Parkinson's Disease Tulip


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Old 09-30-2013, 08:14 PM #31
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Originally Posted by satwar View Post
I assume your talking about blood work. The coconut oil fixed my cholesterol very quickly, within a month.

How many TBS are you taking daily ?
I'm only up to 3 to 4 Tbls but combined with my no/low carb, no sugar diet I am seeing positive results. Yes I mean bloodwork.
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Old 09-30-2013, 08:27 PM #32
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I'm only up to 3 to 4 Tbls but combined with my no/low carb, no sugar diet I am seeing positive results. Yes I mean bloodwork.
Well you certainly know how to lose weight. I wish you all the best.
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Old 10-10-2013, 08:38 PM #33
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Ooops, coconut oil for potential treatment of Alzheimer's just went mainstream national news in Canada, on the CTV news: http://www.ctvnews.ca/video?clipId=1020700

I was interviewed by the producer of this show but unfortunately the scope of the show was limited to Alzheimer's. I pleaded the case for including cholesterol and Parkinson's to no avail.
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Old 10-11-2013, 08:13 AM #34
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Originally Posted by satwar View Post
Ooops, coconut oil for potential treatment of Alzheimer's just went mainstream national news in Canada, on the CTV news: http://www.ctvnews.ca/video?clipId=1020700

I was interviewed by the producer of this show but unfortunately the scope of the show was limited to Alzheimer's. I pleaded the case for including cholesterol and Parkinson's to no avail.
as a person with a science background, my opinion is that video lacked any proof that coconut oil helps alzheimer. i might be wrong, but the unnamed institution doing the trial is just starting and is funded by some unnamed organization. the canadian scientist isn't named. the 100's of testimonials weren't examined, the husband has regressed, his improved drawings - who witnessed them. not saying some people might benefit but that was about the quality of a poor infomercial in my opinion. just giving my honest opinion.
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Old 10-11-2013, 08:06 PM #35
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as a person with a science background, my opinion is that video lacked any proof that coconut oil helps alzheimer. i might be wrong, but the unnamed institution doing the trial is just starting and is funded by some unnamed organization. the canadian scientist isn't named. the 100's of testimonials weren't examined, the husband has regressed, his improved drawings - who witnessed them. not saying some people might benefit but that was about the quality of a poor infomercial in my opinion. just giving my honest opinion.
I'm sorry but the video was asking questions not providing answers, and it was raising the awareness of the general public. Please find attached the "Extended Report" which accompanies the video. http://www.ctvnews.ca/health/health-...#ixzz2hSfFeE00

The clinical trial will provide the proof required. What you do and how you act with that proof is obviously your decision.
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Old 10-12-2013, 06:49 AM #36
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I'm sorry but the video was asking questions not providing answers, and it was raising the awareness of the general public. Please find attached the "Extended Report" which accompanies the video. http://www.ctvnews.ca/health/health-...#ixzz2hSfFeE00

The clinical trial will provide the proof required. What you do and how you act with that proof is obviously your decision.
thanks for the link. i hope the results are positive. HAUSER at USF does a lot of pd research. he tested IV glutathione and found no affect on pd even though anecdotally there were numerous "success stories".

http://health.usf.edu/medicine/neuro...ders/index.htm

the video/article imho was very unbalanced, didn't interview anyone who was skeptical, imho more entertainment than reporting.
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Old 10-12-2013, 11:24 AM #37
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The clinical trial will provide the proof required. What you do and how you act with that proof is obviously your decision.
satwar, I would like to ask you a question. First, let me preface my question by saying that I have used coconut oil, although irregularly, for about 6 months. My PD symptoms have been stable for about 2 years since dx, and in some areas (balance and stiffness) I have actually improved. Of course, I have no idea if its attributable to the coconut, the variety of other supplements I take, the Azilect, my regular exercise routine (including Qigong daily and Tai Chi 3 times/week) or a combination of all.

