[lou_lou]

FYI
if you have just started PD medications or have not taken any pd meds yet please do not -
please read this book online first
http://www.pdrecovery.org/publicatio...s_complete.pdf
www.pdrecovery.org

listen on
http://www.blogtalkradio.com/parkins...akin-to-awaken

i wish i had never started the drugs - i lost my life to drugs -
i am now addicted to them and will die not of the PD - but the drug addiction.

[Nan Cyclist]

Before you limit yourself and your therapy, may I suggest you listen to Medical Myths, Lies, and Half-Truths: What We Think We Know May Be Hurting Us
Taught By Professor Steven Novella, M.D., Georgetown University,
Yale School of Medicine

The series of lectures is available through The Great Courses.

[ladybird]

Thank you Lou Lou for posting that message. I thought it was very altruistic of you to do so, especially as it wasn't benefiting you in any way. As you said, you are already down that path. I thought "Happyguy" was obviously caught out on an unhappy day. Perhaps he has already gone down that route ( of drugs) and I can understand why it is so upsetting to read such info. However, there are many of us on the cusp of doing so, and your post has been more than helpful. Thank you again, from the bottom of my heart, and I hope "Happy guy" has a better day.

[moondaughter]

Originally Posted by ladybird

Thank you Lou Lou for posting that message. I thought it was very altruistic of you to do so, especially as it wasn't benefiting you in any way. As you said, you are already down that path. I thought "Happyguy" was obviously caught out on an unhappy day. Perhaps he has already gone down that route ( of drugs) and I can understand why it is so upsetting to read such info. However, there are many of us on the cusp of doing so, and your post has been more than helpful. Thank you again, from the bottom of my heart, and I hope "Happy guy" has a better day.

Hi Ladybird,

I got started with Janice Hadlocks' PRP protocol 12 years ago. Her view that in a parkinson condition the qi flows rebelliously through the stomach channel of the chinese acupuncture meridian system i think is groundbreaking. We possess electrical physiology. Quantifying healing is really very relative. Because pd sx clarified themselves at age 36 for me i was loathe to take sinemet but 3 years ago (then age 51-menopausal mind you) when i wasn't doing very well and had little to lose sinemet basically gave me my life back -very gradually....it took 3 months of sinemet (small dose) to decide that it was helping and now 3 years later(18 years of shaking, bradykinesia etc) am still improving....i have to wonder if everything i do to support my health including the yin tui na PRP work i did has helped me tremendously. Because of Janices' work I don't take any agonists...just low dose sinemet and was able to cut back to 1 tablet per day altho generally 2 last summer with the help of fava bean pod juice. I waited a very long time - did i suffer needlessly? don't know however i was suprised to discover how grounded and whole sinemet makes me feel - still always looking to cut back and doing what i can to support my health.

In the end perhaps what matters is your journey not the destination ....you will find that which supports you! Janice Hadlock is one of the kindest most humble and determined persons I've ever had the chance to be acquainted with through her writing and a few private emails. The parkinsons community has benefited richly by her work however her stern position on the meds may scare people and i'm glad i finally broke free of that fear however i do think that dosage is vastly misunderstood.

kind regards,
md

[aquario]

I worked with Janice Hadlock for six months the year following my initial diagnosis. I found her very personable with a wide knowledge of some aspects of pd. However, I believe her theory that pd is caused by the reversal of chi flow due to an ankle/foot injury early in life is an extremely improbable hypothesis. As we know, there are many possible causes of the disease and many ways that it presents. To try to shoe horn it into one over-arching therapeutic system is at the least mis-guided and perhaps disingenuous. If her approach worked, there would be many many more people singing her praises.

[moondaughter]

Originally Posted by aquario

I worked with Janice Hadlock for six months the year following my initial diagnosis. I found her very personable with a wide knowledge of some aspects of pd. However, I believe her theory that pd is caused by the reversal of chi flow due to an ankle/foot injury early in life is an extremely improbable hypothesis. As we know, there are many possible causes of the disease and many ways that it presents. To try to shoe horn it into one over-arching therapeutic system is at the least mis-guided and perhaps disingenuous. If her approach worked, there would be many many more people singing her praises.

