PostCEPT (the follow on to Precept) and PostCEPT was cancelled and they never informed the participants. I happened to read an online newsletter that the PSG sends out that there was trouble getting funding for PostCEPT, and it might not continue. Since I never got a phone call from my study center to come for my yearly visit -- nor did the Parkinsons Study Group send me a letter or notification of any kind (nor did I receive their newsletter) -- i have concluded the study was cancelled due to lack of funding.

DID THEY INFORM THE TRIAL PARTICIPANTS IN ANY WAY? NO

Another outrage.

jean

Last edited by jeanb; 03-17-2012 at 10:56 AM. Reason: spelling error - POSTCEPT needed ending T
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