Parkinson's Disease Tulip

 
 
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Old 02-18-2012, 01:51 PM #1
madamlash madamlash is offline
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Join Date: Feb 2010
Location: Southern California
Posts: 167
15 yr Member
madamlash madamlash is offline
Member
 
Join Date: Feb 2010
Location: Southern California
Posts: 167
15 yr Member
Default I'm sick and tired of inconsistent medication

I picked up my refills on my Mirapex ER 1.5 (2 per day) and Carbidopa Levodopa 25-100 (1.5 every 2-3 hours.) It was immediately obvious to me that the C/L wasn't right. It is the TEVA round yellow tabs with the split mark. I am experiencing tremendous off time and have to add another half pill just to get by. Gee... they didn't charge me less for less medication but it is obvious to me that I've been ripped off again by substandard meds.
Then I read about the shortage of meds???? What the hell????
So, in my frustration and anger, I started thinking... wouldn't it be possible for all of us PDers to form a non-profit, buy into it with reasonably priced shares of stock and open a factory to make our own Carbidopa Levodopa. At least the owners would care about the quantity and quality of the drug. We would then all have a reliable source. I've never been one to sit down and take it. Just because PD has slowed me down a bit, I'm not dead yet and I'm angry as hell and not going to take it any more.

What do you think???? Anyone else mad??? We can write letters, we can carry signs, we can go to Washington. Those are certainly worthy efforts and we should do all of them but... how about just taking the problem into our own hands? Why can't we just manufacture our own Carbidopa Levodopa???
Lest I anger anyone, I'm not suggesting that this is the only medication needed, I'm just suggesting a starting point.
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