Parkinson's Disease Tulip


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Old 02-12-2013, 09:34 PM #21
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Lemon lime,
I didn't tell my doctor because all he wants to do is to keep me on my meds and to increase it whenever there an issue. I talked to a pharmacist online and he advised me that I could cut the pill in half for about a month to see how that goes. Then if needed cut the half in half. I not as weak but anxiety kick in. I can handle it because its not that bad. That's my story. I know that Azilect conflicts with a lot of supplement that I wanted to try, so I slowly worked it off. Hopefully you have the same success that I had. I just bought a bottle of Rhodiola and plan on using this week. Can't wait. Oh, and quercetin also.
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Old 02-16-2013, 12:06 PM #22
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We received the book The Rhodiola Reolution by Brown & Gerbarg....
they suggested to 2 clients with PD to also add Galanthus nivalis (snowdrop plant to their intake along with rhodiola and stated that it really made a huge difference in their lives. both were completely dependant upon their wives. They made a huge come back.
They also suggest a product called Clear Mind ( a blend of rhodiola, hydroxycinnamic acid from blueberries and Rhododendron caucasicum ) I have not researched any of these as yet, but the description in the book "before and after" are impressive.
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Old 02-16-2013, 03:59 PM #23
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Hi Lemonlime,

I wanted to share that I am currently going through withdrawl of Selegeline which I have taken almost continually for about 15 years.
It has only been 5 days so far and my symptoms are worse but not terrible, some more cramping and the sinemet I take is not lasting as long as I am used to (more like 3 hours than 3 1/2 - 4 ).
I have done this before when I was going to have minor surgery.
I also have had 2 scares over the years with interactions of the MAO-I and herbs (I think one time it was 5-HTP which I wasn't aware was in a supplement).
I would greatly prefer to not take it as there are so many possible and dangerous interactions. If I have any reactions- I'll try to let you know.


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Hi Drevy - I am curious how long you were on Azilect and if you had a hard time coming off of it? Rhodiola is something we would like to try, among other supplements, but can't because of the Azilect being an MAOI - B inhibitor. Apparently there are 693 meds that interact with Azilect - that's crazy! I would appreciate any information you could contribute about weaning off and any changes you may have noticed, other than anxiety. Of course this would be done with a doctor's supervision.
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Old 02-23-2013, 08:48 AM #24
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We are still having positive results with rhodiola. My one friend is gaining much more strength and flexibility and is standing up straighter than I have ever seen her in the 4 years I have been one of her caregivers. Her family has noticed also. We are doing more complicated exercises and stretches . I notice about 20% improvement now every week. I have gone back to taking 1 Swanson brand capsule at breakfast instead of taking 1/2. Sleeping better, getting alot done outside. Went to a Contra Dance (like square dancing) at the college last week and danced every dance and didn't get tired (usually do every other one and take brake in between) The cold is not bothering me as much *though I did find flannel lined jeans and wear long jons underneath this winter...keeping legs warmer is a big plus. I have about 400 fava beans in the ground now, but need alot more.
All in all. ..Rhodiola is a thumbs - up for Aunt Bean!
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Old 02-23-2013, 11:25 PM #25
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Quote:
Originally Posted by Aunt Bean View Post
Here is my limited research on this :
I have been taking it for 3 1/2 weeks now and feel that it is worth you all looking into and doing more research with me
I decided to start off with Contraindications for using it, anything thing listed below is a RED Light ...Don't Use IF:
1. pregnant or nursing ....& don't give to children
2. do not take if you are taking an MAOI (it acts as one)
3. If you are bipolar or have manic depression
4. If you have sever kidney or liver disease
5. If you have low blood sugar (take with food) don't take if you
won't be able to eat within 30 min after taking this herb
6. Do not combine with caffeine
7. Take in am...it may interfere with sleep
Possible side effects: insomnia, irritability, mild jitters, restlessness, vivid dreams. It can restore menses. High Doses can cause: heart palpitation, rapid heart beat, or a panicky feeling.
Start with a small dose and stay small...works as homeopathic (less is more)

Things Rhodiola rosea has been used for:
Treatment of colds, anemia, headache, cancer, infertility and erectile dysfunction,leukorrhea, and to strengthen the heart muscle. It promotes energy and stamina and mental performance (memory , etc)
As an anti-oxidant, it protects the nervous system from oxidative damage from free-radicals. It reduces stress related chemicals in the body and improves MOTOR COORDINATION. It is an anti-inflamatory.
One site said...Helps to rebuild dopamine.
Starting in the brain stem it promotes release of norepinephrin, serotonin and dopamine and enhances the effects of these neurotransmitters on the brain by increasing the permeability of the BLOOD BRAIN BARRIER.
It increases ATP . It enhances thyroid function without causing hyperthyroidism. Helps the thymus and adrenal glands to function better.
I started out taking 400mg Swanson Rhodiola rosea on Dec21st. After exactly 2 weeks ..noticed that I didn't need as many doses of fava tincture (my homemade l-dopa supplement from fava plant). The next day, I didn't require any. Certain days needed one dose or more . After 17 days had 2 very short episodes of heart palpitations and decided to cut back on dose. I am now emptying 1/2 a capsule into my cereal in the morning and saving the other half for the next day. This seems to be working well (approx 200 mg daily) I feel a tincture would be better for controlling dosage and probably 100mg a day may give good effects good effects.(possibly even 50mg)

Hope this will inspire some of you to more research on this herb. God Bless
I see that number 2 of your description of Rhodiola Rosea, that it could not be used with an MOAI because is acts as one. I'm using Zandopa and Zandopa you can't use an MOAI ALSO. Is it considered one or not.
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Old 03-29-2013, 03:14 PM #26
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Hi all,

Dr.Oz recommended this supplement today. I wanted to see how you all were doing with it.
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Old 03-30-2013, 08:37 AM #27
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I am not a doctor Drevy , but Zandopa is mucuna base and my other friend here that is going natural for PD takes the Rhodiola and mucuna capsules also.. she also makes and takes fermented Payaya and fava tincture. She does not seem to be having a problem with it. She just made a visit to her neuro at Vanderbuilt (spelling?) and they said she checked out good..just keep doing what she is doing and keep notes so she can teach them about the natural things we are doing. A definite Thumbs UP.
I have just reduced down to 1/2 Swanson brand 400mg Rhodiola before breakfast and seem to be doing ok with it this time. Tried it before and my energy level dropped so I had gone back on a whole again. Been taking 1/2 for a week and still ok this time. (I still haven't had time to make the Rhodiola extract ..taking apart all the capsules takes a while....but I will get to it soon.
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Old 04-08-2013, 10:56 PM #28
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Has anyone had increased Blood pressure since taking rhodiloa?



Quote:
Originally Posted by Aunt Bean View Post
I am not a doctor Drevy , but Zandopa is mucuna base and my other friend here that is going natural for PD takes the Rhodiola and mucuna capsules also.. she also makes and takes fermented Payaya and fava tincture. She does not seem to be having a problem with it. She just made a visit to her neuro at Vanderbuilt (spelling?) and they said she checked out good..just keep doing what she is doing and keep notes so she can teach them about the natural things we are doing. A definite Thumbs UP.
I have just reduced down to 1/2 Swanson brand 400mg Rhodiola before breakfast and seem to be doing ok with it this time. Tried it before and my energy level dropped so I had gone back on a whole again. Been taking 1/2 for a week and still ok this time. (I still haven't had time to make the Rhodiola extract ..taking apart all the capsules takes a while....but I will get to it soon.
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