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09-28-2012, 12:20 PM | #1 | ||
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I contacted the MJFF foundation to ask them whether there will be a clinical phase III trial for GM1 ganglioside. This is the reply I got from them:
Dear pwpboy, Thank you for your interest in the Foundation. We apologize for the delay in replying to your email. The Foundation is interested in all research that seeks to find a cure for Parkinson’s disease and develop improved therapies for those living with Parkinson’s today. To find information on the activities and research of the Michael J. Fox Foundation for Parkinson's Research, please visit www.michaeljfox.org. Thank you again for your patience and for your interest in the Foundation! Best Regards, Research Team, MJFF And I really had to wait a very long time to get this response. What are the conclusions I make from this: 1. There will be no clinical phase III trial, despite the very good results in clinical phase I and the clinical phase II. (Clinical phase II results are good but still need to be published, but in the other forum the professor already stated that the clinical phase II results were very promising.). 2. I will stop donating money the MJFF. If this is the way they reply to people that donate money to them, then they don't deserve any donations. Moreover, as GM1 ganglioside seems to be promising, but they are being very mysterious about it, it seems something fishy is going on. And I don't like fishy things. I don't donate money to create jobs for people. I donate money for the sole purpose to find a cure as fast as possible. As I can see from the way the MJFF is dealing with it, they do not have the intention to find the cure as fast as they can. And therefore, my donation will stop as we speak. I already donated hundreds of dollars to the organization. I wished I didn't do so. |
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