Parkinson's Disease Tulip


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Old 05-29-2007, 07:03 PM #1
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Default Royal jelly

teresaxtu mentioned a few months ago an old man in her village who was doing well with PD after many years. He attributed it to his consumption of royal jelly from his bee hives. I found that there was actually some research that backed him up. I filed it in my "to follow up" pile.

Yesterday, as part of a semi-desperate attempt to get over some high stress that had literally knocked my feet out from under me, I started it for a trial.

I am quite surprised. It actually seems to work, at least so far. I noticed a lift within a few hours and today (Day 2) has been the best in at least a month! Not only have some serious "Offs" disappeared but tomorrow I am going to cautiosly adjust my medication schedule.

I have talked to one PWP who has been trying it too with similar results. Has anyone else had any experience with it?

<NOTE- If you should decide to try it, be aware of possible allergies even fatal ones. Rare but known. Same as most medicines.>

Some research:

1: Hashimoto M, Kanda M, Ikeno K, Hayashi Y, Nakamura T, Ogawa Y, Fukumitsu H,
Nomoto H, Furukawa S.
Oral administration of royal jelly facilitates mRNA expression of glial cell
line-derived neurotrophic factor and neurofilament H in the hippocampus of the
adult mouse brain.
Biosci Biotechnol Biochem. 2005 Apr;69(4):800-5.
PMID: 15849420 [PubMed - indexed for MEDLINE]

2: Kohno K, Okamoto I, Sano O, Arai N, Iwaki K, Ikeda M, Kurimoto M.
Royal jelly inhibits the production of proinflammatory cytokines by activated
macrophages.
Biosci Biotechnol Biochem. 2004 Jan;68(1):138-45.
PMID: 14745176 [PubMed - indexed for MEDLINE]

3: Kamakura M, Mitani N, Fukuda T, Fukushima M.
Antifatigue effect of fresh royal jelly in mice.
J Nutr Sci Vitaminol (Tokyo). 2001 Dec;47(6):394-401.
PMID: 11922114 [PubMed - indexed for MEDLINE]

4: HOJA S, VITTEK J.
Effect of royal jelly on regeneration.
Folia Biol (Praha). 1963 Jun;9:230-2. No abstract available.
PMID: 13961242 [PubMed - indexed for MEDLINE]
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 05-29-2007, 07:34 PM #2
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Default Reverett

My mum swore by royal jelly ...and comfrey.She grew comfrey and made wine,infused it,bottled it,shredded it..you name it,the list was endless.She was extremely healthy all her life until her late 70`s when she had parkinsons.
She had it 3 years when throat cancer was diagnosed and died through a hospital blunder 3 weeks later.But truly,she was a sprightly lady way into her 70`s..well up until the day she died.So was my dad.Home grown veg hey? Can`t beat it.
I have also read some interesting facts about cider vinegar.One woman,who actually now,diagnoses folks state of health and prescribes cider vinegar in the correct quantities for each individual,swore that she was mountain hiking in her pensioner years.
Another of her success stories was a girl who had spent many many years in a wheelchair,and after 2 years of this cider vinegar,needed the chair no longer.
I guess we could read and read until the cows come home,hanging our hopes on this and that,and so it is useful,when,like you have done here,someone actually state the benefits for sure...and has tried and tested something.

Maybe we should have a TRIED AND TESTED THREAD.

No Steffi waffle..just plain and simple facts ,quantities,daily dosage,benefits or not.
May I add that I am on a 10 day detox..not strictly adhereing because I smoke
but my digestive system is seeing the benefit already.
Thanks for this

Propolis..isn`t that the form that you buy royal jelly in?

steff
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Old 05-29-2007, 08:09 PM #3
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Reminds me of a meeting I had with the Chairman of Pharmaceutical Company. He was one of the biggest producers of Royal Jelly. He told me of when he got journalists from one of the world's biggest selling newspapers in to his office to interview him. He was raving to them about the wonders of Royal Jelly. His interview got a full page story about it.

He proudly boasted to me that they'd had adverts already purposefully booked on the same day and on the opposite pages in the same newspaper in order to cash in on it.

"We were inundated with purchases" he said. "Made a fortune out of it".

"So you think Royal Jelly is really good ?" I naively asked.

"Oh no" he said. "Useless stuff. It doesn't do anything.".

I've never been able to take Royal Jelly seriously since then.

I also lost confidence in the Parmaceutical Chairman, who because of some of his other antics has been facing criminal prosecution for the past seven years.
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Old 05-29-2007, 08:50 PM #4
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Default caveat emptor

Royal jelly is the rarest of the products of a hive. As a result there is a higher incidence of quality problems and a lot more crooks involved. Since it is unregulated, the only defense is to deal with reputable companies. I'm using NOW brand. 500 mg of a 3 to 1 concentrate equivalent to 1500 mg of raw product. I have been taking one in morning and one in evening but I may cut that in half over the next few days.

It is now 9:45 PM. Normally I would have had meds on a two hour schedule with the final at 8:00 PM. Also, the pattern of the last week would have had me Off an hour or more at mid-day and I would be Off by now for the evening.

Instead, I have had no Offs since this morning and I have had no meds since 6:00 PM. I'm expecting an Off but haven't felt it coming yet.

I have had a mild dyskinesia of the sort that comes with too much medication. Tomorrow I will try to cut the dose back a little and see if that takes care of that.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 05-29-2007, 09:03 PM #5
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Excuse my ignorance, but WHERE does one buy Royal Jelly?

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Old 05-29-2007, 09:44 PM #6
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Default source

in usa at health food stores
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 05-29-2007, 10:27 PM #7
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Default Suspicious

Perhaps I am just cynical but given all the Royal Jelly that is sold by reputable and otherwise companies I am suprised that the declining bee population is producing that much.

Artificial Royal Jelly??

Ken
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Old 05-29-2007, 10:27 PM #8
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Post an fyi on royal jelly

http://tinyurl.com/2acrzt
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by
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, on Flickr
pd documentary - part 2 and 3

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Resolve to be tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant with the weak and the wrong. Sometime in your life you will have been all of these.
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Old 05-30-2007, 03:17 AM #9
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Quote:
Originally Posted by KC Tower View Post
Perhaps I am just cynical but given all the Royal Jelly that is sold by reputable and otherwise companies I am suprised that the declining bee population is producing that much.

Artificial Royal Jelly??

Ken
Honey and Royal Jelly production is obviously on an industrial scale right now. The food industry processes millions of tons of honey, among other, for breakfast cereals. I know, because I have seen it, that industrial honey is runnier and lighter than natural honey from your own bee hives and I suspect that Royal Jelly is manipulated much the same way.
However, even the worst quality is still health food and good for us. The main problem with Royal Jelly is its price, especially if you buy it fresh (liquid).
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Old 05-30-2007, 03:23 AM #10
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Quote:
Originally Posted by caya View Post
Excuse my ignorance, but WHERE does one buy Royal Jelly?

Caya
Health food stores, pharmacies and top-notch supermarkets. My supermarket has a section of organic farm products and sometimes they have it right there in the middle of the cheeses and the briar honey.
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