Parkinson's Disease Tulip


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Old 09-22-2012, 06:10 AM #21
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I am going to work on nite snack ideas using gelatin , stevia etc...I hate giving up ice cream and dairy products are just not good for us..I want a healthy ice cream substitute!
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Old 09-24-2012, 04:54 AM #22
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The experience of a forum member since he started using gou teng:

http://www.parkinsons.org.uk/pdsforu...topic=gou-teng
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Old 09-24-2012, 08:27 AM #23
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Quote:
Originally Posted by pwpboy View Post
The experience of a forum member since he started using gou teng:

http://www.parkinsons.org.uk/pdsforu...topic=gou-teng
how reliable is a single post from an anonymous poster? personally, i would be very cautious.
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Old 09-24-2012, 09:22 AM #24
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Soccertese, of course this is not rocket science. I also have no idea who this guy is and whether he is reliable. But whenever I find any evidence of gou teng possibly leading to improved life of quality, I just gather it in this thread. This is all I can do. For real rocket science results, I guess we have to wait on the results of the Hong Kong university.
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Old 09-24-2012, 09:41 AM #25
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I found some articles about gou teng that might be of interest:

http://libir.tmu.edu.tw/bitstream/98...416/2/38-2.pdf

http://www.hindawi.com/journals/ecam/2012/802625/

http://www.ncbi.nlm.nih.gov/pubmed/22113202 --> Alpha synuclein in PD

The strange thing is that I didn't find much of it, until I started to search for Uncaria Rhynchophylla in Alzheimer disease.
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Old 09-24-2012, 10:20 AM #26
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Quote:
Originally Posted by pwpboy View Post
Soccertese, of course this is not rocket science. I also have no idea who this guy is and whether he is reliable. But whenever I find any evidence of gou teng possibly leading to improved life of quality, I just gather it in this thread. This is all I can do. For real rocket science results, I guess we have to wait on the results of the Hong Kong university.
personally, i wouldn't post anything where the source was not "reliable". that's not rocket science either but it's common sense in my honest opinion. you don't think a lot of people aren't trying to find this herb based on your posts? this isn't a matter of "rocket science" or just intellectual curiosity, you are likely encouraging people to take a risk on this herb and there might be side affects and/or unreliable sources- can someone be sure they are actually getting this herb? just my opinion.
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Old 09-24-2012, 11:04 AM #27
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Soccertese, I respect the fact that you wouldn't post this. But I am not you. I have different perspective of viewing at things. I see information that I consider as possibly interesting and I post them on the forum. People that read this information should determine themselve what they do based on this information. It is not up to me, nor up to you determine what people do with their lives.

Besides this, personaly I think you are overexagerating about the possible negative effects this herbal might have. Don't forget that this herbal has been used a treatment for parkinson in China for many centuries. So it's not like this will completely poison a person.

I read threads here where people experimented with other things. I didn't read any complain from your side in those threads. So why are you so negative towards this thread ? Why didn't you say in those threads that the positive results of that person are encouraging other to buy that product, which science has not proven to be safe or effective ?

If it makes you happy: TO ALL of you reading this thread, be aware that it is not scientifically proven that gou teng is both healthy and beneficial for PD patients. It could well be that it could harm you. So if you plan to take this herbal, be aware that it can harm you.
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Old 09-24-2012, 11:32 AM #28
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Just a reminder that these forums are for open sharing of information, so there is no rule about exclusion of info just because it is not "scientific". Anecdotal reports are always allowed, and we do assume members will heed the disclaimer on all of the pages here
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The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
I am also going to post the guidelines link again just so everyone can review what is or is not allowed, and also so that the discussion remains respectful, even when members may disagree
http://neurotalk.psychcentral.com/showthread.php?t=1293
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Old 09-24-2012, 12:01 PM #29
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Quote:
Originally Posted by pwpboy View Post
Soccertese, I respect the fact that you wouldn't post this. But I am not you. I have different perspective of viewing at things. I see information that I consider as possibly interesting and I post them on the forum. People that read this information should determine themselve what they do based on this information. It is not up to me, nor up to you determine what people do with their lives.

Besides this, personaly I think you are overexagerating about the possible negative effects this herbal might have. Don't forget that this herbal has been used a treatment for parkinson in China for many centuries. So it's not like this will completely poison a person.

I read threads here where people experimented with other things. I didn't read any complain from your side in those threads. So why are you so negative towards this thread ? Why didn't you say in those threads that the positive results of that person are encouraging other to buy that product, which science has not proven to be safe or effective ?

If it makes you happy: TO ALL of you reading this thread, be aware that it is not scientifically proven that gou teng is both healthy and beneficial for PD patients. It could well be that it could harm you. So if you plan to take this herbal, be aware that it can harm you.
i guess the difference is when i made no comment on other treads i believed the poster actually took the supplement(s) themselves and the supplements have been proven to be safe via many studies such as with creatine, carnitine, carnosine, coq10, ginseng, tyrosine and there are reliable sources. i have expressed similar skepticism on many other threads. enough so to have been evicted once from the board.

i understand the guidelines for posting here. your're free to post anecdotal info, i just wouldn't do it unless i knew the person who took the supp, i personally don't think an anecdote from an anonymous poster who has posted one time on another message board is trustworthy enough to repeat. there's guidelines and there is common sense.
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Old 09-24-2012, 12:25 PM #30
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I think it is relevant to link DocJohn's post from another thread here too
http://neurotalk.psychcentral.com/post916417-17.html

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....a warning to future members or readers that you have to be careful with anything you read online. Especially about "cures" for diseases that have no known cures.
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