Parkinson's Disease Tulip


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Old 09-27-2006, 08:26 PM #1
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Default what made me take notice...

...was that seems to be a transient effect - it comes after ldopa and then fades away. Unless your timeing was lucky testing would miss it,
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 09-28-2006, 07:31 AM #2
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Quote:
Originally Posted by reverett123 View Post
...was that seems to be a transient effect - it comes after ldopa and then fades away. Unless your timeing was lucky testing would miss it,
However, if you had a glucometer handy.....

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Old 09-28-2006, 10:52 PM #3
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Default Funny you should mention it!!!

I just started testing my blood sugar today because I KNOW there is a link, but had not heard anything from anyone else about it. I have a "Diabetes Story" as well, but no time for lengthy posting. I will read this whole thread again more thoroughly and also get back to you on what my results show. I was stunned to see this thread. I've been preaching to my support groups for years...blah blah blah, then they go have their coffee and donut! You can often get a glucometer free if you buy 100 test strips. They are like Barbie dolls. It's the accessories that cost the $$$. They run about a dollar a strip in this neck of the woods, and insurance doesn't pay. More later... thanks Rick.
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Old 09-28-2006, 11:10 PM #4
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Default morning with glucometer

9/28/06
7:30 BS = 89 ; arose, took 1 Sinemet CR, 1 Eldypryl;
8:30 coffee black
9:00 BS = 104 even though no food yet; worse than arising; brain fog; dystonia left foot; freezing
9:15 2 Requip; glass of milk
9:30 brain fog lifting
9:45 BS = 129
10:00 BS = 103 brain back, body coming quickly
10:15 BS = 88 body coming slowly
10:30 BS = 90
10:45 Ate hamburger
11:00 2 Requip
11:15 Body coming online finally
11:20 Full function!!

note spike at about two hours then crash. no food. why spike? Ldopa!
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 09-30-2006, 02:29 AM #5
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Default Rick:

I also had some surprises when I did my glucose testing. I'm not sure how to compare the readouts I'm getting compared to yours. Maybe its just the decimal point. somewhere I have the ratio of sugar to somethingorother, I'll have to go look it up. It's been 14 years since I had gestational diabetes, and have tested twice over the line for diabetes, but was able to bring my blood tests back in line by exercise and losing weight. I have a feeling this is going to take more work. Most of the readers perusing this thread probably have no idea what their blood readings should be and I don't understand yours you've posted.
the range as I understand it is 3.0 (below that your in serious hypoglycemia) to as high as upper teens (15-20) and probably going to go into diabetic coma. I woke up this morning with a reading of 6.4 which is very high for first thing in the morning -should be in the 4.5 range. Then when my meds went off this afternoon I nearly had a heart attack when my blood tested at 9.1. My range should be 4.0 - 7.0 Out of those readings I'm into bad weather! I have to start reading because I've forgotten a lot. I'm a sugar junkie...can't imagine what a piece of cheesecake would do to me. I still have your e-mail I think...I'll keep up with you on this one. There is definitley a tie in between balanced meds and balanced blood sugar. I'm keeping a log of what and when I eat and will test about 7 times a day like I did when I had gestational diabetes. Also I have a friend who knows a lot about the patterns but I won't get to talk to him for 3 weeks at least. I've got a current copy of the GI index, but the old counting carb routines I'm more comfortable with because I know portion control is critical. Sorry if any of you reading this is feeling overloaded with info, but Rick is right....this is important and critical stuff. Why have two holes drilled in your head if you can avoid it. PS taking a blood glucose test while off is VVVEEEEERRRRRYYY tricky! What is "Oxidative" stress?
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Old 09-30-2006, 08:04 AM #6
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Default converter

here's a converter between the two systems

http://diabeticgourmet.com/Tools_and...readings.shtml
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 09-30-2006, 08:22 AM #7
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Rick,
Thanks for the converter. Now maybe I can make some reasonable judgements as to just where my blood sugar is.

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Old 04-05-2007, 07:25 AM #8
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Two comments...I'm not a doctor, of course, but I am an experienced diabetic.

First, if you eat a lot of carbs, which come in many unlikely forms, yes, you may have temporary highs (however you personally describe a high), but your pancreas is the regulator and as long as it does its job and brings the reading down to normal, with in an hour or two, you should not be concerned. If you monitor your glucose in the morning before breakfast and two hours after a meal, your normal blood glucose level should be less than 110 mg/dl, which is my goal upon getting out of bed each morning.

Second, is this saying that I possibly developed Diabetes, which is now regulated by a minimum of one injection of slow acting insulin (sort of a CR effect), and by one to three injections of regular insulin a day, because of Parkinson's. They both started about the same time.

My biggest enemies are NOT what one would consider sugar items, such as candy, chocolate bars, ice cream, etc.

My biggest enemies are concentrated juices (e.g. orange juice...I never drink anymore ), rice, potatoes and BREAD!



Suffice it to say my pancreas and I stopped communicating well long ago!! Maybe my pancreas developed clognition too.
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I long to accomplish a great and noble tasks, but it is my chief duty to accomplish humble tasks as though they were great and noble. The world is moved along, not only by the mighty shoves of its heroes, but also by the aggregate of the tiny pushes of each honest worker. ~~Helen Keller
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Old 04-05-2007, 05:11 PM #9
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Default

FYI - Don't want to confuse things. When I said the following:
  • My biggest enemies are NOT what one would consider sugar items, such as candy, chocolate bars, ice cream, etc.
  • My biggest enemies are concentrated juices (e.g. orange juice...I never drink anymore )
, rice, potatoes and BREAD!

I was referring to my diabetes and glucose maintenance. I have never seen a correlation between food intake and my PD.
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You're alive. Do something. The directive in life, the moral imperative was so uncomplicated. It could be expressed in single words, not complete sentences. It sounded like this: Look. Listen. Choose. Act. ~~Barbara Hall

I long to accomplish a great and noble tasks, but it is my chief duty to accomplish humble tasks as though they were great and noble. The world is moved along, not only by the mighty shoves of its heroes, but also by the aggregate of the tiny pushes of each honest worker. ~~Helen Keller
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