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08-25-2012, 10:28 PM | #1 | ||
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Anyone here suffer this, if so
when did it come on, how did it manifest itself, how is it treated. Neil . |
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08-25-2012, 10:58 PM | #2 | ||
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Magnate
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Quote:
Not sure this is of much help to you, but thought I would mention this for whatever it's worth. Gerry |
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"Thanks for this!" says: | aftermathman (08-29-2012) |
08-27-2012, 08:44 AM | #3 | ||
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Senior Member
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I have had dystonia since before dx with pd, around nine years ago. It used to be occasional but is now more frequent. It has never been called anything other than dystonia, so I will describe it so you can tell if there are any similarities. It often happens when unmedicated, as in first thing in the morning or when meds have worn off, and it doesn't seem to be specific to any one organ. It feels more like a painful wave/spasm that moves up from my lower torso and ends in my neck. It is quite unlike any other pain I have ever had. It completely stops me in my tracks, and shows up on my face to others. It sort of rolls up the inside of me till it gets to my head and then stops. I get another dystonic thing that involves either one of my legs that also stops me in my tracks, it also rolls up the outside of my leg up my hip and to chest level, like a spasm, ending in my neck. These are not the only dystonias I get others are smaller, but they are the ones that affect my torso. They are shortlived, and being consistently medicated seems to reduce the frequency, but I am not that great at taking my meds on time.
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"Thanks for this!" says: | aftermathman (08-29-2012), ger715 (08-27-2012) |
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