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07-29-2013, 09:41 PM | #1 | ||
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Junior Member
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Hello friends;
I have been looking for you high and low. A site where I can come 24/7 and chat with someone who has Parkinson's. Is this such a site? Is it also correct of me to assume I have to submit 3 entries before I can go on chat? Please someone answer me? I am having a hard time navigating this site. I was diagnosed with Parkinson's stage 1 3+ years ago. I was in shock, and lived in denial for a looong time. I have been doing fairly well, until this summer when I believe the excess heat did me in. I feel so much weaker, poor balance causing me to fall and broke ribs, walking awkward. I just need to talk to other "Parkies." I think that is a cool nick-name for us. In loving kindness, Eva Gabrielle |
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07-30-2013, 05:56 AM | #2 | |||
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Member
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Welcome. Glad you found us...there will always be someone awake at any hour of the day in our group. I have never been to the chat room,....don't know how to do that either...not good with computers and my old one that was gifted to me is about to go under I think you will catch onto the site quickly...if I can, anyone can! God Bless
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07-30-2013, 06:40 AM | #3 | ||
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Member
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Welcome aboard! You'll find plenty of people here willing to talk to you.
Best of luck, Gary |
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"Thanks for this!" says: | 12stargate (07-30-2013) |
07-30-2013, 07:21 AM | #4 | ||
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Member
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Welcome Eva,
I am glad you found NeuroTalk. Stay physically active and mentally positive. Everyone here can help you! Jill |
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"Thanks for this!" says: | 12stargate (07-31-2013) |
07-30-2013, 08:41 AM | #5 | |||
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Member aka Dianna Wood
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Hello Eva,
Welcome to our site. The group takes keeping updated on the most recent Parkinson's research very seriously. Many here feel strongly that the usual drugs taken for the disease can be treated with healthier options. We realize that every person with Parkinson's disease has a different set of symptoms. Many try to do their own efforts at research by posting surveys or looking for people who have symptoms similar to their own. We are all in different stages of the disease. I am in the moderate to severe stage of the disease. I am totally having problems with all the summer changes. Which is why I live in Minnesota. Your new friend, Vicky |
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07-30-2013, 03:26 PM | #6 | ||
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Junior Member
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Welcome Eva,
I am also a new member and found this Forum very informative. As per previously posted answer to the similar question as yours the "Initial posts by new members will only be visible to the moderation/administration team until they've been approved. Once a new member's posts have gone through the approval process, future postings will be immediately visible without further screening. During this period new members will not yet be able to post URL links or use the chat rooms". If you go to the [B]FAQ there is a lots of info how to navigate this Forum. Bo |
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07-30-2013, 05:16 PM | #7 | ||
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Junior Member
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Hi Bo;
Thank you for your kind and informative reply!!! I appreciate you talking the time to answer my post. The heat has really gotten to me this summer. Is that normal for us 'parkies'? Thanks and many blessings of Peace to you from Eva |
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07-30-2013, 05:21 PM | #8 | ||
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Junior Member
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Dear Vicky;
I am so glad you wrote!! I am in 1st stage PD for 3 years, and the heat and humidity has bothered me terribly! What do you do to take care of yourself in this kind of weather? Lovingly, Eva Gabrielle |
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07-30-2013, 05:23 PM | #9 | ||
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Junior Member
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Thank you Jill. That is exactly what I do
Lovingly, Eva |
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07-31-2013, 06:51 AM | #10 | |||
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In Remembrance
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Quote:
One way to look at PD is to imagine an old fashioned child's top. You would wind a string around it and secure one end of the string to your hand and leave the other secured simply by the wrapping itself. Then, with the right flick of the wrist, you would set the top to spinning. After some initial wobble it would become almost magically stable and could continue spinning even as a child's hand sought to test its limits. Eventually it would begin to lose spin and go slower and slower. Wobble and vulnerability increase and recovery becomes less certain. A child's pudgy finger or a heat wave becomes a challenge and a threat. Each day begins with a certain amount of spin and that amount gradually declines over time. There are many challenges to maintaining our spin / our balance / our homeostasis. We generally label them as "stress", take the bit in our teeth, and go on. A big mistake for most of us. Pamper yourself. Neither too hot nor too cold. Just right. The Goldilocks Disorder. -Rick
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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"Thanks for this!" says: | Bob Dawson (07-31-2013), Bogusia (07-31-2013) |
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