Parkinson's Disease Tulip


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Old 05-11-2013, 06:01 AM #1
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Started about a year ago with weakness in my arms & legs. Then about 5-6 months ago Ptosis in right eye, drooping head, soft low volume voice. Had Blood work, MRI, Nerve Conduction Test, EMG etc to rule out Myasthenia Gravis. Then 2-3 months ago slow muscle movement, trouble using fingers & hands, hands want to go into closed fist shape, slight tremor in right thumb & hand, taking small - slow - short steps, not swinging right arm while walking. Now tremor more pronounced & lasting longer (10 - 15 minutes at a time). Now looks like possible Parkinson's? Was wondering at first if the tremors only show up temporarily at first and then get more constant as it progresses? Also just lately can't hardly smell or taste anything and my writings small and hard to read.
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Old 05-11-2013, 06:52 AM #2
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Was wondering at first if the tremors only show up temporarily at first and then get more constant as it progresses? Also just lately can't hardly smell or taste anything and my writings small and hard to read.


I didn't have any of the first symptoms you described. But the tremor started exactly as you said, just a little every so often at first and then more constantly. I lost my sense of smell several years prior to Dx.

Good Luck!
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Old 05-11-2013, 07:42 AM #3
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Symptoms can start differently for each person...I went for so many years (just before 8th grade until 4 years ago)with just slow eye focus and reflex reactions ,constipation and my right foot trying to turn sideways and trip me. Nothing has helped the constipation, but l-dopa totally corrects the foot and I walk normally and can even dance! (my PD is hereditary and that may make a difference also). God Bless you ..hope you find a good path to take.
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Old 05-11-2013, 10:41 AM #4
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Thanks for the replys. Was in a Big Lots store today and my right had a rolling tremor almost like shaking dice all through the the store and the 20 minute drive home. Also I have to be cautious so I don't bump into things while walking. It seems I take small steps especially when I have to turn or walk around something. My next appointment with my Rheumatologist is in the 1st week of June so maybe we can get things figured out soon.
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Old 05-11-2013, 07:40 PM #5
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Quote:
Originally Posted by slashman48 View Post
Thanks for the replys. Was in a Big Lots store today and my right had a rolling tremor almost like shaking dice all through the the store and the 20 minute drive home. Also I have to be cautious so I don't bump into things while walking. It seems I take small steps especially when I have to turn or walk around something. My next appointment with my Rheumatologist is in the 1st week of June so maybe we can get things figured out soon.

Good Luck with your appointment.
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Old 05-12-2013, 05:49 PM #6
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Thanks, what's weird is every time I drive the tremor in my right hand starts up.
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Old 05-13-2013, 09:01 AM #7
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I have been diagnosed for about 2 years. Your symptoms sound very similar to my experience. One of the things you mentioned really caught my eye literally. I also have in the last year have experienced ptosis above my right eye. My symptoms began on my right side and wonder if the ptosis above my right eye is related. I know ptosis is common with aging but Im only 41 years old. Curious if anyone else with pd has had this happen. Iv asked my neurologist he said it could be related but never really gave me a definite answer. Good luck with everything
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Old 05-14-2013, 06:33 PM #8
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Thanks, what's really bothersome is how weak my hands, fingers and legs are. It's like my muscles take way more thought & effort to use them. Also when using my hands & fingers I have to watch them the whole time I'm using them. For instance, I can't just grab a glass of water. I have to slowly reach for it, readjusting as I go, open my hand, okay, close hand, all the while watching to make sure I've got it. Okay slowly lift glass up, readjust, etc.. Just little things like taking a drink takes more time, effort, and concentration. Does get a little frustrating sometimes. Especially trying to pickup or use small objects. Not going to let it get me down, just have to find different ways of coping.
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Old 05-15-2013, 08:39 AM #9
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Yeah I can relate to all that. I remember that before I was diagnosed I was moving pretty slow. My kids used to ask me why I was "being so careful" when I was doing anything with my arms or hands, wasn't being careful I was just slow. I couldn't even come close to making my fingers do what I wanted them to. The good news is that medications do help at least for a while and everybodys response is different. If you haven't actually been diagnosed I would bet that they will start you on a trial of sinemet to see your response. For me the response was immediate, within about 40 minutes my tight, stiff, sore body felt like it was melting it was amazing. Again good luck with everything and keep up your positive attitude.
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Old 05-15-2013, 03:26 PM #10
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Thanks, at least now I have a doctor that listens and believes me. Having some kind of diagnosis would be a big relief after all the waiting and tests and then being told nothing's wrong. I can face having a disease the worst part is not knowing.
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