Parkinson's Disease Tulip


advertisement
Reply
 
Thread Tools Display Modes
Old 01-25-2015, 01:52 PM #11
GerryW's Avatar
GerryW GerryW is offline
Member
 
Join Date: Nov 2011
Location: Marysville, WA
Posts: 613
10 yr Member
GerryW GerryW is offline
Member
GerryW's Avatar
 
Join Date: Nov 2011
Location: Marysville, WA
Posts: 613
10 yr Member
Default carbidopa/PD

Quote:
Originally Posted by lurkingforacure View Post
Gerry, I looked at the site and it's very interesting; however, when I click on the link posted in the website that is supposed to take me to the paper about the carbidopa/PD death rate which was peer-reviewed and published Sept. 2014, I get a "file not found" page.

Do you have a link you can share so we can access and read that paper? Thanks
Try http://www.dovepress.com/the-parkins...-article-CPAA#
__________________
Born 1948. Diagnosed 2011. DBS ON 7/17. Taking cd/ld 200 MG at 6 am, 9 am, 12 pm, 3 pm, 6 pm and 9 pm. Finasteride 5 mg, Life Extension Mix and Once-Daily Health Booster, Mitochondrial Energy Optimizer with BioPQQ, Optimized Curcumin (longvida), Triple Action Cruciferous Vegetable Extract with Resveratrol, Vectomega-3, Vit D3 5000U,Lithium orotate 5 mg, AMPK Activator, Kefiran, N-Acetyl-L- Cysteine (NAC), Tri-Magnesium, Advanced NeuroPro, Duozyme,
Palmitoylethanolamide (PEA) Updated 9/21/17.
GerryW is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anagirl (01-26-2015)

advertisement
Old 01-27-2015, 09:51 PM #12
Conductor71's Avatar
Conductor71 Conductor71 is offline
Senior Member
 
Join Date: Jul 2009
Location: Michigan
Posts: 1,474
10 yr Member
Conductor71 Conductor71 is offline
Senior Member
Conductor71's Avatar
 
Join Date: Jul 2009
Location: Michigan
Posts: 1,474
10 yr Member
Default

Quote:
Originally Posted by GerryW View Post
Hi Laura

I continue to do well on it. I used to have tremors, dystonias and fasciculations but now I don't. On the other hand, walking is a little worse, I think. Some things come and go like orthostatic hypotension.

I don't have off times or dyskinesias or other side effects. It's only been four years since diagnosis, though. Eating definitely hinders the effect, however, which is not supposed to happen. I am consulting about that.

Also on the negative side, they have raised the price of the supplements that were not cheap before!

Take care,
Gerry
Were you essentially drug naive (no levodopa or agonist) prior to starting?

I have heard that the formulation runs around $500 a month.

Thanks again!
Conductor71 is offline   Reply With QuoteReply With Quote
Old 01-29-2015, 08:49 AM #13
GerryW's Avatar
GerryW GerryW is offline
Member
 
Join Date: Nov 2011
Location: Marysville, WA
Posts: 613
10 yr Member
GerryW GerryW is offline
Member
GerryW's Avatar
 
Join Date: Nov 2011
Location: Marysville, WA
Posts: 613
10 yr Member
Default

Quote:
Originally Posted by Conductor71 View Post
Were you essentially drug naive (no levodopa or agonist) prior to starting?

I have heard that the formulation runs around $500 a month.

Thanks again!
Yes, that's true. I've never taken a prescription form of L-Dopa or an agonist.

