Parkinson's Disease Tulip


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Old 02-01-2013, 09:44 AM #1
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Ronhutton Ronhutton is offline
In Remembrance
 
Join Date: Aug 2006
Location: Village of Selling, in County of Kent, UK.
Posts: 693
15 yr Member
Ronhutton Ronhutton is offline
In Remembrance
Ronhutton's Avatar
 
Join Date: Aug 2006
Location: Village of Selling, in County of Kent, UK.
Posts: 693
15 yr Member
Default Switched on, no L-Dopa

I seem now after 21 years to be incredibly sensitive to L-Dopa, in any form,Sinamet, Stavelo etc.
I occasionally switch on in the evening when it is up 7 or 8 hours since my last Stavelo, and that is a 50 mg tablet, cut in half by a pill cutter. So 25 mg!! In total, my daily L-dopa intake is an average of 100mg per day. (4 x 25mg)
Even 25 mg gives me dyskinesia. I had to abort a dental appointment
last week, since I was whrithing about so much.
Planning what meds to take for my return visit to ther dentist I decided to try taking only my normal Mirapexin 2.1mg slow release. No Stavelo to avoid dyskinesia. I took the Mirapexin at 7-00am, swithed on at 8-00am, which lasted another 2.5 hours.
In between doses, when I am nomally off, I am really off. I can barely alter my position. No hope answering the doop bell or phone.
So what has bought me to this point? As a white rat, I have expermented with many supplements that I have checked out for safety first. Some I have taken for decades, like curcumin. I can't put my hand on my heart and say one particular supplement did the trick. I could not prove it.
My hope is my meds will last longer with time, and I can reduce further to zero, and be permanently on. Some hope!! If you extrapolate what has haappened so far, it could happen.
Has anyone else had or has got this pattern??
Perhaps we may find a mutual treatment
Ron
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