Go Back   NeuroTalk Support Groups > >

Parkinson's Disease Tulip

Healing Parkinson's patients with their own stem cells - patient funded

Reply
 
Thread Tools Display Modes
Old 03-16-2013, 02:30 PM   #1
soccertese
Magnate
 
Join Date: Nov 2007
Posts: 2,504
Default Healing Parkinson's patients with their own stem cells - patient funded

http://www.utsandiego.com/news/2013/...ent-stem-cell/
soccertese is offline   Reply With Quote
"Thanks for this!" says:
Bob Dawson (03-17-2013), girija (03-17-2013), lab rat (03-17-2013), lindylanka (03-17-2013), Peony (03-18-2013), shcg (03-17-2013), Stand Tall (03-19-2013), Thelma (03-17-2013), VICTORIALOU (03-16-2013)
Old 03-17-2013, 08:36 AM   #2
ol'cs
Member
 
Join Date: Sep 2006
Posts: 626
My Mood: Healing Parkinson's patients with their own stem cells - patient funded
Default Finally

I have some hope. Bravo!
ol'cs is offline   Reply With Quote
"Thanks for this!" says:
Bob Dawson (03-17-2013), Jim091866 (03-18-2013)
Old 03-17-2013, 09:11 AM   #3
girija
Member
 
Join Date: Nov 2006
Location: southern tip of west coast
Posts: 582
Default

Quote:
Originally Posted by soccertese View Post
Thanks for posting this article. Just a quick note in support of this study/

This work is being done at the Scripps clinic in San Diego where I get my treatment for PD/ I see Dr. Houser and Gould. I met Dr Loring once and I have been following their work for almost 3 years. This team of cliniciAns + reseachers + patients made scientific concepts into a reality for patients. This may be the closest we have ever come to a good therapeutic for PD with stem cells. All are waiting for human trials and hoping for FDA approvals.
Other interesting things from my point of view are:, this study would have no sham controls, each patient gets his/her own cells, takes advantage of placebo effect ... I cannot wait to see how clnical trials would go.
And, if they join forces with Ceregene. another local biotech with gene therapy for nerve growth factor delivery, we can say goodbye to our friend PD forever..................
I guess I am dreaming now!

Last edited by girija; 03-17-2013 at 12:15 PM. Reason: typos
girija is offline   Reply With Quote
"Thanks for this!" says:
Conductor71 (03-20-2013), ol'cs (03-17-2013), olsen (03-19-2013), Peony (03-18-2013), Thelma (03-17-2013)
Old 03-17-2013, 10:03 AM   #4
Bob Dawson
Senior Member
 
Join Date: Dec 2008
Posts: 1,135
Default I am dreaming along with you - this is THE BEST NEWS

This is a thriller. Just the way they are united with the patients is a giant step forward. Girija, it is great that you know them; convey our thanks and gratitude. I guess I can't ask you to kidnap them, but let's encourage them as much as possible

This is very precisely the revolution in research that we need

“The research, funded by the patients and their supporters…” who pays the piper calls the tune

“… restore near-normal movement for a decade or more, and the procedure could be repeated as needed.” Yeah, we could live with that.

“That’s unappealing to drug companies, who want treatments that can be mass-produced…. getting government grants hasn’t been possible…” One huge dinosaur said to another huge dinosaur: where did those little furry animals come from…?

“Patients and other group members evangelize the project in person, by email, and by videos explaining its significance.” Hmmm. No shortage of volunteer fund-raising when the patients are fully part of the entire process.

“..benefit from actually getting to know the people their research is devoted to. It makes the science less abstract and more human. The patients and the researchers feed off each other,” This alone is such radical concept, they should make a study of the study – showing other researchers that they will benefit in their own careers if they team up with the people whose lives they are trying to save. Medicine is science, but it is also an art, and it is always about people. For most of the past 50 years, the last two were chucked out.

“So far, Summit4StemCell hasn’t had any luck getting money from government sources, such as California’s $3 billion stem cell program or the federal National Institutes of Health. One problem is that the approach is still new….” Yeah, wouldn’t you just know that.
Notice how, when it gets real, everybody gets revealed. Big Gov and Big Pharma are not designed to do anything new; or create the future. They are too big to fail and too big to succeed. They don't remember why they came to the dance.