$500 a month is quite possible. I spend that much myself but I need a high dose/
__________________
Born 1948. Diagnosed 2011. DBS ON 7/17. Taking cd/ld 200 MG at 6 am, 9 am, 12 pm, 3 pm, 6 pm and 9 pm. Finasteride 5 mg, Life Extension Mix and Once-Daily Health Booster, Mitochondrial Energy Optimizer with BioPQQ, Optimized Curcumin (longvida), Triple Action Cruciferous Vegetable Extract with Resveratrol, Vectomega-3, Vit D3 5000U,Lithium orotate 5 mg, AMPK Activator, Kefiran, N-Acetyl-L- Cysteine (NAC), Tri-Magnesium, Advanced NeuroPro, Duozyme,
Palmitoylethanolamide (PEA) Updated 9/21/17.
GerryW is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Conductor71 (01-29-2015), natnat (02-05-2015)
Old 06-17-2015, 08:31 AM #14
parkygirl parkygirl is offline
Junior Member
 
Join Date: Jun 2010
Location: Tucson, AZ
Posts: 6
10 yr Member
parkygirl parkygirl is offline
Junior Member
 
Join Date: Jun 2010
Location: Tucson, AZ
Posts: 6
10 yr Member
Default Re: Gerry W ...Hinz protocol

Hi Gerry W ....

Just wondering how you are currently doing on the Hinz protocol?

I have been on this protocol for 6 years... having my ups and downs. I also have found that food hinders the affects and have not been able to find a solution... unless I just stop eating... and sometimes I do eat less in order to feel better.

Thanks in advance for your response.

Parkygirl...
parkygirl is offline   Reply With QuoteReply With Quote
Old 06-17-2015, 10:41 AM #15
GerryW's Avatar
GerryW GerryW is offline
Member
 
Join Date: Nov 2011
Location: Marysville, WA
Posts: 613
10 yr Member
GerryW GerryW is offline
Member
GerryW's Avatar
 
Join Date: Nov 2011
Location: Marysville, WA
Posts: 613
10 yr Member
Default

Quote:
Originally Posted by parkygirl View Post
Hi Gerry W ....

Just wondering how you are currently doing on the Hinz protocol?

I have been on this protocol for 6 years... having my ups and downs. I also have found that food hinders the affects and have not been able to find a solution... unless I just stop eating... and sometimes I do eat less in order to feel better.

Thanks in advance for your response.

Parkygirl...
Dr. Kalish sent me to Dr. Alvin Stein who started over. My complaint was the same as yours. I can eat or I can function but not both. Dr. Stein says I should be able to do both so we are doing testing again. If I don't eat, it works well. No side effects and I function normally.
__________________
Born 1948. Diagnosed 2011. DBS ON 7/17. Taking cd/ld 200 MG at 6 am, 9 am, 12 pm, 3 pm, 6 pm and 9 pm. Finasteride 5 mg, Life Extension Mix and Once-Daily Health Booster, Mitochondrial Energy Optimizer with BioPQQ, Optimized Curcumin (longvida), Triple Action Cruciferous Vegetable Extract with Resveratrol, Vectomega-3, Vit D3 5000U,Lithium orotate 5 mg, AMPK Activator, Kefiran, N-Acetyl-L- Cysteine (NAC), Tri-Magnesium, Advanced NeuroPro, Duozyme,
Palmitoylethanolamide (PEA) Updated 9/21/17.
GerryW is offline   Reply With QuoteReply With Quote
Old 06-17-2015, 11:13 AM #16
soccertese soccertese is offline
Magnate
 
Join Date: Nov 2007
Posts: 2,531
15 yr Member
soccertese soccertese is offline
Magnate
 
Join Date: Nov 2007
Posts: 2,531
15 yr Member
Default

Quote:
Originally Posted by GerryW View Post
Dr. Kalish sent me to Dr. Alvin Stein who started over. My complaint was the same as yours. I can eat or I can function but not both. Dr. Stein says I should be able to do both so we are doing testing again. If I don't eat, it works well. No side effects and I function normally.
just curious, even low protein foods such as fruits negate the affect of your aa mix?
if i eat anything with more than 5grams of protein negates my C/L for up to 2hrs, have to double the dose and try to play catchup. anything dairy is the worst.


ironically, a lot of what you are taking is "food".

have you ever considered just taking C/L as needed just to see what it's like? or just as a backup in case you can't get your HINZ aa's? then you might get the best of both worlds?

