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Stopping Sinemet (Carbidopa-Levodopa)

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Old 06-26-2013, 06:35 AM #1
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My patient/ friend stopped taking sinemet over approximately 12 months time. Using the method of making liquid version (dissolving the sinemet pill in water and adding ascorbic acid and shaking) Decreasing the amount taken ever so slightly every week. But, during this time, she was also taking fava bean supplements to replace the l-dopa that she was getting from sinemet. I think it would be VERY hard to quit taking l-dopa..it is what makes me functional. I am only 60 and still have life in me and things I'd like to do. There is alot to consider when you have a physically disabling condition and taking prescribed meds. We all have to make choices in Life...weighing pros and cons...personally, going natural was the only option I considered after reading and seeing the side effects of synthetic l-dopa . But, if I hadn't started my research before my condition became worse...I never could have started it afterward. Looking back, I had a very small window. God placed the right people in my path and right experiences to prepare me for what I needed to accomplish before the worsening symptoms hit. If the fava tincture that I depend on had not been started exactly when the first one was...it may never have been made. God has a perfect plan and perfect timing for all things.
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Old 06-26-2013, 11:27 AM #2
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Four years ago (five?) I was taking 32 mgs of requip daily. DK was becoming a problem and I quit overnight in favor of ldopa. The warnings about doing things like that had just began to appear and I was not aware of the risks but I sailed through with no problem.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 06-26-2013, 11:37 AM #3
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Aunt Bean,

Below is the Oswald Chambers for June 25:

Quote:
Receiving Yourself in the Fires of Sorrow


June 25, 2013

. . . what shall I say? ’Father, save Me from this hour’? But for this purpose I came to this hour. ’Father, glorify Your name’ —John 12:27-28

As a saint of God, my attitude toward sorrow and difficulty should not be to ask that they be prevented, but to ask that God protect me so that I may remain what He created me to be, in spite of all my fires of sorrow. Our Lord received Himself, accepting His position and realizing His purpose, in the midst of the fire of sorrow. He was saved not from the hour, but out of the hour.

We say that there ought to be no sorrow, but there is sorrow, and we have to accept and receive ourselves in its fires. If we try to evade sorrow, refusing to deal with it, we are foolish. Sorrow is one of the biggest facts in life, and there is no use in saying it should not be. Sin, sorrow, and suffering are, and it is not for us to say that God has made a mistake in allowing them.

Sorrow removes a great deal of a person’s shallowness, but it does not always make that person better. Suffering either gives me to myself or it destroys me. You cannot find or receive yourself through success, because you lose your head over pride. And you cannot receive yourself through the monotony of your daily life, because you give in to complaining. The only way to find yourself is in the fires of sorrow. Why it should be this way is immaterial. The fact is that it is true in the Scriptures and in human experience. You can always recognize who has been through the fires of sorrow and received himself, and you know that you can go to him in your moment of trouble and find that he has plenty of time for you. But if a person has not been through the fires of sorrow, he is apt to be contemptuous, having no respect or time for you, only turning you away. If you will receive yourself in the fires of sorrow, God will make you nourishment for other people.
I hope this doesn't violate any rules...

Jim
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Old 06-27-2013, 06:31 AM #4
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That is a beautiful devotional ,,,I had one of his books several years ago that I read daily. It is true. If you have not suffered, you are not as much value to those who are suffering. And yes, I feel that for this purpose I am here and pray that my work shall be accomplished and will be a help to future generations. Blessings..........Aunt Bean
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Old 09-15-2013, 08:51 AM #5
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Default Fava bean extract
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Originally Posted by Aunt Bean View Post
My patient/ friend stopped taking sinemet over approximately 12 months time. Using the method of making liquid version (dissolving the sinemet pill in water and adding ascorbic acid and shaking) Decreasing the amount taken ever so slightly every week. But, during this time, she was also taking fava bean supplements to replace the l-dopa that she was getting from sinemet. I think it would be VERY hard to quit taking l-dopa..it is what makes me functional. I am only 60 and still have life in me and things I'd like to do. There is alot to consider when you have a physically disabling condition and taking prescribed meds. We all have to make choices in Life...weighing pros and cons...personally, going natural was the only option I considered after reading and seeing the side effects of synthetic l-dopa . But, if I hadn't started my research before my condition became worse...I never could have started it afterward. Looking back, I had a very small window. God placed the right people in my path and right experiences to prepare me for what I needed to accomplish before the worsening symptoms hit. If the fava tincture that I depend on had not been started exactly when the first one was...it may never have been made. God has a perfect plan and perfect timing for all things.
Where can I find this Fava bean extract?
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