This is all great news and this is hereby declared to be a day of celebration.
Bob Dawson is offline   Reply With Quote
"Thanks for this!" says:
ol'cs (03-17-2013)
Old 03-17-2013, 10:51 AM   #5
soccertese
Magnate
 
Join Date: Nov 2007
Posts: 2,504
Default

Quote:
Originally Posted by girija View Post
Thanks for posting this article. Just a quick note in support of this study/

This work is done at the scripps clinic in San Diego where I get my treatment for PD/ I see Dr. Houser and Gould. I met Dr Loring once and I have been following their work for almost 3 years. This team of cliniciAns + reseachers + patients made scieintific concepts into a reality for patients. This may be the closest we have ever come for a good therapeutic for PD with stem cells, all are waiting for human trials and hoping for FDA approvals.
Other interesting things from my point of view are:, this study would have no sham controls, each patient gets his/her own cells, takes advantage of placebo effect ... I cannot wait to see how clnical trials would go.
And, if they join forces with ceregene another local biotech with gene therapy for nerve gtowth factor delivery, we can say goodbye to our friend PD forever..................
I guess I am dreaming now!

thanks for dreaming!!
there has been at least one other documented successful autologous stem cell implant by dr. levesque into one side of dennis turner's brain. i remember watching a senate hearing on adult stem cells, chaired by sam brownback, where dr. levesque testified and turner was there. unfortunately, levesque's research got tied up with investors, etc. and i don't think it he did any more implants. and turner's improvement lasted around 4 years? certainly not criticizing this research, just stating there was a partial? success. and thanks for the ceregene angle, certainly makes one more optimistic.

http://www.leaderu.com/science/stemc...ny_turner.html
soccertese is offline   Reply With Quote
"Thanks for this!" says:
ol'cs (03-17-2013)
Old 03-17-2013, 11:01 AM   #6
LindaH
Member
 
Join Date: Aug 2006
Posts: 230
Default

This news is so exciting! Thank you Girija for sharing with us your impressions of the Scripp’s clinic. Many PWP have spent countless hours over the last 10+ years, defending and protecting stem cell research and advocating for its funding. Now with the use of IPS cells, the controversy over embryonic stem cell research seems to have died down, and a treatment appears to be close to moving from lab to the clinic . (keeping in mind that the progress with IPS cells depended on knowledge gained from ESCR.) Our gratitude to the brave PWP and researchers who are daring to lead the way. And the fact that patients have all along worked together with the project’s scientists and doctors makes it even sweeter. What can the Parkinson’s community do to help support them re: FDA approval and funding?
LindaH is offline   Reply With Quote
"Thanks for this!" says:
Bob Dawson (03-17-2013), Conductor71 (03-20-2013), lindylanka (03-17-2013), ol'cs (03-17-2013), soccertese (03-17-2013), Thelma (03-17-2013)
Old 03-17-2013, 07:58 PM   #7
ol'cs
Member
 
Join Date: Sep 2006
Posts: 626
My Mood: Healing Parkinson's patients with their own stem cells - patient funded
Default Back to the future.....

May be finally the way to go for all degenerative illness. We can't cheat death, but it is just plain cruel to make people that could be helped from years of unnecessary life burdens, from doing all hat is medically possible, efficient and available to all, to remove these curses which sap humanity's vitality, and ruin individuals lives. How's that for a grammatically incorrect run on sentence! If all goes well, I hope for swift approval, not bogged down by some patent or royalties bs that the enemies of humanitarian progress always seem to bring about to impede progress ' cause it will make their stock interests implode.
ol'cs is offline   Reply With Quote
"Thanks for this!" says:
Bob Dawson (03-18-2013), Conductor71 (03-20-2013), olsen (03-19-2013), Thelma (03-17-2013)
Old 03-20-2013, 01:39 AM   #8
Conductor71
Senior Member
 
Conductor71's Avatar
 
Join Date: Jul 2009
Location: Michigan
Posts: 1,474
Default

Quote:
Originally Posted by ol'cs View Post
May be finally the way to go for all degenerative illness. We can't cheat death, but it is just plain cruel to make people that could be helped from years of unnecessary life burdens, from doing all hat is medically possible, efficient and available to all, to remove these curses which sap humanity's vitality, and ruin individuals lives. How's that for a grammatically incorrect run on sentence! If all goes well, I hope for swift approval, not bogged down by some patent or royalties bs that the enemies of humanitarian progress always seem to bring about to impede progress ' cause it will make their stock interests implode.
The catch is we have to fund this. I better get out the glue gun and start crafting paper tulips to sell along with my cup cakes.

They need $5 million to move forward...can't see it happening with the level of detachment out there in the mainstream PWP world. They only believe in things funded buy a non-profit org.
Conductor71 is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Virus-Free Embryonic-Like Stem Cells Made From Skin Of Parkinson's Disease Patients lou_lou Parkinson's Disease 2 03-07-2009 08:31 PM
Scientists are moving closer to using stem cells from the patient themselves to treat Stitcher Parkinson's Disease 1 04-08-2008 09:15 AM
Stem cells may not help fight off Parkinson's Stitcher Parkinson's Disease 0 04-07-2008 06:24 PM


All times are GMT -5. The time now is 02:10 PM.
Brought to you by the fine folks who publish mental health and psychology information at Psych CentralMental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2019 DragonByte Technologies Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2019 DragonByte Technologies Ltd.

All posts copyright their original authors • Community GuidelinesTerms of UsePrivacy Policy