[olsen]

(good grief, is this going to be done one state at a time? will each state communicate with other states with registries? why not a national registry? guess the "private funding factor is involved? At one time I was an active advocate for a national registry; I have no time now, but so wish that would happen. madelyn)

Bill focuses on Parkinson’s disease registry
By Antone Clark


http://www.standard.net/stories/2013...sease-registry

SALT LAKE CITY — Legislation to create a Parkinson’s disease registry is one step closer to reality.

Members of the House voted unanimously Thursday to approve HCR8, sponsored by Rep. Stewart Barlow, R-Fruit Heights, to create a registry to study the prevalence of Parkinson’s.

The registry is being funded from private sources, Barlow said, adding he ran the bill as a resolution so the state would not be taking on the financial burden of the registry.

The measure now advances to the Senate for further consideration.