Parkinson's Disease Tulip


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Old 02-26-2014, 08:54 AM #1
johnt johnt is offline
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Join Date: Apr 2009
Location: Stafford, UK
Posts: 1,059
15 yr Member
johnt johnt is offline
Senior Member
 
Join Date: Apr 2009
Location: Stafford, UK
Posts: 1,059
15 yr Member
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Wider data collection.

"PatientsLikeMe and the nonprofit research organization Sage Bionetworks announced today the launch of a new crowd sourced study to develop voice analysis tools that both researchers and people with Parkinson’s disease (PD) can use to track PD disease progression

In collaboration with TED Fellow Dr. Max Little, the Patient Voice Analysis (PVA) project will for the first time combine data from two sources: phone-based voice recordings that Dr. Little’s software collects and analyzes to detect markers of PD; and information reported by patients using PatientsLikeMe’s Parkinson’s Disease Rating Scale (PDRS), a tool that documents patients’ answers to questions that measure treatment effectiveness and disease progression."

http://www.epda.eu.com/en/news/02-05-patientslikeme/

I like this news:

DATA + ANALYSIS = INTERVENTION IDEAS

I wish the collaboration included mention of trials of minor interventions, such as circumin.

TRIALS + ANALYSIS = THERAPIES

John
__________________
Born 1955. Diagnosed PD 2005.
Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg
Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg
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