Parkinson's Disease Tulip


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Old 07-04-2012, 08:37 AM #1
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reverett123 reverett123 is offline
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Default Do it anyway :-)

Michael-
I admit to bias on this, having googled the product and the guy who makes it. He sounds a bit like a...... how can I put this? Fruitcake?

You, however, have been around here a long time and seem rational (around here, at least) so I looked a little further and found a site giving the ingredients.

Ingredients
Vitamin C (as ascorbyl palmitate)
MegaHydrate™ Microcluster®
Silica Hydride Powder Proprietary Blend: Potassium Citrate, Silica, Potassium Carbonate, Oliec Acid, Hydrogen Negative Ions

Wikipedia says that our GI system breaks ascorbyl palmitate into ascorbic acid and palmitic acid. The latter is a major part of coconut oil and "Palmitic acid has been shown (in rats fed on a 20% fat (palmitic acid), 80% carbohydrate diet) to alter aspects of the central nervous system responsible for the secretion of insulin, and to suppress the body's natural appetite-suppressing signals from leptin and insulin -- the key hormones involved in weight regulation."

Megahydrate Microcluster seems to be marketing gobbledygoop.

Oleic acid is a fatty acid that is an important part of olive oil and similar fats.

The two potassium compounds are sources for potassium supplementation.

"Hydrogen negative ions" (HNIs) - Wellll.... This is where it gets tricky. But it is also where it gets interesting. Also very confusing. Any of our group chemists want to help here, please chime in. In the mean time I will try my best...

First of all, I'm not sure if the inventor is more ignorant than I am or vice versa. But it could be that we are both very lucky here. Let me try to explain something that I barely understand and how it may relate to all of us. As I and Laura have mentioned, we both seem to have an unusual form of PD if that is even what it is. If PD even exists.

I am beginning to suspect that PD is a "spectrum disorder" and that Laura and I are toward one end. One of the primary features of this part of the spectrum is the poor handling of potassium. Other areas exist involving similar problems with sodium, magnesium, and other minerals (i.e. the electrolytes). Note that the formulation that we are looking at has potassium as a major ingredient.

Potassium is moved around and in and out of the cells by pressure created by tiny little pumps mounted in the cell wall (imagine a window in your house wall). These pumps work by swapping potassium on one side of the wall for hydrogen ions on the other side. The fuel is supplied by our mitochondria in the form of ATP, the energy currency of the body. The pressure builds, the window is thrown open, and the potassium flows through the window.

When things work they work well. When they don't, one can be paralysed for minutes, hours, or days. Taking potassium helps greatly. So, keep at it Michael, and keep us informed. -Rick
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 07-08-2012, 02:54 PM #2
bretd bretd is offline
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Quote:
Originally Posted by michael7733 View Post
Most of us have not reached the age of retirement yet, and we are dependent upon one or more forms of disability income, There are literally millions of us across the globe who fit into this category. Ha ve you ever asked yourself what you will do for income when a cure is found? We will probably be asked to give up our disability incomes and rejoin the workforce. I know that most of yu do not believe that a cure will come in your lifetime, and you could be right...or...you could be wrong.
Five days ago I added a supplement to my daily regimen of Sinemet and Requip. On day one, June 29, 2012, I took 2 capsules of Mega Hydrate. I think I had a little more energy that day, but it didn't seem t o be a significant amount. On day 2 I forgot to take them. I remembered on days 3, 4 and 5. Today is July 3rd, 2012, day 5. I have divided my medication into 5 doses during the day, and I usually get 2 to 3 hours of "ON" time from each dose. I usually go "OFF" about an hour to an hour and a half before my next dose is due. There is a 9 hour space of time between my last dose of the day and the first dose of the next day. During my "OFF" times, I am pretty much dependent on my motorized scooter to get around. Shuffling, rigidity and freezing are in control during those times. As of right now, 2:40 PM, July 3rd, 2012, I have been "ON" for 29 straight hours with no rigidity, no freezing and no shuffling. I consider this to be significant.
I am not saying that this is a cure or even a new area to look in for a treatment. I am not even saying that this supplement caused this to happen. I am say ing that , to me, this is significant.
michael

I am so blessed
any success is great, I say keep up the meds. I watch my father in-law suffer for years, trying everything under the sun. I wish you the very best.
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