Parkinson's Disease Tulip


advertisement
Reply
 
Thread Tools Display Modes
Old 02-13-2013, 03:11 PM #1
NorCalGal NorCalGal is offline
Junior Member
 
Join Date: Nov 2012
Location: Sacramento
Posts: 48
10 yr Member
NorCalGal NorCalGal is offline
Junior Member
 
Join Date: Nov 2012
Location: Sacramento
Posts: 48
10 yr Member
Default Am I just being too sensitive today?

I get regular (every 3 months) botox shots in my left foot to abate the cramps. Oddly enough it helps alliviate them in both feet. This last visit there was a lot of blood after my doctor gave me the shot and since then I have had a lot of pain and numbness in my back. I sent an email to my doctor after a week of rest, pain medication, heat application and stretching. I asked him if Medtronic was the only "game in town" for DBS therapy along with mention of the back pain I have been experiancing and that 4 out of the 7 days since my shot I'm still having foot cramps....one day forcing me to abandon a shopping outing. His reply only addressed the Medtronic portion of my email. And I got very insulted that his response was "Would you like to come in and discuss ..." After thinking about his reply I shot back that I would prefer him to address the other issues in my email and to direct me to other sources regarding this new therapy or treatment that is due out in the next 6 months. My response was emotional, as too is this post. Half my face is numb and right on schedule my toes are beginning to curl up forcing me to spend my lunch hour prone on the couch in back of the office. And yes my back still hurts. Just had to vent. Sorry
NorCalGal is offline   Reply With QuoteReply With Quote

advertisement
Old 02-14-2013, 05:25 AM #2
lab rat lab rat is offline
Member
 
Join Date: Oct 2012
Location: Los Angeles
Posts: 108
10 yr Member
lab rat lab rat is offline
Member
 
Join Date: Oct 2012
Location: Los Angeles
Posts: 108
10 yr Member
Default UCSF is worth the trip

If you end up "shopping" for a new doctor, and you can manage to get to UCSF, I think you will be glad you did.

Also, consider checking out the DISC center in Newport Beach if you decide on DBS.

I think you already suspect you can get more help than you are being offered. Go with your intuition.

Everyone here hopes you are better soon.
lab rat is offline   Reply With QuoteReply With Quote
Old 02-14-2013, 09:16 AM #3
indigogo's Avatar
indigogo indigogo is offline
Senior Member
 
Join Date: Aug 2006
Location: "all the way over on the West Coast"
Posts: 1,032
15 yr Member
indigogo indigogo is offline
Senior Member
indigogo's Avatar
 
Join Date: Aug 2006
Location: "all the way over on the West Coast"
Posts: 1,032
15 yr Member
Default ventilation

Lab Rat is right - it's time for a second opinion. You have lots of choices in Nor Cal - all of the best to you!

And it is always alright to vent!
__________________
Carey

“Cautious, careful people, always casting about to preserve their reputation and social standing, never can bring about a reform. Those who are really in earnest must be willing to be anything or nothing in the world’s estimation, and publicly and privately, in season and out, avow their sympathy with despised and persecuted ideas and their advocates, and bear the consequences.” — Susan B. Anthony
indigogo is offline   Reply With QuoteReply With Quote
Old 02-14-2013, 07:10 PM #4
Brain patch's Avatar
Brain patch Brain patch is offline
Member
 
Join Date: Feb 2013
Location: Salt Lake City, Utah
Posts: 520
10 yr Member
Brain patch Brain patch is offline
Member
Brain patch's Avatar
 
Join Date: Feb 2013
Location: Salt Lake City, Utah
Posts: 520
10 yr Member
Default No you are allowed

You are allowed to say when you think something is wrong. You know yourself better than anyone and if what is happening is wrong to you then get to a doctor who will check it out. It is enough to be dealing with sickness. Anything else is overload. My daughter had a minor surgery for knee fluid and I kept telling the doctors something was not right. I know my daughter. She is not a complainer. Turns out she had a surgical instrument sewn up inside her leg. Yeah, unbelievable and they treated me like I was some overreactive parent. Doctors make mistakes all the time. Hope you get feeling better soon. I will pray for you. Lots of love.
__________________
Brain patch.
.


Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
Brain patch is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
My skin is so very sensitive today...what's up with that? Karenswails Peripheral Neuropathy 10 01-17-2011 06:49 PM
Seasonal sensitive BP? fiberowendy2000 Bipolar Disorder 5 10-29-2007 09:54 PM
Hyper-sensitive??? SteveS ALS 4 10-20-2006 10:57 AM


All times are GMT -5. The time now is 01:52 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.