Parkinson's Disease Tulip


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Old 07-04-2012, 01:22 AM #1
michael7733 michael7733 is offline
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Default I am hesitant to do this:

Most of us have not reached the age of retirement yet, and we are dependent upon one or more forms of disability income, There are literally millions of us across the globe who fit into this category. Ha ve you ever asked yourself what you will do for income when a cure is found? We will probably be asked to give up our disability incomes and rejoin the workforce. I know that most of yu do not believe that a cure will come in your lifetime, and you could be right...or...you could be wrong.
Five days ago I added a supplement to my daily regimen of Sinemet and Requip. On day one, June 29, 2012, I took 2 capsules of Mega Hydrate. I think I had a little more energy that day, but it didn't seem t o be a significant amount. On day 2 I forgot to take them. I remembered on days 3, 4 and 5. Today is July 3rd, 2012, day 5. I have divided my medication into 5 doses during the day, and I usually get 2 to 3 hours of "ON" time from each dose. I usually go "OFF" about an hour to an hour and a half before my next dose is due. There is a 9 hour space of time between my last dose of the day and the first dose of the next day. During my "OFF" times, I am pretty much dependent on my motorized scooter to get around. Shuffling, rigidity and freezing are in control during those times. As of right now, 2:40 PM, July 3rd, 2012, I have been "ON" for 29 straight hours with no rigidity, no freezing and no shuffling. I consider this to be significant.
I am not saying that this is a cure or even a new area to look in for a treatment. I am not even saying that this supplement caused this to happen. I am say ing that , to me, this is significant.
michael

I am so blessed

Last edited by michael7733; 07-04-2012 at 04:14 PM.
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Old 07-04-2012, 07:00 AM #2
lurkingforacure lurkingforacure is offline
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Default still taking meds?

Quote:
Originally Posted by michael7733 View Post
Most of us have not reached the age of retirement yet, and we are dependent upon one or more forms of disability income, There are literally millions of us across the globe who fit into this category. Ha ve you ever asked yourself what you will do for income when a cure is found? We will probably be asked to give up our disability incomes and rejoin the workforce. I know that most of yu do not believe that a cure will come in your lifetime, and you could be right...or...you could be wrong.
Five days ago I added a supplement to my daily regimen of Sinemet and Requip. On day one, July 29, 2012, I took 2 capsules of Mega Hydrate. I think I had a little more energy that day, but it didn't seem t o be a significant amount. On day 2 I forgot to take them. I remembered on days 3, 4 and 5. Today is July 3rd, 2012, day 5. I have divided my medication into 5 doses during the day, and I usually get 2 to 3 hours of "ON" time from each dose. I usually go "OFF" about an hour to an hour and a half before my next dose is due. There is a 9 hour space of time between my last dose of the day and the first dose of the next day. During my "OFF" times, I am pretty much dependent on my motorized scooter to get around. Shuffling, rigidity and freezing are in control during those times. As of right now, 2:40 PM, July 3rd, 2012, I have been "ON" for 29 straight hours with no rigidity, no freezing and no shuffling. I consider this to be significant.
I am not saying that this is a cure or even a new area to look in for a treatment. I am not even saying that this supplement caused this to happen. I am say ing that , to me, this is significant.
michael

I am so blessed
\

I assume you are still taking your meds like you were before you started taking this? If not, how have you changed youre regiment?
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Old 07-04-2012, 08:37 AM #3
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Default Do it anyway :-)

Michael-
I admit to bias on this, having googled the product and the guy who makes it. He sounds a bit like a...... how can I put this? Fruitcake?

You, however, have been around here a long time and seem rational (around here, at least) so I looked a little further and found a site giving the ingredients.

Ingredients
Vitamin C (as ascorbyl palmitate)
MegaHydrate™ Microcluster®
Silica Hydride Powder Proprietary Blend: Potassium Citrate, Silica, Potassium Carbonate, Oliec Acid, Hydrogen Negative Ions

Wikipedia says that our GI system breaks ascorbyl palmitate into ascorbic acid and palmitic acid. The latter is a major part of coconut oil and "Palmitic acid has been shown (in rats fed on a 20% fat (palmitic acid), 80% carbohydrate diet) to alter aspects of the central nervous system responsible for the secretion of insulin, and to suppress the body's natural appetite-suppressing signals from leptin and insulin -- the key hormones involved in weight regulation."

Megahydrate Microcluster seems to be marketing gobbledygoop.

Oleic acid is a fatty acid that is an important part of olive oil and similar fats.

The two potassium compounds are sources for potassium supplementation.

"Hydrogen negative ions" (HNIs) - Wellll.... This is where it gets tricky. But it is also where it gets interesting. Also very confusing. Any of our group chemists want to help here, please chime in. In the mean time I will try my best...

First of all, I'm not sure if the inventor is more ignorant than I am or vice versa. But it could be that we are both very lucky here. Let me try to explain something that I barely understand and how it may relate to all of us. As I and Laura have mentioned, we both seem to have an unusual form of PD if that is even what it is. If PD even exists.

