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#1 | |||
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In Remembrance
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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"Thanks for this!" says: |
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#2 | ||
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Elder
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That vidio was way cool, hope all the forum can see it. Girls was ultra cool, and I was taken...Thank you for posting. Saw Moody Blues last weekend with my son. They sound just like the records@!!!!!!! Please keep posting music like this one. Lifts the spirits for all of us. I will watch this agian. ginnie
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"Thanks for this!" says: | reverett123 (03-26-2013) |
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#3 | ||
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Member
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In the 1960's, I traveled as road manager for a company of Korean classical musicians and dancers performing throughout the US and Canada. They had an equally talented gayageum player in the troupe. She played beautifully, but unfortunately I never thought to ask her if she knew any Hendrix tunes (or Clapton for that matter). This is a revelation, and made my day. Many thanks.
Jon |
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"Thanks for this!" says: | ginnie (03-26-2013), reverett123 (03-26-2013) |
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#4 | ||
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Senior Member
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Born 1955. Diagnosed PD 2005. Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg |
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"Thanks for this!" says: | ginnie (03-26-2013) |
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#5 | ||
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Senior Member
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"Thanks for this!" says: | ginnie (03-26-2013) |
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#6 | ||
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Senior Member
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Quote:
For those of you who have been living on a lifeboat adrift in the Pacific, with a hungry tiger, and therefore missed the Crazy Ink-blot Test, this will fill that gap in your pop culture. http://youtu.be/bd2B6SjMh_w Thank you all, for keeping the music of the spheres alive, since we started to beat on drums and dance 50,000 years ago Music is hard-wired into our DNA and it is the creators of beauty who are the true revolutionaries. |
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#7 | |||
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In Remembrance
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Actually, what I wanted to do was to rig up a Faraday cage and breed it with a theremin. A big one - maybe 12 x 12. Then I would slip into a "Suit of Lights" - a jumpsuit covered with sensors of every sort and slabs of LEDs. Then I would go nuts. With that much tech it doesn't matter if you got rhythm or nor. Play that funky music, White Boy!
Allow me to give all of you who think us just bunch of KnowNots a lesson on this. I always carried a secret with me. It lived down in my chest very near my heart. You see, I wanted to dance! To completely subsume my Self in the rhythm. I even briefly considered majoring in moden dance. Yeah, the chubby little Hillbilly had a secret Boogie Jones hidden away. The problem was that it was so hidden away that it was barely there. I was simply too bashful and too aware of the opinion of others to chance getting my chubby little butt out there. I was "too cool". Then, one day I came to realize that PD had taken away my choice. I was never going to dance over that rainbow. I had blown it for the most stupid of reasons - vanity! I actually cared about what people who didn't know me thougt about how I "shook that thing". I was doomed to be a Closet Dancer the rest of my days. I still shake the old booty from time to time, but that is a far cry from my original vision. And so, while I cannot perform the dance, I can sing the song. Not the one that the others sing, but one of my own. And there are times when the night is dark and the wind howls through the treetops outside my door that powerful forces strike a rhythm that cannot be denied. It is then that I move. I actually gave up a Dream for such stupid reasons! But I still have a little warm place next to the song in my heart. It is shaped like a dance. And I am actually on YouTube dancing in front of millions of people. But it is not the same somehow. But there was one time that the mojo did arise and gave me a brief burst of strength. It was at a local venue that had somehow booked a lineup that included Alejandro Escavido. (His version of Jimmie Rogers song "California Blues" alone is to die for.) My wife and I were sitting there at intermission and the PA system was playing. I honestly don't know just what because what happened next kind of scrambled the circuits. I was contemplating the idiocy of Man and that particular one especially. My failing in that area was highlighted by my wife's presence. She can Dance! And I don't mean half-way either! She could dance the pattern off a magic carpet and she does it without even knwing that it is happening. And you talk about a Hot Mama! She still is but in those days.... And so something in me stirred and was not going to be denied. I stood up and, to her surprise, I led her to a part of the floor where the shadows dwelled. And I danced. It would have looked somewhat less than a miracle to those who knew nothing about the forces involved. And those who really danced would have seen nothing but an obstacle to avoid. But, by god, I was going, that one time, to Dance with her in my arms. And I did. Four or five songs later the Galactic Demons regained control - or so they thought. I turned back into a toad and she a princess. At least for a few more years. Well, that one took on a life of its own, but it feels pretty good. But I promised a lesson learned that I would share. Actually, it is a hybrid lesson with part coming from my mind and the rest coming from that Buddhist genius...., Dave Barry. We would like to tell you that very few guys are good dancers. We are loaded with self conscious crap from Day One. And most of us bear the White Curse. We really don't know how to react to a beat. And so, if there is a Dancer hiding in there be aware that the number of times that you will have the opportunity to dance is finite. There will come a morning when you look in the mirror and realize, as I did, that you have waited too long. Then you should weep. Or challenge the gods one more time and grab your lover and twirl. We all live on borrowed time. That realization is the one thing of value that has come to me via PD. And to paraphrase Dave Barry - When you think that everyone is watching you dance and you are sure that they are laughing at you, they almost certainly are not. And if they are, screw 'em. Dance anyway. In the grip of the Boogie Monster (Turn it way up. Bad recording.) Quote:
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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"Thanks for this!" says: | Bob Dawson (03-26-2013), ginnie (03-26-2013) |
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#8 | ||
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Elder
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Boogie, dance, shake anyway you want. Loose yourself in what ever rythem you have. It is good for the body, mind and soul. It is never too late to shake that thing. (I do in private all the time) ginnie
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#9 | ||
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Elder
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Loved watching you dance. Keep it up, it is good for all of us to be inspired, no matter what out medical conditions are. Think I will do the same tonight! ginnie
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#10 | ||
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Senior Member
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Quote:
Last edited by Bob Dawson; 03-26-2013 at 05:19 AM. |
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"Thanks for this!" says: | ginnie (03-26-2013) |
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