My question is do you have any particular reason for jumping onto coconut oil other than your personal belief that it will work, and your confidence in the reports you have posted. With no disrespect at all, I just want to make sure that you don't have some vested interest that we are unaware of. I appreciate all of the information that you post on this topic. I just want to feel comfortable that it is being done for the right reasons.

Thank you,

Gary

Last edited by Tupelo3; 10-12-2013 at 12:40 PM. Reason: typo
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Old 10-13-2013, 04:12 AM #38
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satwar, I would like to ask you a question. First, let me preface my question by saying that I have used coconut oil, although irregularly, for about 6 months. My PD symptoms have been stable for about 2 years since dx, and in some areas (balance and stiffness) I have actually improved. Of course, I have no idea if its attributable to the coconut, the variety of other supplements I take, the Azilect, my regular exercise routine (including Qigong daily and Tai Chi 3 times/week) or a combination of all.

My question is do you have any particular reason for jumping onto coconut oil other than your personal belief that it will work, and your confidence in the reports you have posted. With no disrespect at all, I just want to make sure that you don't have some vested interest that we are unaware of. I appreciate all of the information that you post on this topic. I just want to feel comfortable that it is being done for the right reasons.

Thank you,

Gary
I wouldn't say that I have a`belief that it will work, but rather that I wanted to give it a fair try and see what happens. My tremor had developed into a full time event and I was having difficulty feeding myself. I had decided to make an appointment with my neurologist within the next few weeks.

How I became focused on coconut oil was a strange series of coincidental events. I attended a local Parkinson's Society meeting where some research on a way of restoring health to mitochondria was reported on rat models, and proposed for potential treatment of Parkinson's in 10 years. In the meantime my wife had recently purchased a book in the health food store on treatment of Alzheimer's for a friend who's mother is very sick. My wife starting skimming the book and realized it had potential for treating Parkinson's, hence brought it to my attention. I started reading and was stunned that the book's theory about restoring sick mitochondria was very similar to the mainstream study on rat models (different agents but same goal).

Hence I began taking coconut oil. Within weeks I started noticing improvements and started increasing my dosage. The only condition I imposed on myself was that I would have my blood work done after a month because of my borderline cholesterol. If my blood work turned worse, I would stop the treatment. My blood work was outstanding, far beyond any expectations and never been better in my entire life, so I became committed to taking this treatment as far as I can. My family doctor stated that he saw no progression in my disease since I saw him two years ago (I had only started coconut oil several months earlier).

I no longer have any urgency to see my neurologist, and on my last regular six month appointment she said I was doing remarkably well for being diagnosed 13 years ago.

Hope this answers your question.

Last edited by satwar; 10-13-2013 at 04:34 AM.
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Old 10-13-2013, 06:43 AM #39
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Originally Posted by soccertese View Post
thanks for the link. i hope the results are positive. HAUSER at USF does a lot of pd research. he tested IV glutathione and found no affect on pd even though anecdotally there were numerous "success stories".

http://health.usf.edu/medicine/neuro...ders/index.htm
Let's remember that this clinical trial is for Alzheimer's not Parkinson's and even if results are clearly positive the same challenges of funding clinical trials for PD will have to be overcome. Hopefully as awareness increases, funding will be easier.

From what I have read this trial has been well designed for both patients and scientists. To be sure there are a lot of eyes awaiting the outcome of this trial and the spin doctors will be out in full force.

Let's hope, regardless of outcome, that patients like us are the winners.
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Old 10-13-2013, 09:38 AM #40
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The only condition I imposed on myself was that I would have my blood work done after a month because of my borderline cholesterol. If my blood work turned worse, I would stop the treatment. My blood work was outstanding, far beyond any expectations and never been better in my entire life.
Thanks for the information, satwar.

My cholesterol has always been on the lower side (as is the case with many PWP). However, as with you, since I started taking the coconut oil, its dropped even more. On top of that, my HDLs are actually higher now than my LDLs. Not sure if I can attribute this to the coconut, but it certainly hasn't hurt.
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