I am beginning to suspect that PD is a "spectrum disorder" and that Laura and I are toward one end. One of the primary features of this part of the spectrum is the poor handling of potassium. Other areas exist involving similar problems with sodium, magnesium, and other minerals (i.e. the electrolytes). Note that the formulation that we are looking at has potassium as a major ingredient.

Potassium is moved around and in and out of the cells by pressure created by tiny little pumps mounted in the cell wall (imagine a window in your house wall). These pumps work by swapping potassium on one side of the wall for hydrogen ions on the other side. The fuel is supplied by our mitochondria in the form of ATP, the energy currency of the body. The pressure builds, the window is thrown open, and the potassium flows through the window.

When things work they work well. When they don't, one can be paralysed for minutes, hours, or days. Taking potassium helps greatly. So, keep at it Michael, and keep us informed. -Rick
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 07-04-2012, 08:56 AM #4
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Yes, I am still taking the same meds. The only change I have made is the addition of Mega Hydrate. When I awoke this morning I was still "ON". At this point in time I have had 47 continual hours with no Parkinson's symptoms. Let me say this again. I am not saying that Mega Hydrate is responsible for this. It is just the only change I have made. I supppose the next step would be to see if I can reduce my meds any.

michael
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Old 07-04-2012, 10:27 AM #5
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Default And Rick...

You are so right, but go toward the beginning of the cascade of events tothe uncoupling of t he oxidative phosphorylation process.Two documents were released by the U.S. government in 2009. The first one stated that Agent Orange uncoupled the oxida tive phosphorylation process, while the other one stated that the uncoupling of the oxidative phosphorylaion process causes Parkinson's disease. Take a look at what happens here. This is where a hydrogen electron is used to create ATP (energy) . Water is a by-product and is used to keep the cell hydrated. This all happens in the Mitochondria. If it doesn't happen the cell begins to dehydrate and the loss of energy triggers a change in the apoptotic time table forcing the cell into an early death. Transport across the cell membrane becomes impossible . Hyperpolarization occurs at the voltage-gated ion channels and they no longer open to release dopamine.

NOW...A BIG WHAT IF...What if the Mega Hydrate was able to make the hydrogen electrons available again? What might we expect to happen? I chose this product hoping for certain results. I was experiencing similar results in the year 2000 with a product called Microhydrin from A company called Royal Body Care, but I had a heat stroke on July 10th of that year that nearly killed me. I have been formulating this theory for 12 years here, but again, I am not saying that this is a cure or even a treatment. What I am saying is that this is significant to me.

michael
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Old 07-04-2012, 11:12 AM #6
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Default creatine too

Something similar is going on with creatine. It draws water into the cell, thus rehydrating it. But athletes have to be very careful about dehydrating since less water is circulating. However, for me at least, the dose needed is much lower than called for. About 1/2 tsp instead of 2 to 3 tsp. Too much knocks me out. Oddly enough, magnesium has a similar effect. Ideas?
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 07-04-2012, 02:30 PM #7
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Default

The rehydration theory in relation to PD has been proposed elsewhere, with positive results. John Coleman in Australia credits his recovery, in part, to a homeopathic rehydration therapy that was originally devised for athletes, called The Aquas. See http://www.aquas4life.com/

See John's own site http://www.returntostillness.com.au/home.php

He also pays a lot of attention to diet and meditation.

I personally know someone using the Aquas who is doing quite well though he is not rid of the disease. In any case, plenty of water intake is good for the body, and brains especially like to stay spongy.
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Old 07-04-2012, 09:38 PM #8
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ok, here it is. After 53 continual hours of wonderful, relaxing, restful and focused "ON" time, I went off. It reminded me of the movie Awakenings. I am scheduled to increase the dosage of Mega Hydrate tomorrow, July 5th, 2012. 53 symptom-free hours was much more than I had anticipated. I was blessed.

michael
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Old 07-05-2012, 01:47 AM #9
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Default put the lime in the coconut and drink it all up

Quote:
Originally Posted by reverett123 View Post
Something similar is going on with creatine. It draws water into the cell, thus rehydrating it. But athletes have to be very careful about dehydrating since less water is circulating. However, for me at least, the dose needed is much lower than called for. About 1/2 tsp instead of 2 to 3 tsp. Too much knocks me out. Oddly enough, magnesium has a similar effect. Ideas?
I noticed longer "on" times with drinking rain water....am considering trying an experiment with distilled water.
Rick have you considered coconut water?? - chock full of bioavailable potassium, magnesium and calcium.

md
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Old 07-05-2012, 11:44 AM #10
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Default Rick

All that I could find concerning creatine that might give similar results as Mega Hydrate is that, according to this website http://pubs.acs.org/doi/abs/10.1021/ac60034a023 ,creatine has a high concentration of hydrogen ions.

michael
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