Back in the day .....Annetta Freemans supplement protocol and then the liquid deprenyl citrate was promoted by the Life Extension Foundation in the UK for those seeking an alternattive to standard allopathic protocol. I was able to talk with Annetta on the phone although her voice was very quiet - a whisper. She told me about Janice and the Parkinsons Recovery Project - the concept of recovery actually originated with the guy whose name this condition was named after - James Parkinson.

Janice dedicated herself tirelessly to understand and respond - with a focus that was not profit driven. she landed at the feet....whose to say whhat primal electrical functions are or are not located there where we touch our planet our archetypal mother? I agree that to narrow pd etiology down to a literal "foot injury" spins (with a fated linear approach) and departs from a wholistic perspective to addressing a pd condition -but Janice did help people andd she reintroduced the concept of recovery to a large population. Pioneers will always encounter naysayers and will also pave pathways that will ease the journey for others.

Take from her work that which you can benefit from and let go of what doesn't i say.

Much love,
-md

[Max19BC]

For anyone interested in Janice Walton-Hadlock program, you might want to check out a Yahoo support group called: PDrecouverers "Parkinson's Recovery Project". By pd'ers and their spouses participating in this program.
It's not very active night now, but it has lots of personal stories of pder's who tried this path.
PDrecoverers : Parkinson's Recovery Project
or try: http://health.groups.yahoo.com/group/PDrecoverers/

PDrecoverers@yahoogroups.com is intended to provide a cyber-support-group consisting of persons with Parkinson's Disease who are being treated via Yin Tui Na and acupuncture treatments by practitioners following the protocols published by Janice Walton-Hadlock


I found out about this group back in 2004, a couple of years after I was diagnosed. I wasn't on Sinemet yet, so Janice accepted me into her program. Over the next couple of years, I made 3 trips to see Janice and her team in Santa Cruz, CA. I followed her program the best I could. She is an amazing person and very dedicated. I'm not sure how much better I am today because of Janice's program, but after 5 years, unmedicated, I was having a very difficult time managing myself. I could barely walk, poor balance, muscle cramps, very weak, etc. I believe my body was still rebuilding itself, but I felt like I was running out of time. When I could barley walk, I eventually gave in to Sinemet, and my life returned to me in just a couple of months. I was able to walk, ride a bike, run and even kayak again. Today 11 years after I was diagnosed, I think I might of reached my plateau of recovery and I'm now on that downward slope of progression. I'm not to bad when medicated, except for my talking (it's not that great), but I can barely walk now unmedicated.

My advice for anyone wanting to try Janice's program. Just be prepared for a long road for recovery. Everyone is different, but recovery is going to take years and you're going to get worse before you get better. It's not for everyone, most of the members of this group ended up taking Parkinson's drugs. Very few members of the group (if any?) fully recovered. But I believed her program did help me and others to some degree.

It couldn't hurt.

Enjoy life always,
Max

[ginnie]

Hi lou lou, we communicated before. I have not heard from you in a long time. I am sorry you are having such troubles with the medications. What happened? I still care about you and had not seen a post from you for awhile. Now that you have posted, please let me know about you. ginnie

[Dana Hodgkins]

Is there anyone out there currently pursuing Janice Walton-Hadlock's PD Recovery therapy? I would like to talk to you and share experiences, methods, progress, setbacks, .... we can help each other.

I have tritated down off almost all of my PD meds in the last 4 months. Accupressure therapy on my feet started 1 month ago. I have had PD for 7 years and a month ago I had my first sense of smell back! I am so encouraged!!! ...and I'm sleeping through the night (no thanks to RequipXL).

Would love to talk to you,
Dana

[lurkingforacure]

Originally Posted by Dana Hodgkins

Is there anyone out there currently pursuing Janice Walton-Hadlock's PD Recovery therapy? I would like to talk to you and share experiences, methods, progress, setbacks, .... we can help each other.

I have tritated down off almost all of my PD meds in the last 4 months. Accupressure therapy on my feet started 1 month ago. I have had PD for 7 years and a month ago I had my first sense of smell back! I am so encouraged!!! ...and I'm sleeping through the night (no thanks to RequipXL).

Would love to talk to you,
Dana

Could you please post generally how you went about titrating off the meds and how that went, since you did that before you started the foot accupressure therapy? How long is the therapy and about what does it cost? Also, who do you have doing it-what credentials do they need to be able to do that correctly? Thanks!