Last edited by soccertese; 06-17-2015 at 02:43 PM. Reason: changed mg to grams
soccertese is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
GerryW (06-18-2015)
Old 06-17-2015, 01:08 PM #17
badboy99 badboy99 is offline
Member
 
Join Date: Aug 2012
Location: On a shiny blue dot
Posts: 626
10 yr Member
badboy99 badboy99 is offline
Member
 
Join Date: Aug 2012
Location: On a shiny blue dot
Posts: 626
10 yr Member
Default

Quote:
Originally Posted by GerryW View Post
Dr. Kalish sent me to Dr. Alvin Stein who started over. My complaint was the same as yours. I can eat or I can function but not both. Dr. Stein says I should be able to do both so we are doing testing again. If I don't eat, it works well. No side effects and I function normally.
I'm in the same boat as both of you. Gerry if you get it figured out please fill us in.
badboy99 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
zanpar321 (06-17-2015)
Old 06-18-2015, 11:37 AM #18
GerryW's Avatar
GerryW GerryW is offline
Member
 
Join Date: Nov 2011
Location: Marysville, WA
Posts: 613
10 yr Member
GerryW GerryW is offline
Member
GerryW's Avatar
 
Join Date: Nov 2011
Location: Marysville, WA
Posts: 613
10 yr Member
Default

Quote:
Originally Posted by soccertese View Post
just curious, even low protein foods such as fruits negate the affect of your aa mix?
if i eat anything with more than 5grams of protein negates my C/L for up to 2hrs, have to double the dose and try to play catchup. anything dairy is the worst.


ironically, a lot of what you are taking is "food".

have you ever considered just taking C/L as needed just to see what it's like? or just as a backup in case you can't get your HINZ aa's? then you might get the best of both worlds?
Thanks for the suggestion, Soccertese. I do get the protein effect, especially from milk. I think some of it, especially from low protein food, is just slow stomach emptying. I have often thought about taking the c/l pills at times when it is inconvenient to blend the powders or if I have to be hospitalized for some reason. I will ask Dr. Stein what an equivalent dose might be.
__________________
Born 1948. Diagnosed 2011. DBS ON 7/17. Taking cd/ld 200 MG at 6 am, 9 am, 12 pm, 3 pm, 6 pm and 9 pm. Finasteride 5 mg, Life Extension Mix and Once-Daily Health Booster, Mitochondrial Energy Optimizer with BioPQQ, Optimized Curcumin (longvida), Triple Action Cruciferous Vegetable Extract with Resveratrol, Vectomega-3, Vit D3 5000U,Lithium orotate 5 mg, AMPK Activator, Kefiran, N-Acetyl-L- Cysteine (NAC), Tri-Magnesium, Advanced NeuroPro, Duozyme,
Palmitoylethanolamide (PEA) Updated 9/21/17.
GerryW is offline   Reply With QuoteReply With Quote
Old 06-18-2015, 12:14 PM #19
soccertese soccertese is offline
Magnate
 
Join Date: Nov 2007
Posts: 2,531
15 yr Member
soccertese soccertese is offline
Magnate
 
Join Date: Nov 2007
Posts: 2,531
15 yr Member
Default

Quote:
Originally Posted by GerryW View Post
Thanks for the suggestion, Soccertese. I do get the protein effect, especially from milk. I think some of it, especially from low protein food, is just slow stomach emptying. I have often thought about taking the c/l pills at times when it is inconvenient to blend the powders or if I have to be hospitalized for some reason. I will ask Dr. Stein what an equivalent dose might be.
C/L is cheap and effective, i never leave home without it.
soccertese is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dilmar (05-25-2016)
Old 06-19-2015, 09:17 AM #20
badboy99 badboy99 is offline
Member
 
Join Date: Aug 2012
Location: On a shiny blue dot
Posts: 626
10 yr Member
badboy99 badboy99 is offline
Member
 
Join Date: Aug 2012
Location: On a shiny blue dot
Posts: 626
10 yr Member
Default

http://www.drbass.com/sequential.html

DIGESTION TIME OF VARIOUS FOODS
(approx. time spent in stomach before emptying). ........

