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01-24-2015, 03:17 PM | #1 | |||
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Senior Member
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I was wondering if you could update us on how the amino acid therapy fared for you? I recently talked with a person who has PD for 17 years and is doing remarkably well on the therapy. However, I have some doubts about it working for everyone, and I still suspect that over time a person would still develop ons/offs and dyskinesia if they were on any conventional drugs prior to starting this more natural approach. If you could share your experience with us, that would be great! Thanks, Laura |
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01-25-2015, 10:01 AM | #2 | |||
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I continue to do well on it. I used to have tremors, dystonias and fasciculations but now I don't. On the other hand, walking is a little worse, I think. Some things come and go like orthostatic hypotension. I don't have off times or dyskinesias or other side effects. It's only been four years since diagnosis, though. Eating definitely hinders the effect, however, which is not supposed to happen. I am consulting about that. Dr. HInz has put all his PD patients on 300 mg per day of vitamin B6. That makes me a bit concerned. We'll see how it goes. http://new.neurosciencemyths.com/?page_id=1208 Also on the negative side, they have raised the price of the supplements that were not cheap before! Take care, Gerry
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Born 1948. Diagnosed 2011. DBS ON 7/17. Taking cd/ld 200 MG at 6 am, 9 am, 12 pm, 3 pm, 6 pm and 9 pm. Finasteride 5 mg, Life Extension Mix and Once-Daily Health Booster, Mitochondrial Energy Optimizer with BioPQQ, Optimized Curcumin (longvida), Triple Action Cruciferous Vegetable Extract with Resveratrol, Vectomega-3, Vit D3 5000U,Lithium orotate 5 mg, AMPK Activator, Kefiran, N-Acetyl-L- Cysteine (NAC), Tri-Magnesium, Advanced NeuroPro, Duozyme, Palmitoylethanolamide (PEA) Updated 9/21/17. |
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"Thanks for this!" says: | Conductor71 (01-27-2015) |
01-25-2015, 10:10 AM | #3 | |||
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Wisest Elder Ever
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Gerry.... are you using the P5P form? or the inactive pyridoxine?
People on other high dose B6 now a days use the P5P form, so the dose can be lowered quite a bit if you do.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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01-25-2015, 11:41 AM | #4 | |||
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Yes, I am using the P5P form but they didn't tell me to lower the dose. I will ask them again. Thanks!
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Born 1948. Diagnosed 2011. DBS ON 7/17. Taking cd/ld 200 MG at 6 am, 9 am, 12 pm, 3 pm, 6 pm and 9 pm. Finasteride 5 mg, Life Extension Mix and Once-Daily Health Booster, Mitochondrial Energy Optimizer with BioPQQ, Optimized Curcumin (longvida), Triple Action Cruciferous Vegetable Extract with Resveratrol, Vectomega-3, Vit D3 5000U,Lithium orotate 5 mg, AMPK Activator, Kefiran, N-Acetyl-L- Cysteine (NAC), Tri-Magnesium, Advanced NeuroPro, Duozyme, Palmitoylethanolamide (PEA) Updated 9/21/17. |
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01-25-2015, 12:22 PM | #5 | |||
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http://www.bbwca.com/parkinsons-case-study/
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Born 1948. Diagnosed 2011. DBS ON 7/17. Taking cd/ld 200 MG at 6 am, 9 am, 12 pm, 3 pm, 6 pm and 9 pm. Finasteride 5 mg, Life Extension Mix and Once-Daily Health Booster, Mitochondrial Energy Optimizer with BioPQQ, Optimized Curcumin (longvida), Triple Action Cruciferous Vegetable Extract with Resveratrol, Vectomega-3, Vit D3 5000U,Lithium orotate 5 mg, AMPK Activator, Kefiran, N-Acetyl-L- Cysteine (NAC), Tri-Magnesium, Advanced NeuroPro, Duozyme, Palmitoylethanolamide (PEA) Updated 9/21/17. |
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01-25-2015, 01:22 PM | #6 | ||
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Senior Member
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Gerry, I looked at the site and it's very interesting; however, when I click on the link posted in the website that is supposed to take me to the paper about the carbidopa/PD death rate which was peer-reviewed and published Sept. 2014, I get a "file not found" page.
Do you have a link you can share so we can access and read that paper? Thanks |
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01-25-2015, 01:52 PM | #7 | |||
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Born 1948. Diagnosed 2011. DBS ON 7/17. Taking cd/ld 200 MG at 6 am, 9 am, 12 pm, 3 pm, 6 pm and 9 pm. Finasteride 5 mg, Life Extension Mix and Once-Daily Health Booster, Mitochondrial Energy Optimizer with BioPQQ, Optimized Curcumin (longvida), Triple Action Cruciferous Vegetable Extract with Resveratrol, Vectomega-3, Vit D3 5000U,Lithium orotate 5 mg, AMPK Activator, Kefiran, N-Acetyl-L- Cysteine (NAC), Tri-Magnesium, Advanced NeuroPro, Duozyme, Palmitoylethanolamide (PEA) Updated 9/21/17. |
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"Thanks for this!" says: | anagirl (01-26-2015) |
01-27-2015, 09:51 PM | #8 | |||
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I have heard that the formulation runs around $500 a month. Thanks again! |
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01-29-2015, 08:49 AM | #9 | |||
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Member
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$500 a month is quite possible. I spend that much myself but I need a high dose/
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Born 1948. Diagnosed 2011. DBS ON 7/17. Taking cd/ld 200 MG at 6 am, 9 am, 12 pm, 3 pm, 6 pm and 9 pm. Finasteride 5 mg, Life Extension Mix and Once-Daily Health Booster, Mitochondrial Energy Optimizer with BioPQQ, Optimized Curcumin (longvida), Triple Action Cruciferous Vegetable Extract with Resveratrol, Vectomega-3, Vit D3 5000U,Lithium orotate 5 mg, AMPK Activator, Kefiran, N-Acetyl-L- Cysteine (NAC), Tri-Magnesium, Advanced NeuroPro, Duozyme, Palmitoylethanolamide (PEA) Updated 9/21/17. |
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"Thanks for this!" says: | Conductor71 (01-29-2015), natnat (02-05-2015) |
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