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03-01-2013, 10:24 AM | #1 | |||
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In Remembrance
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http://theintelhub.com/2013/02/28/mu...s-of-medicine/
This is one reason to learn about mucuna, dextromethorphan, Aunt Bean, antihistamines, and any other second tier treatments. Over at PLM there is one member trapped in this. He has not posted in over a month. And don't think it can't happen in the US. In a sense, Greece is being used to work out the details of how to foreclose and evict on a national scale. Mucuna and dextromethorphan are cheap and the info on their use is just a forum search away.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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"Thanks for this!" says: | vspot (03-14-2013) |
03-01-2013, 11:19 AM | #2 | ||
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Magnate
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i can appreciate the need to prepare for the worst but most pd meds are off patent, i'd rather have a dependable supply of sinemet rather than having to depend on a good growing season to supply my mucana and hoping farmers will not also try to control the mucana market. sounds great to depend on backyard gardens for our drugs but who's going to grow enough mucana to supply n.y. city in a drought? and what farmer is going to make that investment when carbidopa and l-dopa cost pennies/tablet?
anyone here actually grown, harvested and used mucana to the point where they can eliminate other pd drugs? most pd drugs are off patent, shortages can't last that long, can they? either china, brazil, india or other low cost producers will step in, won't they? |
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03-01-2013, 01:09 PM | #3 | ||
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Senior Member
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Quote:
And in the case of the Merck shortage we lived through, it took them 2 years to re-start production. And Parkies were kept completely in the dark about who what why and when, and to this day there has been no admission that something had gone very wrong. It was a very near thing. If it had continued that way, this would have been just about the only place to look for a survival strategy. Reverett123 and Aunt Bean and others, the little white mice conducting their own medical - dietary - psychological experiments had the information needed for survival - Not to create an industry and bankrupt Pharma. Just to be able to survive if Pharma decides to deliberately shut down production, as supplier to Merck did, in real time, in real life, endangering our lives, and then refusing to talk about it with their only customer - us. This website is mostly that - the Place Where Little White Mice Become Civilian Scientists, Because Nobody Else is Meeting Their Needs. |
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"Thanks for this!" says: | anon72219 (03-02-2013), lab rat (03-02-2013), lindylanka (03-03-2013), olsen (03-01-2013), reverett123 (03-01-2013) |
03-02-2013, 11:58 AM | #4 | ||
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Elder
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When my medical health failed about 8 years ago, I had no health insurance in this country. I could not get any because of pre-existing conditions. My meds. were over 1,200 per month.
I rode a protest train to canada, called the RX Express. It took a group of 50 of us to Toronto to acquire our medications. those sames medications I was on cost only $300 for a three month supply. Our goverments are not doing right by their citizens regarding the medications we get. I have asthma, one med. is $300 per month and is not covered by my medicare part D. I even changed programs and was lied to, being told it would be covered. so, what I hear in this forum is that meds. are delibertly withheld to some markets, and there is not barganing with the pharmacies in this coutry, or for that matter all over the world. I am sorry those of you with PD have had trouble getting a medication you need. Also getting that med. and then being denied that med. could kill you. Why is this happening?????? What can the average Joe like me do besides ride on a protest train. Reporters from the good old USA were denied entry to the train on the boarder. The freedom of speech was denied, and it was kept out of the papers in the USA. Canadian papers, had this train in all their papers. So why did the USA cover up this issue????? All my best to those of us with medical conditions. I just wish it could get better. ginnie |
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"Thanks for this!" says: |
03-02-2013, 01:20 PM | #5 | ||
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Magnate
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shortages of generic drugs can occur unexpectedly so if possibly one should have at least 90 days or more of meds on hand. especially where major natural disasters are possible where you live and/or where the drugs are manufactured.
it's one's personal choice if that is mucana, fava, or and/or pharmaceutical drugs. if you take sinemet and have to buy extra supplies out of pocket, i believe the cheapest form is the the 25/250 immediate release form which is easily splittable. it will it least hold you over until the supply chain is reestablished. i assume the same priniciple applies to dopamine agonists, you can buy the larger tablet and split it? i assume potency lasts much longer than 1 year. |
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03-02-2013, 11:06 AM | #6 | ||
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Junior Member
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Rick,
He has not posted in over a month because he requested his membership to be discontinued, and you know this. The PLM family is trying to get hold of him as you are. We dont know what his status may be, "trapped" or otherwise |
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03-02-2013, 01:34 PM | #7 | |||
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Member
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Rick..you make me nervous with this thread..like I'll be over-run with people looking for substitute l-dopa if there is a shortage. Like I need to plant the whole farm acreage in fava .. (like preparing for Y2K) But, if people raided the farm,, they wouldn't know how to use the crop anyway I guess...I think I am safe in my little hollow here in TN.
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03-02-2013, 04:51 PM | #8 | |||
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In Remembrance
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The meth freaks will have killed them off long before they find your little hollow. Get to know your neighbors and you will be fine. Humanity is absurdly designed in such a way that, despite the cynical madness of Hollywood, my best chance of survival is for me to maximize the odds for my neighbor's survival. Just further evidence of God if you ask me.
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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"Thanks for this!" says: | ginnie (03-02-2013) |
03-13-2013, 12:06 PM | #9 | |||
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Member
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Got the best neighbors I could hope for...they even keep an eye out for dad when he is on the lawn mower (it was more scarey when he was on a tractor trying to plow...but we sold that last year, thank goodness)..He got in trouble on a bank one day and a neighbor got to him before I did . ..Our neighbors dog even came down the road with a strange truck late one night in the summer and stood there and barked at it until it turned around and went back up the driveway. Dogs are so smart...he knew it wasn't us out so late.
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03-02-2013, 02:01 PM | #10 | ||
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Magnate
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http://www.biosciencetechnology.com/..._rid=290282652
meant to put this in a different thread, sorry Last edited by soccertese; 03-02-2013 at 03:06 PM. |
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