Water
when stomach is empty, leaves immediately and goes into intestines,
Juices
Fruit vegetables, vegetable broth - 15 to 20 minutes.
Semi-liquid
(blended salad, vegetables or fruits) - 20 to 30 min.
Fruits
Watermelon - 20 min.digestion time.
Other melons - Canteloupe, Cranshaw, Honeydew etc. - 30 min.
Oranges, grapefruit, grapes - 30 min.
Apples, pears, peaches, cherries etc. - digest in 40 min.
Vegetables
Raw tossed salad vegetables - tomato, lettuces, cucumber, celery, red or green pepper, other succulent vegetables - 30 to 40 min. digestion. -
Steamed or cooked vegetables
Leafy vegetables - escarole, spinach, kale, collards etc. - 40 min. - Zucchini, broccoli, cauliflower, string beans, yellow squash, corn on cob - all 45 min. digestion time
Root vegetables - carrots, beets, parsnips, turnips etc. - 50 min.
Semi-Concentrated Carbohydrates - Starches
Jerusalem artichokes & leafy, acorn & butternut squashes, corn, potatoes, sweet potatoes, yam, chestnuts - all 60 min. digestion.
Concentrated Carbohydrates - Grains
Brown rice, millet, buckwheat, cornmeal, oats (first 3 vegetables best) - 90 min.
Legumes & Beans - (Concentrated Carbohydrate & Protein)
Lentils, limas, chick peas, peas, pigeon peas, kidney beans, etc. - 90 min. digestion time
soy beans -120 min. digestion time
Seeds & Nuts
Seeds - Sunflower, pumpkin, pepita, sesame - Digestive time approx. 2 hours.
Nuts - Almonds, filberts, peanuts (raw), cashews, brazil, walnuts, pecans etc. - 2 1/2 to 3 hours to digest.
Dairy
Skim milk, cottage or low fat pot cheese or ricotta - approx. 90 min. digestion time
whole milk cottage cheese - 120 min. digestion
whole milk hard cheese - 4 to 5 hours digestion time
Animal proteins
Egg yolk - 30 min. digestion time
Whole egg - 45 min.
Fish - cod, scrod, flounder, sole seafood - 30 min. digestion time
Fish - salmon, salmon trout, herring, (more fatty fish) - 45 min. to 60 digestion time
Chicken - 1½ to 2 hours digestion time (without skin)
Turkey - 2 to 2 ¼ hours digestion time (without skin)
Beef, lamb - 3 to 4 hours digestion time
Pork - 4½ to 5 hours digestion time

(Editor's notes
Note1: raw animal proteins have much faster digestion times than the above times for cooked/heated animal proteins.
Note2: The digestion times given are under an ideal situation of eating only one food, chewing well, and having efficient digestion, as is the case e.g. after a fast. They are digestion times for optimally healthy persons, with good eating habits. The digestion times are to a large part derived from Dr. Gian-Cursio's and Dr. Bass' practices.
Digestion times are much longer on a conventional diet, and for persons with non-optimized digestive systems, or persons lacking in energy, and for meals with many ingredients put together haphazardly = not in the optimum sequential order.)
badboy99 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Bogusia (06-19-2015), eds195 (06-19-2015), GerryW (06-19-2015), lab rat (06-19-2015), shcg (06-19-2015)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Amino acid management of Parkinson’s disease: a case study imark3000 Parkinson's Disease 2 02-24-2013 09:10 AM
Amino acid balancing therapy GerryW Parkinson's Disease 2 03-15-2012 07:40 PM
Amino acid management of Parkinson's disease: a case study trixiedee Parkinson's Disease 7 01-22-2012 03:34 PM
More test-based treatment discussion - amino acid testing nickvalo Parkinson's Disease 3 04-16-2011 02:23 AM
Amino Acid -DLPA : for depression and pain - and Parkinson's Disease lou_lou Parkinson's Disease 3 09-17-2006 08:47 PM


All times are GMT -5. The time now is 10:06 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.