Was wondering if anyone read this book from Richard Rogers. My dad is reading it and said there was mention of the negative long term affects of taking Mucuna.

To "recovery" from pd if you truly have it. There is only symptomatic relief, via "receptor tweaking" drugs. Mucuna is just the same as treatment with l-dopa, no matter what is said, and eventually we progress and no matter if we have been on sinemet or mucuna, we are likely to develop the horrible syndrome which we call dyskinesia. PD is a monster which eventually will rob you of your very ability to breath. Sorry to be so blunt, but this thing that we are dealing with is truly debilitating, as time goes on. Live well while you can, and don't let PD take everything away from you too early by not developing reasonable coping methods. You must be tough to "fight" this disease. Anything less than your best efforts to deal with what is happening to you, will be sorely regretted later.

I hear you and understand that might be the reality but geez..... Think positive

horsegoer,
your father is reading this book or are you? the author runs a website that charges $25/month to avail one's self of all their wonderful whatever.
http://www.parkinsonsrecovery.org/

i spent an hr. looking for what this guy got his ph.d in and couldn't find it.

his comment on mucana regarding "energetic charge" on his website is total nonsense imho
"On Mucuna:

It is clearly the case that Mucuna can be helpful to individuals currently experiencing the symptoms of Parkinson’s. Your question on the issue of the proper dosage is a very complicated. If you mother is also taking another medication like Sinemet – you will want to work closely with her doctor to ascertain the proper dosage.

If she uses both meditations – you are really using two drugs that are intended to have a similar effect. Mucuna is natural – but it is also a drug – just like Sinemet. You certainly do not want your Mom to overdo the dose – which can cause other unwanted side effects.

As I see it, the true challenge with using Mucuna to treat some of the symptoms of Parkinson’s is finding a reliable source. I receive many inquires asking about a good source for mucuna. The truth is I really do not know of a reliable source at this time. People do not like to hear this answer – but it is the best I have at this time.

There are many companies that sell Mucuna – but it does not have the energetic charge you need. The energetic charge you need comes from growing Mucuna in the wild. Commercial growers do not typically harvest Mucuna that is growing in the wild."

http://www.blog.parkinsonsrecovery.com/category/mucuna

you keep asking about mucana as if it were a magic bean, it isn't.

The sad truth is that there is no recovery as such from PD, there are simply ways of helping yourself not get worse faster than you need to. I say that from my observation, over ten years, of many highly motivated people with PD, and my own experience of having it. The ways people employ to help themselves are various, depending on how they are affected, and what they can work with and tolerate. Recovery is not what it is about, it is what we hope for one day when the causes are found, and something can be done to stop progression and deterioration. To some extent we can do some of this for ourselves by not accepting the way PD encourages us to limit ourselves, physically, mentally and socially. At the end of the day we have no way of stopping the damage occurring as yet. It makes sense to focus on what we can do, and not on what we can do. Trying to effect a recovery is like saying we can cure ourselves. If that could be done would any of us have PD in the first place?

Horsegoer,

The author of the book is actually dr Robert Rodgers, a retired psychologist whose mother died of PD, not Richard Rogers. I have never paid 25 dollars to his website. You can access much of the info for free. The Sunday connections radio program is excellent and has featured people who were correctly diagnosed and have now been certified as symptom free by their neurologists. Dr Rodgers has just hosted this conference http://www.summit.parkinsonsrecovery.com/ in Santa Fe. Aunt Bean attended the previous one in Cincinnati.

Personally I believe recovery is possible. At the very least there are better and worse ways of living with this disease. Dr Rodgers is very knowledgable about all aspects of the illness and is always very sensible and cautious in his discussion of medications for pd. he is providing a wonderful service, mostly for free. If you want to phone in or send a question to the Sunday broadcast it costs 5 dollars a month, otherwise it's free. Best five bucks I've ever spent.

Robert Rodgers struck me as very genuine. Truly looking for cures and help for people with PD. I was a presenter at the Cinci conference called The Summit in June and wish I could have attended all the workshops available and met all of the people.
Mucuna can be toxic...and has to be treated with care. It is certainly not the same as eating Fava Beans(or green beans or corn) I made a tincture of mucuna 2 years ago and still have not gotten up the "nerve" to try it. Decided I wanted it tried on a mouse model first. If my cat would give me one before eating it....I'd have it made!!!! (Always to late and probably always will be........except for supper!!) Anyway...mucuna is powerful and needs to be treated with caution...I use it rarely and grew my own and know how it was handled. I know people who take the capsules 3 times a day and they seem to be doing fine, ..but everyone is different . Remember...mucuna is a drug, just not a synthetic drug. The Bible says.... to use moderation in all things.....good rule to live by!
I take as little l-dopa supplement as I can get away with. Exercise hard/ stretch alot/ massage my neck and shoulders/ eat right (mostly) and know that my symptoms are still progressing...just very slowly compared to my brother who was on a ton of meds. We all have choices to make. Just remember that you are your best advocate...research, ask questions about the meds and try to make wise choices...watch your reactions to meds...keep a notebook. If something doesn't work for you..don't let it slide...go back to the doctor immediately and tell him or her what is going on. It is the only body you have........you are the one that has to live in it.

do you have links to these neurologists certification of symptom free? this is not a trivial claim. i am "symptom free' when well medicated.

No soccertease. Their neurologists don't provide 'links'. I trust the former patients in question. On what do I base my trust? The same basis as always. I work up a history with them. I get to know them. They are on the net with real names, addresses and pics. I have spoken to two of them on Skype. I'm satisfied they are people of integrity.

you are much more trusting than i am. why in the world wouldn't someone fully document something as incredibly important as recovery from pd? that's the first thing i would do, otherwise why bother? i'd do anything to get the treatment if i had adequate data that it worked safely in my lifetime and i could afford it.

seems a lot of people involved with pd recovery including have a financial interest.

http://www.blogtalkradio.com/parkins...for-parkinsons
Bianca Molle
http://www.mettamorphix.com/shopping