Hi:

More than a year ago I was on a clinical trial (precept 1347) which has now been discontnued. The study involved brain scans, blood work, urinalysis etc. I was to see my PD every three months, get a refill of the medication under study and to get a brain scan at Yale Hospital every two years. After this study was discontinued I was invited to participate in a follow up, which I readily accepted. I had my first visit last week. This took about an hour and a half and consisted of blood work (including DNA analysis), vital signs, a lengthy questionaire, memory, subtracting from 100 by sevens, etc. I think we have all taken this test. I took mine almost 4 years ago when I was first diagnosed. However, there was one test that was added. I was given a smell test. This consisted of a number of scratch cards, each of which held a unique scent. I was to scratch one of the cards, smell it and identify the scent. I couldn't smell anything even though I was assured that the scents were very strong and easily recognizable. The clinical coordinator was very surprised that I couldn't smell anything.

I was under the impression that the loss of smell was a feature of Parkinson's Disease. Could someone enlighten me on this?

Thanks

Lloyd